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Blind and Visually Impaired Community

Full History - 2020 - 07 - 05 - ID#hltpcr
10
Cataracts (self.Blind)
submitted by dunktheball
Anyone get a cataract at an unusually young age? I've always been curious if my vision problem came into play with it. For instance, people "say" getting right up at tvs and monitors doesn't put off enough radiation to do anything, but there's got to be some reason I got one younger than most.
viceroywaffles 9 points 3y ago
Long term use of prednisone or other steroid eye drops may cause cataracts. Which I always found ironic. The meds I use to prevent blindness may CAUSE blindness?! What cosmic irony is this? Potential eventual cataract surgery was a tolerable risk versus immediate need for corneal transplant. *shrug* So that's what happened for me.
eversincenewyork 2 points 3y ago
Me too. I had my first one in my left eye at 6 (became blind in it after it was removed) and one in my right eye at -7 (luckily I have 20/25 in that eye). Do you have uveitis?
[deleted] 1 points 3y ago
Yeah, this is me as well. I had cataracts from long term steroid use. I'm in my early 30s.
That-One-Red-Head 2 points 3y ago
Mine developed when I was 4. It was removed when I was 8 and my vision got better. After a year or 2 it has progressively gotten worse in that eye. I’m now legally blind in that eye.
dunktheball [OP] 1 points 3y ago
Your vision has gotten worse after having the cataract removed? Some sort of complication from the cataract surgery, or unrelated to that?
That-One-Red-Head 1 points 3y ago
Since I was so young, the lens that was placed was set for an 8 year old. I am no longer 8, and the lens wasn’t able to age with me. I will have to get the lens replaced eventually, my vision just hasn’t evened out to where they know the lens needed to replace it. There is also a 50/50 chance that I will go completely blind in that eye due to the amount of scar tissue.
dunktheball [OP] 1 points 3y ago
I hope everything goes well. That is tough. Did it just suddenly develop somewhere around 8 or it was there for a long time before it was removed?
That-One-Red-Head 1 points 3y ago
It developed randomly when I was 4. My parents noticed I was walking strange and couldn’t tell distance. I went to the doctor and they determined it was a cataract. It was removed 4 years later. I had to use eye patches and do different exercises because the first doctor I went to thought it would fix the issue. It didn’t, because it was a cataract not a lazy eye. It was eventually removed at 8 years old
AlexDalcourt 2 points 3y ago
Listen babe its confusing but sometimes people are just unlucky, I was born with Cataracts, Aniridia, Glaucoma, among other eye conditions.
Glaucoma and Cataracts are mainly portrayed as only older people getting them but plenty of young people do just no one wants to talk about how the blind community is relevant in society so...

I know it sucks but there probably isnt a specific reason you got them :(
maybetherain 2 points 3y ago
I was born with a small one. After multiple surgeries for angle closure glaucoma at age 30 (due to the ROP I was also born with), it got much worse and I had to have cataract surgery at 33.

I put it off as long as I could due to being high risk because of the retina damage, but the cataract got so bad I couldn't hardly see at all, so I had it removed and got an IOL.

They did it under general anesthesia (really rare for cataract surgery) due to me having severe nystagmus and only the one eye with the bad retina.

Since then I've been back to my "normal" level of blindness.

I did have to have two follow-up laser procedures. About 8mo after surgery, I had laser surgery to remove part of the anterior side of the capsular bag because it was starting to regrow and it was pulling on the IOL. This can happen when you have cataracts removed at a young age, apparently. I had one other to treat posterior capsule opacification about 2.5yrs after that.

So, ROP = smaller eye = angle closure glaucoma = cataract.
AlwaysLilly 1 points 3y ago
Thanks for sharing! I didn’t get diagnosed with ROP until my 20s but when my parents both had cataracts within a few years of each other, I started to worry if cataract surgery would be possible because of the ROP if I ever had one pop up.
maybetherain 2 points 3y ago
I suspect mine was directly related to the glaucoma surgeries, but I believe ROP does, in general, put you at a higher risk for developing cataracts at a younger age.

Of all the ROP adjacent things I've dealt with, though, it was the simplest, so there's..... that? Haha.
AlwaysLilly 1 points 3y ago
Yeah I only just recently learned about the cataracts thing. Maybe because I was young and my myopia is so bad they didn’t want to scare me more, but all my doctors ever talked about was my retina and laser etc. I’ve been lucky that my tears are secure and my one technical detachment was so minor it was fixed with laser.

