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Blind and Visually Impaired Community

Full History - 2020 - 07 - 28 - ID#hzl1an
4
Help me write my book? (self.Blind)
submitted by Whatevaella
Hi there, my name is Ella, and I’m writing a Young Adult fantasy novel. One of my characters goes blind and while I do have blind family members, I myself have sight (I still wear glasses though, lol) and so I wanted to reach out and get the perspective of others who are visually impaired so that I may give an accurate account of my character. The last thing I’d ever want to do is offend anyone or give an inaccurate perspective of what it’s like to be visually impaired.

So kind people of reddit, will you help me by answering a few questions? And please let me know if I overstep or seem ignorant. I sincerely don’t mean to.

Anyways these questions are for both people who were born visually impaired, and those who lost their sight later in life.

1. What was high school/schooling in general like for you? Did you go to a school for the blind or did you attend public school? Was the school—depending on resources/money—prepared and accommodating of you or not really?

2. Did you ever feel left out/any sort of resentment because of your disability?

3. How did your parents and/or guardians treat you? Were they overbearing or overprotective or did they try to make you feel like you were “normal”?

4. Any advice for me or things that I should absolutely know/include in my writing?

Thank you again, I really appreciate your help!!
DrillInstructorJan 6 points 2y ago
We do get a lot of questions like this and I know some people get annoyed, but I'd much rather take the time to respond as you're actually in the top few percent of people, at least you asked!

The thing is, it's kind of an amazingly broad question and so many of the answers depend on what your character is like personally. Here is the quick version as it applies to me.

I went blind at 19 so I never did school blind, but I did do college. Most people were great but you do have to lobby for what you need sometimes. I've been involved with younger people in their mid teens, and they and their parents have to really campaign to get stuff you'd think would be easy to do.

Left out, resentment? Well, there's a bunch of stuff I can't do, I'm never going to like it. Never left out deliberately though.

Dad is great, mom is not.

Don't do the face touching thing.

I am totally happy to talk more but it might help if we knew more about the character. Do it here or send me a message maybe?
Whatevaella [OP] 1 points 2y ago
Thank you so much, and I definitely understand what you mean by getting annoyed. I don’t want to offend anyone by asking invasive questions that they probably hear too many times, but I also didn’t want to deliberately misrepresent a whole community of people/spread false information that visually paired people might take to heart should this book ever be published (the dream, am I right?)

But the character herself is a girl named Sofia and she is the best friend/eventual stepsister of the main protagonist. She’s kinda soft, I guess that would best describe her. Soft spoken, soft aura/vibes. Could come off as shy if one didn’t know her, but she’s kind to anyone she interacts with. She has ADHD and has dreams of being an artist one day, although she has never mentioned it to her mom due to them being low class/near the poverty line. And because it’s a YA fantasy, and there always has to be drama, she is treated as the red herring, as the main protagonists start to suspect she is the monster. That is until she is attacked by the actual monster/villain and is left permanently blind in both eyes. But despite this traumatizing event, she still helps the main protagonist stop the monster (not physically, but tells the protagonist where to find the monster and how to stop it)

It’s a lot, I know, but I’m a huge believer in character development/relationship growth and always to treat my characters (no matter how small) as if they are the main protagonists in their own story and that they have lives/issues/thoughts outside of the story.

Thanks again for your help/honesty. It’s so helpful.
DrillInstructorJan 1 points 2y ago
I guess it depends on a lot of things. If it's fantasy, what sort of world does she live in. Is it a modern fantasy, or does she live in a Tolkien style medieval world? That's the past, or at least it feels a lot like the past, so social attitudes and things that are available will be really different to what they are in the modern world. How much time is involved? If she goes from being blinded in this attack to the end of the story in a matter of a few weeks or even a few months, she probably won't have much time to process it. If you're showing years and years of her life, she'll probably learn to get on a bit better.
blindfoldedtweezers 2 points 2y ago
My one input in terms of #4 is that for a lot of us, or at least for me, the disability is really just...very emotionally neutral most of the time. I don't think a disabled person usually sees their life as a series of story arcs. It's been a weird thing, because I'd like to write a blind/visually impaired character myself at some point but I just don't have much emotion for blindness. I don't know if any of that makes sense - I guess my point can be summed up as, "if you want to be realistic, your character should feel emotional about/struggle with things that have nothing to do with their disability as well as things related to their disability."

Just my two cents. I don't want to tell you what to do or how to write, but that's kind of the first thing that I always think about when I try to represent my disability in my writing.
Whatevaella [OP] 1 points 2y ago
No that totally makes sense! I think that’s what I’ve been struggling with for the most part. I didn’t want her to wallow in self pity about being visually impaired because I feel like I would never be able to accurately depict someone’s struggle as I have never experienced it. But I also didn’t want her to be, okay with it? I didn’t want her to be like, “well I guess I’m blind now, oh well” and shrug the whole thing off. It’s a delicate balance because I don’t want her to be “the blind character”, I want her to be “a character who happens to be blind”. It’s a part of her, but doesn’t define her.

Thank you so much for your advice. It helps me a lot! And I’d love to read your writing if you ever want/need someone to. I’m always happy to help a fellow writer! 😊
blindfoldedtweezers 1 points 2y ago
Thanks for your reply! Your comments have prompted another question from me, if you don't mind. This character you're writing - did she recently become blind? Because if that's the case, then I'd think it'd be valid for her to wallow in self-pity at first. But of course, that might kind of overtake the character and she might become "the blind one". I wrote my first comment coming from a place of having been visually impaired my entire life, so that's why my apathy makes sense for me I think. I hope this reply gives maybe a little more clarity/context. I wish you luck!
oncenightvaler 1 points 2y ago
Hi born totally blind here are my quick answers to your questions.

