Hi
I am having a very hard time coping with my diagnosis since 2 years ago. I feel like I already went through denial, to just depression over not being able to accept it. So please let me know what has helped you cope with loosing your sight, any helpful books or tips?

My story:
I am a 30 year old female, married, 1 child, working.
I am a carrier of Choroideremia: this affects mainly male and causes tunnel vision to progressive blindness in adulthood, in women it is not known exactly how it affects then since it’s a X chromosome condition.
So far, some women might experience mild to moderate symptoms and rarely (but possible) complete blindness like males do or tunnel vision.

In my case, I do not know if I will be a mild, moderate or severe case but I can see my sight deteriorating little by little, and I sometimes get so depressed about this I feel I cannot even enjoy what I can still see, and specially with a newborn baby I feel I am constantly thinking of my sight that all the special moments are passing me by.
I know people with visual dissabilities are at a higher risk of depression, but if anyone has managed to still enjoy and be a bit more positive about it how have you done it?
I want to be able to enjoy now, since I cannot do anything about my diagnosis and is only a matter of time until it has a bigger impact on my daily life...

Thank you for reading me and any helpful tips...