Glad to hear the cataracts surgery was easy. I’m sorry to hear you’ve had other complicated issues related to your ROP.
SPN-hunter 1 points 3y ago
I had them when I was a few months old
Laser_Lens_4 1 points 3y ago
Yup. Had a shitload of surgeries as a kid and they probably poured gallons of prednisolone into my eyes. Not sure how to feel about the fact I found out that can cause cataracts from a Reddit post, but I guess it's too late to change that. Anyway, I had cataracts at around the age of 4, and I got lens implants as well since my own lenses couldn't focus for shit. I don't remember very much except for the fact that my parents were super paranoid about me going near anything remotely hot for several weeks after the surgery. Now I'm mostly-blind from two retinal detachments which can apparently be caused by cataract surgery, so that's comforting /s.
dunktheball [OP] 1 points 3y ago
Retinal detachments.... the idea of those scares me too and I believe that is what is more likely to happen for those who are nearsighted and have the cataract surgery. Did they happen well after the surgeries? You've been through a lot with your eyes! My "main" vision issue is related to the optic nerve and my guess is they put me on oxygen when I was born and caused that, but none of us really thought about that until decades later... and plus the guy who delivered me killed himself. lol. (much later.)
Laser_Lens_4 1 points 3y ago
Yeah. I had them about two decades after, so I had vision for most of my childhood. I've got other stuff to keep me busy now though, and so far I've been adapting to only having light perception
[deleted] 1 points 3y ago
[removed]
impablomations 1 points 3y ago
Stop posting this
noaimpara 1 points 3y ago
I had cataract in both eyes on separate occasions when I was like 15 or 16. But I’m at a big risk for retinal detachments and just fucked up eyes in general. I don’t think it was monitors at all. Some people are just prone to it. I think both cataracts occured because of the silicone in my eyes that was here to fix the retinal detachments going on at the time. I can’t really remember honestly I didn’t pay attention at the time. All I know is that neither of my eyes have a crystalline lens because they’ve been removed because of a cataract.
dunktheball [OP] 1 points 3y ago
I'm kind of scared to have mine done because 1. I am really nearsighted. 2. my vision issue that i already have... not sure if it would make anything riskier about it. 3. I feel like it would look weird to people for me to have a thick lens in my glasses for one eye and a thin one for the other...
noaimpara 1 points 3y ago
In summary, the surgery really isn’t that bad. It lasts about 15 minutes and is not really complicated. For normal people, they just take out your crystalline and they inject an artificial one and boom you’re cured. It’s really not the harshest of surgeries. Not much to be concerned about. If the doctors agree to do it, that means there’s pretty much no risk.

Just to try and answer your concerns rapidly with my very, very limited knowledge :

1. i don’t think this really impacts the surgery. If anything, you’ll see a lot better after it.

2. i can’t exactly reassure you about this one since I don’t know what your eye problems are. There are some pepple (me, I am some people) for whom it is a risk but it’s usually because of very specific eye issues or a heavy medical background. If your doctor agrees to do it, that means there’s no risk.

3. i don’t know if your prescription will change but if it does, that’s not something to worry about. Glasses lens can usually be adjusted so both eyes look equally big. Still ridiculous but at least they match. My glasses look like that.
dunktheball [OP] 1 points 3y ago
Thanks. I didn't realize that info from point 3. At least that is good until the other eye needs one removed, then both lenses could be thinner.

One reason I am worried is because the dr didn't recommend getting it out, despite it being a very big one right in the center of the eye, so it made me wonder what the issue with doing it was. I think it was mostly because I was already legally blind before having it. he said if it ever started bothering me more then to get it done and now it's terrible... I have to close that eye a lot of times when reading when, ironically, before the cataract I used this eye more than the other.

So anyway... since he didn't just rush to say go ahead and do it it made me wonder if he was worried about something. My eye problem itself is related to the optic nerve.
noaimpara 1 points 3y ago
That might because surgery would be an unnecessary risk to your "good" eye, but not because it’s actually risky risky. My dad is also legally blind, his right eye is blind and he has a cataract in the left eye. The doctor is not willing to do the surgery yet because it’s not bad enough for the surgery/risk ratio to be worth it. So he’s just waiting for it to get bad enough.

Not saying it’s your case but it might be the doctor’s reasoning? It might be worth asking for more details so you know what’s up.
dunktheball [OP] 1 points 3y ago
A lot of people in here sure got them at young ages (much younger than me).

I've been trying to do what some others did, go as long as I can... but one is so bad now I may not have much choice but get it taken care of soon. lol.
bjayernaeiy 1 points 3y ago
One of my friends was born with it
KillerLag 1 points 3y ago
Cataracts can come at all ages. I know a few people who were born with them.
GTbuddha 1 points 3y ago
My doctor spotted and mentioned my cataract when I was 16. I got the surgery to have it removed at 39.
LexieDream 1 points 3y ago
Not sure, but I also had them at a very young age. Starting at four years old.
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