I'm sorry you are dealing with this. I was diagnosed with Glaucoma at birth and I had my first surgery at 3 days old. I would suggest that you try and make sure that you start getting Occupational Therapy and vocational therapy. Learning how to move in the world with a visual impairment is really important. Good luck!

It's going to be a rough transition, but you can do a few things in the near future to get ahead some frequent barriers:

* Learn the specifics involving your vision loss. While many people can look up the medical symptoms, it helps knowing how to describe how those symptoms affect you (mobility, literacy, self-care, etc.).
* It's important to be your strongest advocate. While family and agencies can help with your changing needs, they're not always going to be there when you might need them at a given moment (as much as they would want to, unexpected things still happen.).
* Keep people in your life. There are going to be some who don't deal well with change or "think" things don't work the way they actually work. There are also going to be people who stand by and support you, not because of your disabilities, but because you're still you. Try to keep more of the latter in your life if possible, because they'll help you remember there's more to you than just an array of medical conditions. Because it's true.
* Focus less on how difficult things will become and more on what you can still do. Don't get me wrong, you should definitely learn things like O&M, low-vision digital products, and so on. It's easy to be overwhelmed by "can't" and "won't", especially when some people think that's all a disability is. You're still you, even though you can still become someone else. It'll be a long road and, while it may not get easier, you'll still resilient enough to keep adapting. Don't hesitate to get help if you need it, but it's easy to get used to being helped without asking for it.

Ultimately, there's no universal step-by-step process. Sometimes you'll succeed, sometimes you won't. Some days you'll want to give up, some days you won't. Vision loss isn't a dead end; it's an unexpected turn onto a road you've never been on before. You'll learn it just like the ones before, just differently.

If you have anything specific in mind, we're here to help!

I really recommend seeing a counselor or a therapist.
If there are any low vision/blind programs around you they might offer free counseling services. The one that helps me offers it.

Talking to a counselor doesn't mean that there has to be something wrong with you, I think because you are mature enough to be asking this, you probably already realize that.
Losing vision can be a very difficult thing to come to terms with, it has been for me.

Google local blind organisations and just call them. Ask if there's any free counseling that they can refer you to . Blind schools most definitely should have some info.if you lose more vision, they will help you figure out the life skills as well.

I just noticed you are 14. If I was your age I would get my parents to help me try to find that information. But, if you feel comfortable making some calls and getting some information yourself, I don't see why that would be an issue. You're probably going to need them to help you sign up and talk to someone though.

I know that a big thing that has helped me is learning about the way blind people function every day. It took away a lot of that fear of the unknown. Watch YouTube videos about that.
You can message me if you want to talk or ask questions.

I wa as 13 when I started losing mine in my left eye I also have glaucoma and axenfeld-reiger syndrome. Doctors don't know why I lost vision in my left eye and they suspect I'll lose it sometime soon in my right

I know it’s scary, but don’t let your vision loss define you. I know what helped me with my confidence. I got myself a guide dog. They can be a lot of work and not for everyone. Then you have the cost of taking care of the dog, but once I got him, it dramatically changed my life for the better in so many different ways.