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Blind and Visually Impaired Community

Full History - 2020 - 04 - 28 - ID#g9j7us
3
Relationship question? (self.Blind)
submitted by throwawayros1
Hi, I've posted here before so this might sound familiar but to explain my condition: basically have no vision in my left eye because my eye didn't develop all the way, I guess. I was born with a normal right eye so I don't think I'm considered legally blind....yet.

So I have a new-ish boyfriend and of course he's seen pictures and videos of me but the thing is....I'm pretty good at hiding my condition, especially if the relationship begins online. Whether it's with my hair or the way I angle the pictures. He never pushes me to send pictures so it's pretty easy but it's also kind of a lie.

The thing is....I'm scared to tell him yet I feel it's only fair and we need to be 100% honest in a relationship anyway. He has a condition too but it's mental than physical. He was terrified to tell me when really, I understood how he felt. How it felt like the universe was punishing him and how he was insecure about even having children.

But I'm afraid that as he's seeing that his dream of having kids could still come true for him....I might not be the best choice. I feel like I should break it off before I even go to meet him (which got delayed due to coronavirus) .....I don't know. I don't want to lose him but I think it might be for the best. Has anyone else been in a similar situation?
messiestobject 6 points 3y ago
Why wouldn't you be the best choice? Are you worried about passing your eye condition down to biological children? Because if it's that, then I have the same advice as anything else: a strong relationship made of love will definitely overcome that. Everyone knew that my stepdad had the potential to develop Huntington's when my mom married him, and when they had two kids together. I love my sister and brother and wouldn't trade them for the world. I currently love someone who might have a difficult illness and I'm still gonna go for it. You can't go through life with a Spongebob indoors attitude that "What if something gets difficult or scary or painful," and just never do anything as a result. And I know nobody likes this question, but you should ask yourselves, what would you do if you had a kid born sighted who then had an accident, someone else being irresponsible with fireworks or a car crash or something, that left them with similar vision problems? You can't hide from life because of that kind of thing. If that's all a dealbreaker for him, then he probably wasn't such a catch in the end anyway. Sorry if I sound harsh, I mean this kindly.
BlueRock956 3 points 3y ago
Without trying to offend you... It may be that you need to accept your disability, and learn to deal with it. At the moment it seems that you are hiding it, and its holding you back.
If you meet your boyfriend with all the insicurity that you express in this post, he will feel that insicurity too.
When he informed you about his condition he was nurvous, and you understood why. It may be that he understands you too.
nowwerecooking 1 points 3y ago
When I was growing up, I hid my condition as much as I possibly could. For example, one element of my condition is nystagmus, so I purposely didn’t really make eye contact with people. Like someone said in another comment, without offending you, I agree that you haven’t fully dealt with your condition.

Don’t tell him just to be 100% honest because you are in a relationship. Tell him about your situation because it’s a part of you, and a part that impacts you greatly. It’s an important piece of your puzzle. If he’s a good guy he’ll stick around, and help you learn to love all of yourself, including your eye condition. It seems like he would be accepting and stay with you. In my experience, if someone is able to be very vulnerable, they’ll be accepting of someone else who wants to be as well. I think vulnerability helps to create incredibly strong bonds between people. Vulnerability is strength !! Try to live your truth, your 100% truth (I know it’s cliche). You may not trust yourself right now, but if you feel you can trust him go for it. I have really bad anxiety, so I usually write out what I want to say, so the stress of remembering everything I want to say is taken away a little bit. Maybe talking about it with him with help you start to come to terms with your vision. That’s something that took years for me to do, but has helped me a lot with dealing with my situation.

There is a ton of baggage that comes with having an eye condition in a world where people tell us how to and how not to feel (personally I’ve been told that I shouldn’t be ashamed/angry/lonely about being VI). despite not knowing what we experience day in and day out. Whatever feelings you have towards your eye condition are totally valid. Acceptance is a hard and a continuous process, but you will get there. Being blind really, really, really sucks sometimes, but I believe that we have a unique perspective on the world because we aren’t fully sighted.

If he doesn’t stick around then screw him. There’s billions of other people in this world, and you will find someone who is accepting and loves you for you. You deserve that. I hope this guy is that person for you.

Feel free to dm me if you ever need anything :)
Envrin 1 points 3y ago
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I've been in loads of situations in my life, but not one exactly like this.

​

I'd say just go for it. If you're a good person with a good heart, and you're looking for love, then go for it. Even if you end up totally blind, you can still be a good mother.

​

Don't be scared, and just go for it. You have everything to gain, and nothing to lose. Be strong though in case it doesn't work out.
Sarinon 1 points 3y ago
I don't know if this will be helpful to you or not, but I am a complicated and difficult person to love, so instead of trying to cover all my bases in the course of natural conversation, I wrote my own user manual.

It sounds silly but it has been an absolute game changer in my dating life. Not only did I get to really hone in on what makes a good relationship, what I'm looking for in a partner and my goals for the future, it's also taken all the anxiety out of those 'big reveal' moments.

I broke it down into five chapters;
1. My thoughts, opinions and habits
2. My vision of my future/goals
3. Sexual preferences, kinks, hangups
4. Disclaimers: illness, disability, mental illness
5. Expectations for potential partners and deal breakers

Obviously it's a bad idea to lead with all of this stuff but I have found the best time to introduce my user manual is when feelings begin to develop but before any real commitment is made, so usually about the third or fourth date, provided things are going well.

I also encourage my partners to create their own user manuals. Even if you never share it, it's still a valuable exercise and may save you from entering relationships that won't make you happy in the long term.

Best of luck.
BlueRock956 1 points 3y ago
The practice of handing someone a user manual is difffferent... But I would say that the 5 topics you divided the chapters are conversation topics that would be helpful in any relasionship.
Sarinon 1 points 3y ago
I don't understand what you mean?

Yes, they're all must have conversations and many of them should be continuous conversations. The point here is that I've found it easier to give people a guide on all of the really important stuff as a jumping off point for further conversation. OP is having trouble with disability disclosure and this is one way to mitigate that anxiety.
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