Bring your karma
Join the waitlist today
HUMBLECAT.ORG

Blind and Visually Impaired Community

Full History - 2020 - 05 - 14 - ID#gjq345
10
My sister just told me that she’s fully lost her vision in her right eye and is at 50% on her left. How can I help her make this transition? (self.Blind)
submitted by msabcd94
Hello All,

Hope everyone is doing well in these trying times! :)
I found out a couple days ago that my sister has been losing her vision in both her eyes due to a hereditary disease. She’s at about 50% on her left eye and 0% on her right. We live far away from each other and she’s managed to keep it a secret from the family because she didn’t want to be a burden. I’m driving down to visit her on Saturday and I was hoping y’all could give me tips on how to help her manage this transition. I know this will be a long process, but I want to try my best to be there for her. She’s a very independent person, so I’ll just be there for support where she wants it.
CAHWY17 3 points 3y ago
you may want to be her partner in this since she will need family and if this is hereditary you may want to be aware as well. I hope she has reached out to the Association for the Blind and her state health department that deals with the blind/visually impaired. Both organizations off support and training. I lost my vision while living in Washington State so this is my reference starting point. They provided me with the correct sun glasses, how to use a hat!! yes that is helpful. Reader for my phone and PC, braille training. Also cane training which is super important to be independent. Sizing the cane to you/her.

You can learn these skills so she has someone to talk with about her challenges or progress. I will also offer any assistance i can provide in support of her new reality. Mike
msabcd94 [OP] 1 points 3y ago
Thank you for your reply!
[deleted] 1 points 3y ago
[deleted]
BlueRock956 3 points 3y ago
Look for information regarding a good rehab center for the blind.

https://www.nfb.org/about-us/training-centers
msabcd94 [OP] 1 points 3y ago
Thank you for your reply!
DrillInstructorJan 2 points 3y ago
There's a million things I could say and you haven't said whether that 50 per cent is likely to get worse, but if it does then the main thing I'd pass on to your sister is that she will be amazed how okay it can be. I went from normal sight to nothing when I was 19 and I'm never going to be one of those people who tells everyone how great it is. I wouldn't wish it on anyone but the biggest problem is not the disability, it's the being so exhausted from dealing with it all the time while I do other normal life stuff, which I take as a sign I'm doing something right.

I have been asked to mentor three people so far who have all been in what sounds like a similar situation and who have been "fiercely independent" and didn't want all the standard stuff. If that 50 per cent does get worse, what happens depends on the person. Some people just sign up for all the official help and go with it. Other people are not into just going with the crowd, don't like the institutions, find it all a bit stifling. Then they might just want to sit at home and brood on it. Obviously that's not a great idea but that's what I did for way too long, so I can't really complain. I like to think it left me with a pretty decent understanding of what goes on in people's heads, though, especially if they want to do it all on their own terms. That can work and I think actually is a really good thing in general.

Whatever your sister wants to do, help her make it work. There's so much to talk about but the one last thing I'll say is to watch out that it doesn't get to you. The first person I mentored reminded me of me so much that it was quite hard to process for a while. You won't have that experience but you will take a portion of her problems onto yourself and you need to be okay with that.

Stay in touch.
Jcsmoke 2 points 3y ago
Investigate $1 for an independent person this is very helpful, but as an indipanednt person she probably has done a lot of research. explain your concern for her, then listen.
msabcd94 [OP] 1 points 3y ago
Awesome! Thank you so much.
Winnmark 1 points 3y ago
Alcohol.

Lots of it.
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc   •   HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.