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Blind and Visually Impaired Community

Full History - 2020 - 08 - 14 - ID#i9gzs7
8
Advice for 7 year old daughter (self.Blind)
submitted by ShilosTurn
Hi everyone. I have a seven year old daughter who was born with a cataract in one eye. She had surgery to remove it when she was four months old but she will need to wear either glasses or contacts for life. Recently she has been more self conscious about her glasses, asking why she was born this way and wanting to have a quick fix. We have always been supportive and tried to comfort her but we are unsure of the best way to approach this. She picked out her own glasses and she still loves the color and style. Any advice would be appreciated. Thanks.
carolineecouture 6 points 2y ago
I was born with Glaucoma and I've worn glasses since I was three years old. Getting glasses she likes is a good idea. Pointing out that they help her see and do things that she couldn't without the glasses in a subtle manner might help. If you wear glasses make sure you note that they help you. Have her look for the menu many people who wear glasses. If she is being picked on address that. Good luck.
UpsideDownwardSpiral 5 points 2y ago
The best thing I can think of is to make sure that she likes the glasses that she wears, and it sounds like you've got that pretty well covered. Maybe you can get her a couple of different colors/styles so she gets to pick whatever pair she wants to weat that day? Zenni is very affordable, and I am happy with the glasses that I got from them (they were only $24 dollars shipped!). I haven't looked at thier kid's line, as I don't have any children, and I just don't think I could pull off the look as a 6'1" 350lb guy.
ShilosTurn [OP] 1 points 2y ago
Good advice. I checked out the website and I can already see a few frames I know she will like. Thank you!
[deleted] 3 points 2y ago
Im deaf and blind so I wear hearing aids and a long cane user. I too was like her once. The way my mom approached it with me was she told me I was unique and had my own unique style. Blue hearing aids. Different color canes. This made other children my age envy me and did make me somewhat popular. I struggled however having more options gave me a greater boost. Giving her and telling her she's unique not different and telling her she gets extra attention and options that others don't get will help too.
ShilosTurn [OP] 1 points 2y ago
The doctor told us that she will be getting an updated prescription soon. We do plan on letting her pick her own frames. The first time she picked them she immediately went to a pink pair and wouldn't look at anything else. She was five then so I'm hoping this time she will look at different styles. There are a few kids in her grade who also wear glasses and they basically all have the sane frames. Maybe new ones that are unique to her will give her a confidence boost.
That-One-Red-Head 3 points 2y ago
I developed a cataract at 4. I have needed to wear glasses and contacts even after getting the cataract removed.

Give her some time. I went through periods across my life where I was angry and frustrated about my vision, even now as an adult. My parents were always very open about my vision issues, and eventually we would make jokes about it. Now I’m able to laugh about it and poke fun at myself. It sounds like you are doing everything right so far. She is at a rough age now anyway. If she is getting picked on because of it, maybe it’s time to switch to contacts. At least give her the option. I started wearing them at 7 as well for the some of the same reasons.
ShilosTurn [OP] 1 points 2y ago
I don't think she is being picked on, at least she's never told me. She did wear a contact until she was about five years old and I don't think anyone wants to go back to that, but I will bring it up as an option for her.
That-One-Red-Head 2 points 2y ago
Good luck to you and well wishes to your daughter. 7 is around the age where kids start to notice how they differ from anyone else. It is a hard age. She will understand and accept what makes her different and how it is a good thing to be different! She will probably always have moments where she struggles, I think we all do if we have some sort of visual impairment.

My most recent issue is my vision is getting worse, and it has been hard for me to accept that. But at least it is something I know is happening, and I can prepare for it.
super-a-c-e 3 points 2y ago
I remember feeling like this when I started school and realized that I was different. I wanted a quick fix, to look the same, to be normal. My parents just gave me some extra TLC and with time the phase passed. I love being who I am and I think my eye is beautiful. The fact that I wear glasses and contacts doesn’t even stand out any more.

