Blind and Visually Impaired Community
↑
10
↓
Transition (self.Blind)
submitted by liceinwonderland
My SO (mid 30's) was misdiagnosed with RP 2 years ago when symptoms beyond night blindness appeared, a few months ago they went to a specialist abroad. It is cone rod dystrophy and it is currently progressing fast.
Performing daily tasks has become hard and emotionally taxing. Denial and anger are not yet over.
I would appreciate advice:
In making our home environment better especially re lighting.
In approaching the situation in a comforting and empowering manner.
In learning to depend less on eyesight.
I want my SO to thrive, they are brilliant.
Thank you
Edit because I am dumb
Performing daily tasks has become hard and emotionally taxing. Denial and anger are not yet over.
I would appreciate advice:
In making our home environment better especially re lighting.
In approaching the situation in a comforting and empowering manner.
In learning to depend less on eyesight.
I want my SO to thrive, they are brilliant.
Thank you
Edit because I am dumb
GTbuddha 4 points 3y ago
Since it is new your SO may not know what they need.
Watch what works and what doesn't. Lighting can be very important. Observe and mention your observations to them.
I started doing thing unconsciously but it wasn't until others pointed out what I was doing did I become aware. With the awareness I could then generalize some of the things that I was doing to adapt to my vision loss.
Watch what works and what doesn't. Lighting can be very important. Observe and mention your observations to them.
I started doing thing unconsciously but it wasn't until others pointed out what I was doing did I become aware. With the awareness I could then generalize some of the things that I was doing to adapt to my vision loss.
liceinwonderland [OP] 3 points 3y ago
Thank you this is good advice and it makes sense. Third party observations are useful in every situation I understand how it may help.
DrillInstructorJan 2 points 3y ago
I'm conscious of saying this a lot, but maybe it helps, I don't know. Someone who has had a long time with sight and then loses it is probably never going to love it. I don't love it. Whatever you do, don't try to make it okay; it's never really going to be much fun. You don't have to love it. What you do is find ways of living with not loving it.
What you do is you solve problems. There are some problems you can't solve, but there are weirdly few of them in the long run. You're already here trying to figure out how to solve problems and that's brilliant. Doing stuff is good because it's distracting from the unpleasant stuff but also because achievement makes you feel epic (it makes everyone feel epic) and you start to realise what you can do.
It's hard to get really specific because I don't know your SO but it depends what sort of life and work he or she is into. If you're an airline pilot okay you're screwed, but otherwise it's really down to the person.
What you do is you solve problems. There are some problems you can't solve, but there are weirdly few of them in the long run. You're already here trying to figure out how to solve problems and that's brilliant. Doing stuff is good because it's distracting from the unpleasant stuff but also because achievement makes you feel epic (it makes everyone feel epic) and you start to realise what you can do.
It's hard to get really specific because I don't know your SO but it depends what sort of life and work he or she is into. If you're an airline pilot okay you're screwed, but otherwise it's really down to the person.
liceinwonderland [OP] 1 points 3y ago
Thank you it does help. It sucks, it will always suck but to me my SO is a talented person that deserves to be defined by more than this.
In my country you are sort of screwed anyway. My SO left a job where his boss was a jackass and will have trouble getting another most likely. There always are options however and my advice is to follow a dream of theirs that will be more fulfilling anyway.
In my country you are sort of screwed anyway. My SO left a job where his boss was a jackass and will have trouble getting another most likely. There always are options however and my advice is to follow a dream of theirs that will be more fulfilling anyway.
DrillInstructorJan 1 points 3y ago
Hi Lice. Should I ask which country you're in?
liceinwonderland [OP] 1 points 3y ago
Greece
[deleted] 2 points 3y ago
[deleted]
liceinwonderland [OP] 1 points 3y ago
I do not think there is something like this in my country. Disabled people are often isolated We have tried to contact some associations but no luck so far, I think we should look into smaller local groups is there are any. I have found stuff like groups that organise athletic activities so there is a start.
BlueRock956 1 points 3y ago
Could you provide your location? There's people here from all over the world.
liceinwonderland [OP] 1 points 3y ago
Greece
BlueRock956 2 points 3y ago
Thanks, I'll ask a friend who is from there if he has any recommendations.
OutWestTexas 1 points 3y ago
^^This^^
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc • HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.