10 years ago is when I stopped pretending I wasn’t blind, but I’ve known about my RP for 25 years. False hope was implanted into me so since the beginning with parents, relatives and doctors always saying I would be cured in the next 10 years. I was never prepared to live as a blind person and was even encouraged to get my driver license using a doctor’s note to bypass the eye exam. I broke down hard when I had to leave college my first try and I had to admit I was blind. Then I opened a VR case (in America) and I received training. That is when I gained my freedom and I rolled with that and gained my bachelors and masters degree. The tech and support is out there but you do have to find and fight for it. Even this struggle can be a boon because it forces you to become resourceful and self-advocating. A cure may come but I find that my experience was necessary for me as a person. If a cure is safe and doesn’t cost a fortune I would consider it, but I will not risk my life or my family’s livelihood for sight.

No. My eye doctor told me there was a cure and hope coming in the next 5 or so years, that was in 2015. It just takes time to research and get through the initial government red tape. Once one cure is found it's a lot easier to translate to other cures. It's new an is exciting that we can cure blindness even if it specific genes. That hadn't been the case until very recently