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Blind and Visually Impaired Community

Full History - 2020 - 08 - 17 - ID#ibelv0
8
Any tips for dealing with sensory overload from vision issues? Venting. (self.Blind)
submitted by AlwaysLilly
Hey all,

I’m noticing myself feeling more overwhelmed or exhausted by my vision lately. I’ll just feel kind of burnt out visually by things like reading or being in a crowded place when normally those wouldn’t bother me. It makes me feel guilty when I go out with my family to do something fun and I have to slow down or need help navigating a new area. Or I need to stop and sit with my eyes closed for a while because it just feels like too much to process.

I don’t watch much tv and am trying to spread out my work (all on a computer from home) so I’m getting enough screen breaks.

I’m trying to focus on things like cleaning and just keeping busy on walks with the kids etc. but then if say I miss when I reach for something (that’s less common) or I walk into an open cabinet door that’s not quite closed, it makes me feel frustrated.

I just wonder how other people cope with feeling overstimulated visually and navigating vision changes with work, social events (when that’s a thing again) etc?
Amonwilde 3 points 2y ago
For me, sometimes it helps to focus on other senses and just use vision for a specific task, like avoiding the next person on the sidewalk. If you're feeling unmoored a cane can help with that, though there's a lot of resistance around starting to use one for many low vision people. Otherwise you might want to try leaning in a bit and trying to put yourself in those situations more often. It's counterintuititve but you won't get used to it if it's once a month, if you know what I mean.
AlwaysLilly [OP] 1 points 2y ago
That makes sense about exposure and using other senses. I'm also completely deaf in one ear, so my situational awareness isn't fantastic. Unmoored is a great way to describe it, I can go from feeling fine to feeling totally insecure.
Amonwilde 2 points 2y ago
OK, if you're having that unmoored feeling I strongly recommend a cane. It will keep you grounded in reality. I know it's hard, you don't have to use it in every situation, but it will help with that feeling a lot.
AlwaysLilly [OP] 1 points 2y ago
Yeah I’m leaning toward it. I’m surprised how affordable they are. I’ve been looking on Ambutech as I like the idea of something I can throw in my bag. I just don’t know much about the handles etc though I imagine when it’s not constant use, it’s less important?
Amonwilde 2 points 2y ago
I'd say get a nice one, you should feel good about it and not feel like it's a piece of junk. I recommend a graphite folding cane, like the ones here:

https://ambutech.com/collections/graphite-mobility-folding-canes

The normal handle is pretty good. For size, they recommend that it come up to your shoulder, but that will feel like a very long cane if you still have vision and are only using it occasionally. I say aim for the middle of your chest height. It should feel long when you get it, remember it's going out ahead of you. I like this document to learn how to use the cane:

https://www.nfb.org/images/nfb/publications/fr/fr15/issue1/f1501tc2.html
Revenant624 2 points 2y ago
Canes can be very helpful, but for me personally I did not like them, but I am a big advocate on guide dogs. I have one and he’s changed my life dramatically.
AlwaysLilly [OP] 1 points 2y ago
I have met some guide dogs (for other services) at my old job and from an outside perspective, I adore them. I haven’t looked into one for myself because I’ve always managed well enough with my vision but I’ll definitely be looking into it in the future depending on how my vision health goes.
Revenant624 2 points 2y ago
I am biased, but whenever you do I suggest you look into the seeing eye Inc. Morristown New Jersey. They were the first guy dog school and in my opinion the best.
smkelly 1 points 2y ago
I've also always gotten the impression that The Seeing Eye is really good, but I've never actually seen any data as to why. Do you have any anecdotes or information as to why you think they are superior?

Just trying to rationalize my held belief/bias.
Revenant624 1 points 2y ago
As I stated above, the seeing eye was actually the very first guide dog school. It recently turned 90 years old. Blindness is in my family and relatives and myself have all gone there to get dogs. When you leave The Seeing Eye with your dog you own that dog. In other schools that might not be the case. The staff, trainers are just such great people and very caring. If you have any issues about your dog, etc. you can call them anytime and they will call you back and try to help you resolve your issues. If for some reason when you retire dog and they cannot stay with you and you have no place else to bring the dog. they will take the dog and try to adopt it out and if not they will care for it The rest of its life in my opinion it’s just a world-class organization top to bottom. Also when you go there get your own room and the food is awesome. You also have your great breeding program for the dogs.
AlwaysLilly [OP] 1 points 2y ago
Noted! I’m on the east coast so that’s convenient.
[deleted] 2 points 2y ago
Regarding navigation, I'm partially sighted and, for a long time, didn't even realize that a cane was an option for me. I started using one a couple of months ago and have noticed a huge difference when navigating in public and social situations. Like you, I was getting absolutely exhausted just going out and doing mundane things. Now I can focus my attention a lot farther ahead of me when I walk and worry far less about running into people because I know they can see that I have vision issues. It makes a world of difference, let me tell you. And there are different types of canes, too, so you wouldn't have to get one that's more than you need.

Regarding walking into things and such at home, I found $1 extremely helpful. There's a lot of well-presented information on different types of vision impairments and ways to modify your home and workplace accordingly.

Best of luck. I know how frustrating and tiring it can be. There are tons of work-arounds, though. I think an important and sometimes difficult step is getting it through our skulls that we have a right to use them.
AlwaysLilly [OP] 1 points 2y ago
Thanks for sharing your experience. I'm seriously considering a cane because while I get anxious about wondering how it will be in social situations and adapting, I know it would be helpful. I recently went mini golfing and even just using the golf club to gauge the distance or texture of the surfaces I walked on was great. And being able to look ahead and not worry about what's under me would be great. While my vision still looks mostly normal for me, the whole getting caught off guard thing is so unnerving so dampening that feeling would be great.
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