Blind and Visually Impaired Community
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Advice needed - bling spot (self.Blind)
submitted by TheMediaBear
Hi,
Firstly, I am not asking for medical advice on treatment or diagnosis, I am asking for things to research to better educate myself pending a hospital referral.
I used to work for a visual impairment company where we made accessible products so I am not totally clueless but I have not been part of that industry now for about 6 years so my knowledge is fading.
Well, we have had a letter today for a hospital referral regarding my 5 year old son and the results of an eye test at school. Obviously, we spoke to him and it appears that if you ask him to read the title of a book from one and a half feet away at least 1, maybe 2 letters in the title either disappear or are really fuzzy.
No black spots. It moves around as he reads and his right eye is fine. His peripheral vision outside of this small area seems fine though.
I know it's general and not a lot to go one but if anyone can suggest things to research that has similar symptoms I would be grateful.
My wife is a worrier and this kind of thing has a terrible effect on her mental health, so I need to be able to talk about the subject. She is that bad I have had to ban her from googling such things lol.
thanks
EDIT, shown him some of my old work images and he said it looks like the image for Juvenile Macular Degeneration.
Firstly, I am not asking for medical advice on treatment or diagnosis, I am asking for things to research to better educate myself pending a hospital referral.
I used to work for a visual impairment company where we made accessible products so I am not totally clueless but I have not been part of that industry now for about 6 years so my knowledge is fading.
Well, we have had a letter today for a hospital referral regarding my 5 year old son and the results of an eye test at school. Obviously, we spoke to him and it appears that if you ask him to read the title of a book from one and a half feet away at least 1, maybe 2 letters in the title either disappear or are really fuzzy.
No black spots. It moves around as he reads and his right eye is fine. His peripheral vision outside of this small area seems fine though.
I know it's general and not a lot to go one but if anyone can suggest things to research that has similar symptoms I would be grateful.
My wife is a worrier and this kind of thing has a terrible effect on her mental health, so I need to be able to talk about the subject. She is that bad I have had to ban her from googling such things lol.
thanks
EDIT, shown him some of my old work images and he said it looks like the image for Juvenile Macular Degeneration.
viciousSnowFlake 8 points 2y ago
If his peripheral is fine and it's only his central vision then I'd say stargardts (my sister has this).
If it's central AND peripheral/night vision then I'd say cone rod dystrophy (what I have). I have a big ole distortion in the middle of my vision that causes words/letters to get all swirled/distorted.
To really figure out what it is the doctor can have a genetic test done that targets retinal disorders.
If it's central AND peripheral/night vision then I'd say cone rod dystrophy (what I have). I have a big ole distortion in the middle of my vision that causes words/letters to get all swirled/distorted.
To really figure out what it is the doctor can have a genetic test done that targets retinal disorders.
Clunny 3 points 2y ago
This sounds eerily similar to my diagnosis which is called Retinoschisis or XLRS. It is similar to macular degeneration. It's a genetic condition so to have it, a male on your wife's side would have had it as well to pass down. Maybe ask your wife if she recalls any male with vision issues in her family.
Since I was a child I've had a blind spot in one of my eyes. My grandfather who also had the condition thought he had macular degeneration most of his life until this condition was discovered in the 90s.
Hope this helps. Lmk if you have any questions.
Since I was a child I've had a blind spot in one of my eyes. My grandfather who also had the condition thought he had macular degeneration most of his life until this condition was discovered in the 90s.
Hope this helps. Lmk if you have any questions.
IronDominion 3 points 2y ago
The most common thing this could be - though rare, is stargarts syndrome.
[deleted] 1 points 2y ago
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