Advice For Mom of Partially Blind Baby(self.Blind)
submitted by smelly_carrot
Hi everyone! My son is 7 months old and was born without one of his eyes. His vision in the remaining eye seems normal or at least pretty good but we won’t really know until he’s older and can tell us what he can see.
I was wondering if there’s anyone on here with blindness in one eye. What advice would you give to parents to help their child? What is it like day to day being partially blind?
angelcake19 points2y ago
I think you have to remember that your baby doesn’t know he’s partially blind, this is all he’s ever known. That said he may have difficulty with depth perception and it’s quite possible that there are exercises that you can use to help him with that and an early age is a good place to start.
smelly_carrot [OP]7 points2y ago
Thank you. I’m sure it’ll be easier for him being born without an eye as opposed to losing it later in life since as you said it’s all he’ll ever know. Luckily for us I actually don’t have any depth perception since I was born with strabismus (eye pointing inward) that was corrected at 4 so at least I know how that’ll be. But that’s also the same too. It’s essentially all I’ve ever known so i just naturally adapted to it and I’ve never really had issues from it.
I’ve been trying to get him into early intervention but because of COVID it’s been a pain in the butt but hopefully he’ll start with someone soon to help with the exercises like you said.
Thanks again for replying!
angelcake6 points2y ago
I would start reaching out to organizations for blind children online. You’ll have to Google and see what’s in your area but honestly even if they’re not in your area and you contact them by email you may well get some good guidance. It’s good that you understand how a lack of depth perception feels. You can probably help him out a lot.
I also suspect at some point somebody in here with a similar experience will pop up.
Ckirk0191 points2y ago
Hey! Please don't give up on early intervention! It is totally a pain during COVID! I'm a TVI (teacher for the visually impaired) working with early intervention in my state and it's been very slow moving, but in the meantime we have been using the coaching model.
Please reach out if I can help further! I know you'll get more authentic responses here, but if you ever need strategies from the early intervention side, please reach out! I'll give suggestions or mail anything I can.
**Hope I didn't overstep or intrude. I just love my job and my babies.
TK_Sleepytime6 points2y ago
Hi. I lost my right eye to cancer as an infant - it's all I've ever known. My left eye developed a cataract so I'm also missing a lens and am now low vision. As far as seeing from one eye only - the only issues I had as a kid were depth perception and the occasional fall because I would get talking and not pay attention to my right side. Not having depth perception will make many sports harder but not impossible (hitting a small ball takes a ton of practice). I guage distances by sizes and landmarks, not "20ft away" but "halfway to the stop sign." You'll notice him figuring stuff out before he can talk and learning where to grab to reach a toy or food. When he's older it gets hard to judge driving/parking, but again he'll figure it out with practice. It's not a difficult health condition to have, I'm sure he'll be fine.
smelly_carrot [OP]1 points2y ago
Thanks for the reply! Sorry to hear about your cancer, I hope you are doing better now!
TK_Sleepytime2 points2y ago
Oh I'm in my 40s and doing well :) one thing I would add is that I was bullied somewhat for having one eye even with a convincing prosthesis because kids attack differences. Please let your son know early and often that it's ok to be open about unpleasant experiences and emotions. I hid everything because I didn't want to inconvenience anyone with my problems and really hated feeling like a "special child."
Hallowss3 points2y ago
I lost my vision through other means but the first indicator I couldn’t see much was lack of muscle control in my eyes.
I was given exercises (trying to look at my nose, looking down, side to side, upwards etc) that, had I learnt to do this as a child would’ve helped me see more as my field of vision was impacted due to not being able to move my eyes.
I’m assuming as a child (I was only told to start doing these exercises as a teenager) I didn’t learn to do this as I couldn’t see much anyway and my parents didn’t know that was also impacting my vision
Those exercises could be helpful to ensure he is actually seeing as much as he physically can
smelly_carrot [OP]2 points2y ago
Thank you!
emzkind1 points2y ago
I was actually stalking this forum because I was going to ask a similar question! My four month old has unilateral microphthalmia and is pretty much blind in one eye. If you haven't found it already, there's an excellent facebook group for parents of children with microphthalmia and anophthalmia - it's called MAPS. There are also several adult members with these conditions who are very helpful.
smelly_carrot [OP]1 points2y ago
Sorry it’s so much later but thank you for the reply! I just joined the Facebook group!
emzkind1 points2y ago
Yay!
BlueIr1ses1 points2y ago
Just in case his doctors don't mention it (mine didn't to my mom), you need to protect his seeing eye. Have him avoid contact sports or wear really great sports goggles, even in phys. ed. Protective eye wear around lawnmowers, power tools, etc. Some people even wear polycarbonate glasses, even if they don't have a prescription for their seeing eye. As for his sight, unless he has vision issues in his other eye, he probably won't notice that he's lacking anything.
smelly_carrot [OP]1 points2y ago
Sorry it’s like a month later haha, but thank you for the reply!
TwoSunsRise1 points2y ago
Hi there. I'm a 32F, essentially blind in my right eye since birth (or before I could remember). Your kiddo will be just fine. I didn't have issues with depth perception. Probably because I only had one eye so early on. I played soccer and danced for over a decade and had a blast doing it! Got my DL at 15, like normal. Only issue there is learning to check your major blind spot he'll have. But you get used to it after a while and can drive just like everyone else. As I got older an issue I've had is eye strain bc you have one eye doing all the work. I work in front of a computer 9 hrs a day so headaches and even migraines are a problem but are manageable with anti-inflammatory drugs.
While he's a kid try not to treat him differently or coddle him. My parents did that and I really wish they didnt. It all came from a good place but make it clear that he has the same expectations as everyone else. He really shouldn't have any issues that need special services. You'll get kids that comment on the "blind eye". Nothing you can do about that, kids don't have filters. I just tell myself it made me tougher and gave me tough skin, haha. No bullying just rude comments or questions. Speaking of which, teach him that questions are OK when respectful. It's fine if people are curious and want to know about his condition. Maybe when he's younger, help him come up with an explanation of why he may look different (assuming he does) when people ask.
Anyway, good luck and let me know if you have any other questions!
smelly_carrot [OP]2 points2y ago
I know that this was almost a month ago, but thank you for the reply o really appreciate it!
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