1. went to a public school for elementary school and high school. Since your character is in a fantasy novel, they probably would not use the mainly computer assisted technology stuff, but maybe you can have a Braille writing system equivalent? It took me like four years to learn all of Braille, and I had a teacher who would be constantly helping to translate the tests and even textbooks to Braille so I could read them and then type on my computer keyboard so the teacher could read back what I had written.

2. I often felt left out and a bit of a social outcast. A funny line I often use is: I had very respectful bullies, these three guys always bullied me for being a nerd who cosntantly liked reading, and not wanting to drink and get high with them, and not because I was blind. I have never had much of a dating life, but maybe part of that is social immaturity not knowing exactly want I wanted or who had a crush on me, and part of that is just not knowing how to share my feelings. I felt isolated sometimes when people would talk about comics or anime, but then I discovered podcasts, and of course as I said I've always been interested in reading.

3. role models: I've had several role models my first and primary one being my mom, someone always by my side encouraging me when I do well and telling me I can do better when I slack off. Then there are various members of the church community I know who have been good friends and spiritual mentours who see me as wise and kind. Then there's my Educational Assistant a kind industrious and funny woman who had helped me from grade 1 to grade 13, so we often catch up with each other ten years later.

4. things to watch for as you write: you don't have a blind character, you have a character whose blind which is to say "ok so theyre blind what else about them as a person" this is part of my personality but not what makes me who i am. write using all five senses, but a great writer would probably already be doing that. how i think about things: often instead of seeing the big picture, I build up all the details into one whole image. If i picture a tree: it has roots, then a lot of bark, then branches and leaves, then a trunk, then fruit of some sort. I am sure not all blind people see that way but I do.
Shyanneabriana 1 points 2y ago
I love that you are including a blind character in one of your books? I hope the writing process is successful!

I was born half blind and have been using braille all of my life.
One, schooling was horrible. I went to a public school and I couldn’t get the textbooks that I needed and actually flunked two math classes because I was so far behind due to a lack of resources. I have known people who have gone to schools for the blind but they aren’t very great either as most of them have low standards for academics. In fact, some of them are not even accredited. Hi school in general was a pretty lonely time.
Too, I felt left out a lot. Especially when people laughed at jokes that were visual because I couldn’t see what all the fuss was about and it made me feel sad because I didn’t understand it. I also really couldn’t enjoy things like zoos very much. I only had resentment one Time in my life majorly. That was when my cousin who is two weeks older than me got his first car. I felt like a loser because I couldn’t drive. It made me sad to think that I could never do something that he was doing. Other than that, I really don’t mind being blind because it’s all I’ve ever known. I get around just fine and have lots of fun and I’m doing a lot better now.
Three, my parents had mixed reactions. They always wanted me to be successful and independent. They always drove for me to do the best I could and everything, especially my education. But, they weren’t comfortable always with having a blind child and weren’t really sure how to show me how to do basic tasks like cooking and cleaning. In fact, my dad told me that he was ashamed when I walked out in public with my cane because it made people feel bad for me. I think now that I am independent and living on my own they see the error of their ways and realize that blind people can be successful, happy, and most importantly independent adults doing all the same tasks that their sighted counterparts do. It is hard to have a child with a disability, whatever that disability is. I think most parents, especially if it’s their first child, just don’t really know how to react to having a blind kid. They are unsure what to do or say. They’ve only seen stereotyped and caricatures for the most part of what blind people can be in so they’re not aware of the full potential. Over time, I think this really improves if you keep on showing them your independence. Sometimes that means a really hard break away but in the end it’s for
The best.
Four, this is a bit on the lighter side but I thought it would be important to include. For the most part, blind people do not touch peoples faces to see whether they are attractive. Just thought I would put that out there as it is a vicious rumor stereotype that will not go away and keeps persisting in popular culture! No, I do not want to touch a persons face! That is very uncomfortable for all involved!
On a more serious note, I had a hard time using my cane. I hated it. I saw it as a symbol of my “oppression “I was very averse to using it. I wanted to be seen as normal and to not be different from my peers. I think it interesting thing you could include in your book is the journey that your character has to undergo to be comfortable with themselves as a blind person. All blind people one is to fit in and be treated like everybody else.
Also, we do not see like regular people in our dreams if we were born blind. If a person loses their site later on, they will definitely see in color as they remember it from before.
Braille is really important. Braille is very costly. I have to pay hundreds and hundreds and hundreds of dollars for books. Getting a braille tablet is a very big struggle and costs thousands and thousands of dollars. It is very costly.
Also, sometimes blind people aren’t aware of body language that might convey emotions. For example, I cannot tell if someone is smiling, crying, or yawning. A face just looks like a blank circle with two little hollow places where the Iser and a big lump that is a nose. I cannot see any detail at all.
The last thing that I will say is that every blind person’s experience is different. Some people will see more than I can and some people will see less. It is a very very wide spectrum. Also, some peoples vision fluctuates from day today and a lot of people have a hard time adjusting to vision loss. It is definitely a life altering experience but blind people are independent and successful and we are a very diverse and unique bunch.
Best of luck to you and your book!
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