I don’t have this but my pupils are more dilated then most peoples and they have delayed reactivity. For me it makes me super light sensitive which triggers my nystagmus like crazy. I think mines caused by my optic nerve problems that I’ve had since birth.

I have it in both eyes! I have a prosthetic Iris in my right and no iris in my left. I am very sensitive to light but most of my blindness is from that paired with other conditions like glaucoma. Private message me if you have any questions :D

I was born with a very severe form of aniridia in both eyes. It was diagnosed when I was 6 months old. I've been wearing dark sunglasses since I was a baby. At age 5 I had to undergo my first surgery. I'm now 31 and I've had so many surgeries that I honestly lost track of the exact number (somewhere between 10-12). In fact, I've just had a particularly difficult one 2 months ago and I'm still recovering from it (there were complications, unfortunately).

When I was 14, I went completely blind on my left eye due to the glaucoma and cataract. I had been losing my vision since birth but this last big drop happened within a very short time period. I still remember feeling incredibly devastated. My parents and I cried a lot together in those weeks. It was particularly difficult for me because I was just about to enter Gymnasium (Swiss version of high school). I knew it was going to be very tough academically and I knew I would have to get used to a ton of new things, make new friends etc. My new school was located in a different city and I had to commute there by public transit. It was a very scary time to lose my eyesight.

Fortunately, my right eye remained strong and stable over the next few years. I had about 20/200 vision in that right eye (10%).

However, around age 26, the vision in my right eye suddenly began to decrease much faster than before. Since then, I have lost practically all of my functional vision. I have about 2% left and these 2% are insanely precious to me. The past few years have been quite a rollercoaster ride for me and by extension also for my wife. I've had phases where I just wanted to give up everything and seriously considered suicide. Luckily, I have a great therapist and an amazing, loving wife. Together, they have been carrying me through this tempest. My wife and I are now talking about having children and I have made a promise to myself that I want to be able to see my first child before I go completely blind. To be honest though, I'm still terrified of the idea of losing my vision completely. I truly hope that I can at least keep the perception of light.

Anyway, if you're interested to pm me, I'd be happy to talk more. Aniridia is a super rare disorder and it's awesome to meet some other people who suffer from the same thing. In my entire life, this is the very first time I have ever met anyone else with aniridia.

I know I'm late but I also have it.

I've had Aniridia since birth.

I didn't really notice my eyes were getting worse, even when I had to move closer to the board teachers would write on, untill 2011 when doctors failed to check for Glaucoma up until 2011, that's when I was told how severe my loss of peripheral vision was. I think this also affected my photophobia greatly too, can't go anywhere without sunglasses anymore. It's also made me night blind too.

I think the combination we get of Aniridia, Nystagmus, Cataracts and Glaucoma (and possibly some other things depending on your situation) is quite a handful, and I won't lie that it's been such a struggle for me since everything went down in 2011, especially with job hunting

I really do hope they can find some sort of cure for Aniridia though.