Blind and Visually Impaired Community
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How to train one eye (self.Blind)
submitted by Emms246
Hi r/blind! I have nystagmus and was born with a lazy left eye. I got an operation around 8 years ago as a child but as I get older I realise that it really didn't make too much of a difference. Whist in lockdown I've been trying to train my left eye but because I have nystagmus, covering one eye and trying to focus with the weaker one gives me migraines and fatigue. I'm wondering if there's another way to effectively train my left eye without these side effects.
Pegasaurus8 5 points 3y ago
Patching is hard when you have nystagmus because you’re never supposed to cover up the eye. You’re supposed to “fog” it. Covering it makes shaking worse. Try some type of transparent tape over your glasses.
I’ve had 4 eye muscle surgeries for my nystagmus:
The first surgery was to move my eyes up to center my null point.
The second surgery was an experimental horizontal tenotomy which had little success.
The last two were to fix the 15° tilt in my right eye from surgery.
During the healing process of the last two, I unintentionally ignored my right eye. The vision in my right eye got significantly worse and my left eye got significantly better because I was “forced to use it”.
Strangely, my null point also shifted to the top left corner of my left eye.
My ophthalmologist was hesitant to do any more surgeries as it could compromise the blood flow to my eyes.
I’ve had 4 eye muscle surgeries for my nystagmus:
The first surgery was to move my eyes up to center my null point.
The second surgery was an experimental horizontal tenotomy which had little success.
The last two were to fix the 15° tilt in my right eye from surgery.
During the healing process of the last two, I unintentionally ignored my right eye. The vision in my right eye got significantly worse and my left eye got significantly better because I was “forced to use it”.
Strangely, my null point also shifted to the top left corner of my left eye.
My ophthalmologist was hesitant to do any more surgeries as it could compromise the blood flow to my eyes.
Emms246 [OP] 1 points 3y ago
Thanks for the advice. I was beginning to get concerned about my constant headaches. I don't think my way of training them is doing any good
Pegasaurus8 3 points 3y ago
Chronic headaches are common with nystagmus.
Your brain is working way more than the average person to see things and to keep them still. It’s a huge strain.
Your brain is working way more than the average person to see things and to keep them still. It’s a huge strain.
changeneverhappens 5 points 3y ago
Talk to your ophthalmologist. They're probably doing zoom sessions, emails, or phone calls. Emails are usually free 💁
Emms246 [OP] 2 points 3y ago
I'm a bit lost regarding this. I've been discharged from the hospital so I no longer see an opthalmologist. What can I do about this? I live in the UK
changeneverhappens 4 points 3y ago
You should still have an eye specialist that you see annually for your condition. Talk to them. Please do not patch or treat yourself without medical guidance.
If you do not have an optical specialist then you need to get one. I'm unfamiliar with the UK health system but you should be able to get a referral from your primary doctor if needed.
If you do not have an optical specialist then you need to get one. I'm unfamiliar with the UK health system but you should be able to get a referral from your primary doctor if needed.
Emms246 [OP] 1 points 3y ago
Good to know. I dont see a specialist anymore but after lockdown I'll speak with my doctor. Thanks :D
Ant5477 1 points 3y ago
My guess is you find out as much as you wish to about blindness, technology, etc. and share it with them, as needed basis
[deleted] 1 points 3y ago
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