Bring your karma
Join the waitlist today
HUMBLECAT.ORG

Blind and Visually Impaired Community

Full History - 2020 - 07 - 16 - ID#hsn0lz
11
Parent unexpectedly woke up blind, any advice appreciated (self.Blind)
submitted by Spit109
Hello r/Blind, i'll try to keep this brief and try not to make this into a sob story but I think the context is important ... I also want to retain some annominity, as best I can anyhow.

We live in the UK, My mother who is in her 70's is a very i'll person, last year she had a transplanted organ fail and due to the fallout from that she has more or less spent an entire year bed ridden in hospital with infections and other complications ... recently including covid 19, she'd be in hospital for 3/4 months get well enough to be released only to relapse and end up back in hosptial again after a few weeks, then go through the same process all over again ... each time coming out considerably worse than she did before, to say she looks like a holocaust victim now would sadly be apt. The point i'm making here is that my mother is incredibly tired of it all, she has fought a long battle to get home, along the way feeling of simply giving up kept emerging as it was constantly 1 stop forward 2 steps back .. but she's managed to muster the strength do it ... with her sight.

Now for the actaully relevant part,

During her last stay in hosptial, she some how caught covid 19 and somewhere along the line suffered a detached retina (they don't think it's related), she was not aware of her lack of sight at the time / the doctors did not know, when the doctors did become aware, due to covid nothing could be done about it. The ball was eventually set rolling when she eventaully tested free of covid 19, and just had an operation last week to reattach the retina ... the doctors pre warned us that while they have tried their best, the prognosis is not good, too much time has passed to gurantee any sight being regained from that eye, but we'd not know for sure for a couple of months.

She still retained 'perfect' eyesight in her other eye, so while this did upset her, she could still do things at home by herself (all be it very slowly) and watch TV, she was happy to be home and for the first time in a very long time she was making progress towards having some kind of normal life again, even talking to my dad about getting out of the house and doing things somewhere in the future, She went to bed on Sunday night with no problems, woke up Monday morning, and could see 'nothing' out of either eye.

My parents have since been back and forth TO the hospital as the doctors run their tests and try and figure it out, but while thats all stil ongoing, they think she suffered a stroke of the eye bought on by everything above ... and they don't think she'll regain any sight from that eye.

My mother, myself and my father are all trying to remain optimistic that the doctors are mistaken / that the other eye makes some sort of a recovery but the simple fact is that as of right now, my mother is blind and possibly will be forever, and so we need to make changes ... even if they are only temporary. She's keeping a brave face on it all but I know there will need to be a talk about the elephant in the room when she is ready, in the mean time I'm just looking for any kind of life experience which might help her out. She is able to 'see' very vauge outlines of things and a slither of colour occasionally which enables her to navigate around the house somewhat, but not much else.

I want to thank the people who have suggesteted adding a 'marker' of sorts to the handle of a knife to signify the cutting side, that kind of experience has already helped greatly and I'd love to know of anything similar to help her in the day to day.

Anyway I realise this still ended up being somewhat of an essay so thank you for your time already and for any advice you may have.
impablomations 7 points 3y ago
Search the sightline directory to find local orgs who may be able to help.

https://www.sightlinedirectory.org.uk/

Your local council should have a local designated services who can come out and assess her house to see what adaptations would be suitable. They can also provide or arrange training to help her navigate around the house and how to use a cane if one is necessary. Obviously this will be affected by the current Covid situation but at the least they should be able to offer advice.

Social Services should also be able to help, an occupational therapist can also do a home visit.
bjayernaeiy 3 points 3y ago
Contact the RNIB and explain your case.

Does she use a smartphone? Consider turning on their built in screen reader, Talkback on Android Voiceover on IOS
Spit109 [OP] 1 points 3y ago
We managed to get in contact with the local RNIB branch and they have 'fast tracked' my mothers case and are going to be back in touch as soon as they can.

Thanks for the suggestion.

Unfortunately my mother is a big technophobe so she's never used a mobile or a computer, lord knows I tried teaching her but she's just never been interested, even less so now I imagine. At least she's not going to miss using them I guess.

Perhaps the biggest issue she has at the moment is boredom, she has been listening to documentaries on the TV and iv'e suggested audio books of which there are an endless number but in between those she's just at a loss for things to do and keep herself occupied. Naturally it'd be difficult to suggest anything physically demanding but any suggestions would be great if only to give her something to work towards.
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc   •   HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.