First of all, let yourself grieve and know that you will be ok. I have a condition similar to MD but from my understanding you'll always have partial vision and will never go 100% blind. I've known about my condition since a very young age so I never had to find out later in life. Sorry about your diagnosis.

First off, I would like to say that I am sorry about your diagnosis. I was born with my condition, so I won't even try to say that I know what you are going through. What I can say is that there are tons of things that can be accomplished without sight. Books can be listened to, movies have audio descriptions, art can be made tactile so you can feel it. Take a moment and breathe. Your life is not over. It will change, hopefully not too much, but it will change. Once you get your second opinion, try to reach out to see what resources you have near you. See if you can find a support group of people who know what you are going through and can be there to guide you through it. As others have said, get cane training now. It will save you a lot of time and trouble later. Try not to stress too much and enjoy doing what you love. I sincerely hope that your treatment helps to slow or stop the progression. Best of luck and hang in there. It will be all right.

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Get your second opinion, get treatment, try not to worry.

Know this as well. If you lose your vision, life is not over. Being blind is inconvenient and frustrating, like other characteristics (i.e. being short or left handed) With the right training, tools, and supports your life will still be a good and meaningful one.

Take care of yourself.

What tests did they do to confirm? They need to do at least OCT and Flourescein angiography. Have you seen a retinal specialist? A general ophthalmologist knows a lot but the retinal specialist focuses on retinal conditions and would recommend you see one for your second opinion.

Also i just looked up those codes and they are unspecified disorder of the choroid and retina (not macular degeneration which is h35.30). Your symptoms sound like a stress induced condition that has a good prognosis. Also i cant read korean. What does that say?

I got a similar diagnosis yesterday, but I was told by the retina specialist that at my age (mid 30s) it was quite unlikely to be age-related MD and was almost certainly one of a number of genetic conditions that have the same appearance. He referred me to a specialist clinic for genetic retinal diseases.

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