Just give her some time. Comfort her. Acknowledge her differences while explaining everyone is different. This is part of what makes her unique and if everyone was the same life would be boring.
chloem86 2 points 2y ago
Make sure she likes her glasses- and help her realise that they help her see better.
Don’t stop her doing things- let her explore and learn her own limitations (might involve a scraped knee or two)

I was born with albinism and my parents never stopped me doing anything (even with my low vision) - I learned myself what I could and couldn’t do- and how important my glasses and binoculars were for school

Kids are inquisitive but they generally learn best from practical stuff
nowwerecooking 2 points 2y ago
I had a really hard time accepting my vision (and honestly continue to sometimes as it can be a grieving process. Hopefully that makes sense?¿?). It took me years to not try to hide it or be self conscious. The 3 things that really helped me were:

Make sure she knows that although she may have vision issues, she can still do everything else anyone else can, but sometimes the route to get there may be a different way. My mom always used to tell me this and it helped me a lot. I have 2 fully sighted siblings and growing up I was treated just like them. There wasn’t any pitying or treating me differently because of my vision. In fact, growing up this way has truly made me believe that my vision doesn’t define me and that I offer a unique perspective on the world because of how I see.

Get in touch with your state’s servjces for the blind association. I’m from CT and ours is called Board of Education Services for the Blind (not sure if it’s called something different in other states). My parents found programs through them that had other kids with visual impairments. Things like summer camps (I did the Perkins theatre summer camp), outings, meet-ups etc. We often feel isolated and lonely becasue people just don’t know what it’s like to live how we live. Even with education it’s hard for others to understand, so having other kids my age helped me start the path towards acceptance. I saw that I wasn’t alone and that although I may feel or look different that doesn’t mean i’m not good enough or i’m not “normal”.

If she continues to struggle maybe look into bringing her to a therapist to help her work through it. Therapy has really helped me. At the end of the day getting to the point where she’s not self-conscious is going to be a long process, but it sounds like your a great parent, so she’s in good hands!
Revenant624 2 points 2y ago
Also let her know just because she has this vision problem she can do just about anything in her life.
psychgamer2014 2 points 2y ago
I’m a legally blind student pediatric psychologist, so I’ll take a stab at this. I’ve worn glasses since I was one, so I echo the need for her to be given freedom to choose her own glasses. Having multiple options is great if it’s within your budget; if not, that’s fine.

We think in what are called “frames.” What this basically means is that if we associate “x” with “y” and “z” enters that frame, even though “z” is unrelated, “z” will still hold the same association. In practical terms, if she feels “different” or “weird” about wearing glasses, that would carry over to school and she’d become miserable. The best way to combat this is to reinforce the idea that wearing glasses will help her see as well as anything positive she says about wearing glasses.

I currently have a patient about your daughter’s age that hates glasses so much that he flushed his down the toilet. One of the things I’m doing with him in session is coming up with a list of positive things about wearing glasses and being able to see (i.e. creating a positive relational frame for wearing glasses and seeing). I’d suggest that as a starting point; it should prompt a conversation between you two that you can guide from there.

Let me know if you have any questions.
ShilosTurn [OP] 1 points 2y ago
We will definitely be starting a list of positives. We have been looking into getting a second pair so she can switch up her style when she wants to.
TK_Sleepytime 2 points 2y ago
I lost the lens in my only eye after radiation therapy caused a cataract. I've worn glasses my whole life. They definitely can be annoying at times, like when I want to read or watch tv laying down. But they just sort of become a part of you. You learn to blend them into your personal style. You can get away with wearing chunky bright frames in an office or school where everyone is dressed professionally or has to wear uniforms in boring colors. I'm very quiet and shy but I like to wear loud glasses so other people approach me to start a conversation. I'll never have a satisfying answer to why I was born with all of the issues I have. I can only try to make the best of it and remember to be kind to others who are a little different.
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