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Blind and Visually Impaired Community

Full History - 2020 - 02 - 16 - ID#f4r5vf
25
That feeling. (self.Blind)
submitted by twirlingparasol
I was on the phone with my guy last night who lost his sight in an accident several years ago. He is a pretty manly man, and always took pride in that (I've known him for over two decades on and off, sighted and blind). He and I have gotten really close and he tells me things he wouldn't normally tell others. Last night he confided in me that he feels like he's lost so much autonomy, even when he's having a good day navigating by himself, and sometimes he feels emasculated by that. Those weren't his exact words, but that was the general point. I was so glad I've joined communities like this one, because I was able to tell him that it's not a gender specific issue, and that most blind and VI people seem to experience that same exact feeling. He seemed to be comforted by knowing he wasn't alone. So, two things: first, thank you all for making that knowledge available so I was armed to comfort him. Second, can any of you relate some stories that made you feel that way, anything that helped alleviate that pain and frustration, and the best things a sighted partner can do to make that feeling minimal for their blind/VI partner? If that's not comfortable for you, don't comment. I hope you all have a wonderful day!
Real_Space_Captain 13 points 3y ago
I am a young female who is loosing her eyesight, but I completely relate. One thing that has been helping is watching video of people who are blind living their lives. They mention the struggles but often provide solutions. For me, I relate to Molly Burke since we are around the same age.

However, for your friend, I would suggest $1. He is a laid back man whose blind since birth, in his late 50s. He talks/shows himself traveling by himself, lighting a cigarette, working, experiencing a theme park, reviews movies, etc. It is very comforting to him to living his best life not being limited by his blindness but not pretending it doesn't come with it's challenges.
twirlingparasol [OP] 5 points 3y ago
This is AWESOME. Thank you so much.
CosmicBunny97 2 points 3y ago
Those YouTubers are great. I find Joy Ross really helpful too, though that might not be up his alley.
Mokohi 6 points 3y ago
I'm so sorry to hear your SO is feeling that way. I completely understand. I have multiple disabilities, so it isn't just my vision, but I feel that way so often. My disabilities are due to my mother being injured during her pregnancy, so I don't have experience with losing anything, I have always had my disabilities. However, i fully understand the feeling of being less 'capable.' Having proper accommodations and supportive people around me has changed my life. When I was young, we didn't have much knowledge about accommodations becauae I live in a tiny small town with little info on disabilities. I remember having to hold my brother's hand as a young teenager just to cross the street, and given I was at that age of wanting to 'be an adult already', it was the most embarassing experience. Even just simple things like getting a cane and teaching my family and friends sighted guide have helped me immensely. I also think It's important not to call attention to it. I know that probably sounds like silly advice, but my loved ones forget this a lot. This isn't related to sight, but I have CP in my hands only and for example, I'll have trouble cutting my food or shaking and making a mess on the table. People often thinks they are helping by telling me because they figure I can't see, so I must not notice the problem. I do notice. I'm quiet about it because I don't want everyone around us in a restaurant to know. It's embarassing to me. My brother has loudly told me I was making a mess and to hover over my plate better and my mother has done things like cutting my food for me when I'm struggling. These are all very kind gestures, but it's very, very embarassing for me as a 24 year old! i would much rather they instead be patient with me. I can do it, it just takes longer than it would for them. I have told them that before, but a lot of people don't understand why It's embarassing. 'It's not your fault, you shouldn't have to feel ashamed', and I know that, but it doesn't stop me from feeling sad about it anyways.
twirlingparasol [OP] 2 points 3y ago
Thanks so much for relating your stories. It sounds like you understood exactly what he meant, and I really appreciate all your input. I'll try to keep that thing about helping too much in mind, because I'm naturally a very helpful person and I just want to help everybody in general, but yeah sometimes I feel like I'm helping him at the wrong times for sure. Thanks, man.
Mokohi 2 points 3y ago
No problem! I'm sure he appreciates it. I'm sure you already know, but best thing to do is just to ask if he needs help or not. He'll be able to tell you best what he can do himself and what he needs help with. That and patience. Sometimes, it's quicker to help, but at least in my case, I would rather take 6 minutes to tie a shoe than have someone else do it for me in 1 minute.
DrillInstructorJan 3 points 3y ago
If it helps, I'm a five foot tall, hundred pound woman and I feel like that.

Nobody wants to feel dependent or that other people will see you doing something stereotypically blind. I've abandoned countless drinks on bars and restaurant tables just because I forgot where I put it, and didn't want to be seen feeling around for it. I've got a whole repertoire of ways to feel for something so it doesn't look like I am.

Probably I should get over that, but your guy is not alone. I can't tell you an easy way to make it go away, if you don't want to pass this on I would understand totally, but he is not alone.
bradley22 2 points 3y ago
I don’t care if people see me.

If I need to feel around for a thing, so be it.
DrillInstructorJan 1 points 3y ago
Yeah, but were you born into this situation? I wasn't (and neither was the person mentioned in the post above) and I know what blind people can sometimes look like to everyone else.
bradley22 1 points 3y ago
Yeah, I was born blind.

If I spent my life thinking about what others thought of me, I’d not leave the house.

My advice would be live life the best you can and don’t let what others think bother you.
bscross32 3 points 3y ago
The worst thing is when sighted people have little to no confidence in you. Depending on your general outlook, it probably will affect you. I'm like fuck you, watch and be proven wrong, but other people might be more meek. Even I will become negatively affected if they keep on with it.

​

What's worse is if you don't manage to do something and they're like yep, told you so. No, get outta here with that nonsense. What kind of thing is that, you're almost glad someone can't do something?

