Also look at the Facebook group "OIUF's Adult Support Group for Uveitis/Ocular Inflammatory Disease." I'm apart of it and it's extremely helpful. You might find other people with PIC on it too, but I'm not sure.

I was on oral prednisone for the first 6 months to ensure that the inflammation was completely gone. Since high dose steroids aren't sustainable, I was switched to oral cyclosporine, an immunosuppressant. The plan is to be on it for 1 year, and if there's no flare ups I will be taken off it in the hopes the inflammation doesn't return. So this summer i will be 1 year since I started cyclosporine. The medication has been very successful for me. I have not lost vision but I still have lots of floaters from the initial inflammation and I still have flashes that never went away. My retina vessels are permanently damaged structurally but no vision loss. I found my specialist on uveitis.org.