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Blind and Visually Impaired Community

Full History - 2020 - 07 - 21 - ID#hv7shq
12
Need some advice (self.Blind)
submitted by [deleted]
[deleted]
MRXGray 6 points 3y ago
I can only share my experience and hope that you'd be able to generate ideas that you can use for your particular situation.

Before I was gunned down and left completely blind at 23 years old — I was really into RPGs on PC and PS2 (that was a long time ago, LOL!) and hanging out at new, unfamiliar places with my friends.

So my mind and body whent to lockdown for almost a year after I became blind — I just stayed inside my room. Slept a lot. Rarely went out (about once or twice every other month).

EDIT: And when I went out, I didn't bring along a cane. Didn't wear sunglasses. Didn't want others to know that I was blind. Didn't want them calling me blind, neither.

Though what probably saved me from a complete breakdown during that period are conversations with my wife, play-time with my 4-month old baby, a good old AM radio, and a large collection of audio book cassettes!

This was dial-up Internet. Before smartphones. Before Youtube. Before Facebook. Before Twitter.

But what completely shoved me out of my depressed state, aside from the things I mentioned above, included stuff like JAWS For Windows, reading Stephen Hawking's work, playing audio games designed for the blind, a distance learning option at the university where I went to before I became blind, and participating in activities with my fellow blind and visually impaired peers at a local social organization and a computer school for the blind where I volunteered as a Web developer.

EDIT: So from that point, I started to not care if people know I'm blind. In fact, I want them to know most of the time, for my safety and theirs, though in certain instances like when I'm in a rough neighborhood, I of course try to not look and act like easy prey. And I started to not care where and when to use my cane — I just do it when I want to. I started to not care when and where to wear my sunglasses – I just do when I want to. And I started to not care if strangers call me blind — I am, in fact, blind. And that's a big part of who I am today.

And what made me fully accept my blindness was when I started building my own digital marketing business, learning software programming languages, developing open source DIY assistive tools and hardware electronics through computer vision / machine learning / deep learning / Raspberry Pi / embedded electronic boards, and collaborating with other business owners, company leaders, corporate executives, disability advocates, entrepreneurs, and independent devs.

So I guess I for one just needed to keep myself busy with new things, and to keep on collaborating with new people all around the world on projects that interest me.

But of course, I don't know if this works for anybody else.

Though I do hope it does for you. :)
dunktheball 2 points 3y ago
That is cool that you got to the point of acceptance and enjoying some things in life again. When just reading the first part, I was thinking "I wonder how long it would take someone to adjust to that big of a change". Just abruptly like that!

I am only legally blind and have been that way since birth, but still I get so much anxiety or depression over it because I have wasted so many years keeping to myself inside, due to not wanting to always depend on relatives to take me places (that is the only way do go anywhere other than walking distance places...) and too nervous to ever ask anyone out so I never date and it's getting to me. I want to get out and socialize more and now here comes the virus, as if it wasn't hard enough to figure out how to socialize more. lol.
MRXGray 1 points 3y ago
And I think that's perhaps the main difference there.

I had my wife and 4-month old baby with me at that time.

​

So aside from having someone tirelessly learning new things with me (my wife):

I was also inspired, and motivated, to do something more for them.

Despite my blindness ...

​

Anyway, here's a video that the Asia-Pacific Center on Disability created about my story around I think 2008 for a United Nations conference about the role of ICT and business in the lives of persons with disabilities:

​

$1

​

\[ Edited to include correct year of video \]
GTbuddha 3 points 3y ago
Have you started using audio books?
It is totally your option when you keep your can't out, when you put it away, and when you just have it out as a signal to fully sighted folks.
Opinion-Future 3 points 3y ago
I use audio books sometimes, im just depressed i cant play most games very well and thus dont enjoy them

I only have about 3 games out of a steam libary of 50 i still enjoy and can play without straining
bradley22 2 points 3y ago
You may not be able to play the games but let’s plays exist, they’re not the same but I like them.
BenandGracie 2 points 3y ago
For the cane, get a folding one. You will be able to keep the cane with you at your seat, but it won't be in other people's way.

I generally use my cane when in a public bathroom, but I am totally blind.
Opinion-Future 1 points 3y ago
What about when you are standing in line?
BenandGracie 1 points 3y ago
I generally stand the cane vertically in front of me with the tip between my feet. Are you getting some mobility training? If you have an instructor, they can give you some more tips.
awesomesaucesaywhat 1 points 3y ago
Just hold it next to your body. Try not to overthink it. Where you are, the cane is.
pokersnek 2 points 3y ago
O&M instructor here.

In bathrooms, when using stalls, lean your can in the corner, or hang it by the coat hook.

In classrooms, it’s best to take your cane to your seat. This way, it’s close to you at all times in case of an emergency.

I don’t have much advice for video games, except a larger screen may help. Low pressure games tend to be less stressful too.

For reading, try digital books and a reading device where you can zoom in. Or, you can try a CCTV or handheld magnifier device.

Feel free to shoot me any questions. I’m happy to problem solve with you.
stupidpoopoohead 2 points 3y ago
My daughter is 18 and went through the same things you are. It’s normal to mourn the loss of your sight and the things you enjoy. It’s also normal to feel awkward about the cane in the beginning. My advice is to try to find other blind students your age to talk through things with. The National Association of Blind Students is a good start. It might also be a good idea to find an older blind mentor who can help you work through some of your feelings and help you to see what things will be like when you’re older. I promise it gets better.
oncenightvaler 1 points 3y ago
Ok as to canes in bathrooms what I do is I find my way to the stall, lean my cane against the stall door where I know where it is and then go out of the bathroom. I might have to knock on stall doors but usually they are left open, and I can tell that, but then I have more experience with a cane than you do.

If I was waiting in line to enter a class I would be holding my cane out in front of me but not fully extended, and would wait until I was seated to fold it up. , I would also see if I could find a friend to help me to a desk.

As to looking for books either subscribe to audio book services with your local library or better yet look up this Bookshare website where you can find books in electronic files. I love reading Braille, but I assume you have not started learning that yet?

I don't know much about gaming but there's a few websites I go to for card games like RS Games by zanosoft, and QC Salon aka the Quentin C playroom.
Opinion-Future 1 points 3y ago
I havent started learning braille, should i ask my tvi about it? I am using audiobooks and i have an assistant who can help me locate my desk

Also ive started playing killer instinct and im addicted
oncenightvaler 1 points 3y ago
o cool, have not heard of that game.

I do recommend electronic books over Braille it's easier to find your place for reference in a book you read with a screen reader than with an audio book and also with books you read with a screen reader you can copy and paste when writing essays.

Learning Braille is a difficult process, but I think it's an asset. I bet you could at least teach yourself the alphabet with a little google searching.
coarsing_batch 1 points 3y ago
Also also, if you end up learning braille, you can get a braille display and have any e-book available to you in braille.
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