​

Also, if you don't do it the way they think it should be done, but you manage anyway. Outside of your professional life, what's it matter. If something needs done, why should you care the root I take to get there, I still got it done. I just have to do things a bit differently.
twirlingparasol [OP] 1 points 3y ago
I like your attitude. You made me smile and honestly you kinda remind me of my boyfriend, haha. He's definitely not meek, and like I said, it was definitely in confidence that he mentioned this feeling. It's the needing help sometimes that bothers him. No matter how much he can do on his own, he is still going to need help sometimes... But that's why I'm here and I'll never make him feel less than.
bscross32 1 points 3y ago
It took me a while to come to terms with the whole needing help and being accepting of it.
bradley22 1 points 3y ago
I agree.

Sighted people can be quite demeaning and negative at times.
bradley22 3 points 3y ago
Sometimes the way some sighted people treat me can feel degrading but I was born this way so am kind of used to it.
[deleted] 2 points 3y ago
i just losing my eyesight and nobody can give me the slightest hint what could be wrong, i just lose it and cant do s*hit about it, the worst thing is that i cant deal with it, also my partner left me in that phase of my life, im on the edge of getting insanity, i would trade neraly everything, so that my eyesight would work perfectly again till my death

im intereted in people wich are able to overcome this weakness and can live a "barly normal" life

sigh
i try to find an answer because i cant think of that my sh*tty cells just malfunctioning
twirlingparasol [OP] 2 points 3y ago
Man, I'm sorry to hear that's how it's going for you, and even more sorry to hear your partner left you in one of the hardest points of your life. That's some bullshit. I have experience with a partner leaving at a crucial time and it changed me forever, and broke my heart irreparably. I will tell you though that that person definitely didn't deserve you and they were not strong enough or a good enough person to love you through what you're dealing with. You don't need that.

My boyfriend was in an explosion which basically blew his face off. His girlfriend at the time just left him there to die. I'd rather not get into the specifics, but suffice to say we all know what it feels like to be left in a horrible way by a horrible and/or weak person. If you need to talk or anything, keep doing so. You can message me if you need to. I think it's important for you to get these thoughts and feelings out.
[deleted] 1 points 3y ago
thank you! still i cant say if i ever will deal with it, but i try my best

i really dont want to get someone on their nerves, but its a very kind offer from you, maby in the future if you will see my comment :)

in the last months ive consumed a lot of series, movies everything (bockjack horseman etc) and also ive pushed my hobbie video editing
who knows how much time i have left untill everything turns completly black, maby ive got lucky and it stops at a certain time, but till now its developing

as said it sounds whiney, but just imagine when you lose the most important thing in your life ans without you can only barly life, that would be the equal situation~

thank you for your words, be blessed!
oncenightvaler 2 points 3y ago
This might not be aplicable for all, but I love it when people celebrate my small victories with me, like me going some place I've never been before independently.
thebrilliantluxury 2 points 3y ago
I'm not blind, but my younger brother has been blind for 13 months now. He felt the same way your guy does, and it was really hard to get him through it. I didn't know about this community when all of this first happened, but now that I do I find there is a lot of useful information out there.

I don't know if he has thought about this, or if you have, but have you looked into a school for the blind in your area? My younger brother just finished his 2 week evaluation and he's already getting around better with his cane.

They'll teach him how to be blind, is I guess the best way to put it. The school my brother is at teaches him how to get around with his cane, has a service dog training option, life skills like cleaning, cooking, laundry, mobility, reading Braille, etc. If there is anything like that around, you should look into it. It's hard to get used to at first, but trust me even a little bit helps. My brother has gained a lot of independence back in just 2 weeks time.

I hope everything goes well and that your guy will be able to shake these negative feelings.
twirlingparasol [OP] 1 points 3y ago
Thanks so much for your thoughtful comment. Sounds like you're a really supportive big sister. Yes we do have one in Indianapolis. I've been checking stuff out. Thanks so much for your input. It means a lot!
Duriello 1 points 3y ago
I've never experienced anything like that, and I've been disabled my entire life as I never had more than 10% of visual acuity, but for some reason people tended to rely on me way too much in my opinion, so I ended up distancing myself from my family. When I went totally blind I was very quick to accept my condition and not really mind the loss of autonomy or the way people think about me, and have in fact learned to take advantage of those who think I'm not capable.

The only thing that really bothers me about blindness is having lost the ability to interact with computers the way everyone else does, because I'm as geek as it gets and this has always been my world. If someone made an interface that could pipe the contents of the display right into my visual cortex I would be the happiest blind person in the world even if I wasn't allowed to do anything else with it.
BlueRock956 1 points 3y ago
I found mentors through the National Federation of the Blind. I've gotten educational, career, and personal assistance from many people in the NFB. For me, having a community of friends who have gone through similar experiences is important.
bradley22 1 points 3y ago
Is your guy learning how to use software or phones?
twirlingparasol [OP] 1 points 3y ago
Yeah, he has an iPhone and he's been through mobility training. Thanks for asking. I've suggested things like Reddit. I hope he will eventually get into stuff like this.
bradley22 2 points 3y ago
Help him set up a reddit account then tell him to install testflight then go to https://testflight.apple.com/join/4MJtN4FB

It’s an accessible reddit app.
twirlingparasol [OP] 1 points 3y ago
THANK YOU!!! I have absolutely NO idea how to help him with his phone, which is frustrating for me. I'm an Android girl, so the iPhone just pisses me off. Lol. I should've looked into exactly how to do it sooner.
bradley22 1 points 3y ago
No problem.

Go to applevis.com for podcasts and getting started with voiceover.
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