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Blind and Visually Impaired Community

Full History - 2020 - 09 - 19 - ID#iw6mvw
3
Trying to find my place (self.Blind)
submitted by Frappgirl
Hello- I’m not really sure where to start but I am trying to process everything. 4 years ago I was diagnosed as a late onset Type 1 diabetic (that’s another group - I know). I’m 41 and The last 4 years have not been kind- my health has declined terribly and my sight has slowly slipped further and further away. I’ve had glasses since I was 6 so I’ve grown accustomed to wearing glasses and having a changing prescription- this is definitely not like that. In November my eye doctor sent me to a retinal specialist and there I was diagnosed as legally blind and told my vision is worse than 20/400. I had cataracts so was sent to an eye surgeon for that and just had one eye done without much relief- the other eye is scheduled for the 29th because why not.. next week I’m having a brain MRI and also am scheduled to see a neuro-ophthalmologist to see if I have optic nerve damage.. in the meantime I’m stuck trying to figure out am I visually impaired, blind, or both and trying to learn how to navigate this new way of life.. I do have some sight but it is not good. I’m getting a white cane soon because I cannot see well enough to know where curbs start or end or where stairs are... if you’ve read this far through my post any guidance you can offer I’d greatly appreciate- I feel so lost
scaram0uche 2 points 2y ago
Sighted person who lives with someone visually impaired. Seeing a neuro-opthomologist will be very good but also be sure to talk to your endocrinologist about managing your diabetes. Diabetes can have a major effect on eye sight as diabetic rhetinopathy! We are not doctors so please talk with your endocrinologist and/or general practitioner.

Contact your state or country's department for the blind or department of rehabilitation to find your local services. In the US there are state and county level support services that can help you learn accessible technology, how to use a cane, use public transit, etc. That is a good place to start to learn!
UpsideDownwardSpiral 2 points 2y ago
I can relate to this very well, if you'd like to talk about it through chat feel free to send me a message. I'm happy to share with you my experiences so far and what I've learned.
BlueZone123 1 points 2y ago
Hi, join the National Federation of the Blind, and grab the resources that are available. I strongly advice you go to a rehab center and train using sleep shades.
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