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Blind and Visually Impaired Community

Full History - 2020 - 10 - 18 - ID#jdg5h5
1
Has there been any cases of people with damaged optic nerves having sight restored? (asking for a friend who has damaged optic nerves) (self.Blind)
submitted by DonkeyWorker
macadamia_owl 1 points 2y ago
Better search here $1 there are some with results or pubmed its most subjective soruce it depends on what disease he has but I haven't heard of anyone having restored their vision. I have contact with numerous people, 2 blind schools from 2 different countries, know people who flew to China Germany Italy Russia Egypt USA for "stem cell treatments" to private "clinics" not only for eyes and fundraised paid hundreds thousands for multiple treatments - it doesn't work yet they can't control it yet at all, cells are dying out after weeks or months or in worst cases turning into cancer - they are "miracle" cells they can turn into anything after infusion no matter if they're your cells or embryonic ones all of them are having this ability. After those treatment theres no follow up long term care as it should always be when doing proper human clinical trials theres no proper safety. If you want to try such thing then search only trough clinicaltrials.gov its international worldwide.

I myself was on clinical trial for other disease that sadly ended due to Corona I didn't get any money for it but I got free first priority health care, free novel innovative drug candidate not available on the market, frequently health exams tests and special emergency numbers just in case. I had to come in quite frequently and fill in lots of paperwork every time but I may contributed to creating a new medication. I hope after Corona they restart and I can participate again because it helped me a lot.
DonkeyWorker [OP] 1 points 2y ago
> Clinicaltrials.gov

Thanks, thats really helpful - in UK but would consider travelling anywhere with hope of any improvement. Previously my friend went to Germany (The Fedorov Electrical Stimulation Therapy) it may have made VERY minor improvements but hard to say for certain & they seem a bit of a swizzle with the software they offer (with ridiculous subscription charges).
macadamia_owl 1 points 2y ago
Look at this $1 this method is still in clinical trials Ann its unethical to take money from unproven clinical trials methods. Search on clinicaltrials.gov now due to corona it may be hard to find recruiting studies and as a candidate person has to meet the rigorous criteria, have enough time and be cooperative. Sometimes due to other reasons study is stopped, if you have questions how it looks like I may try to answer I was in Phase 2 and 3 for almost 3 years. I live in Germany actually not far from Berlin never heard of this treatment was in biggest hospital in there for years in treatment due to optic nerve damage due to glaucoma. I feel kind of scam there, subscription fees? Software problems and they're still using it on people wtf?
[deleted] 1 points 2y ago
[deleted]
blackberrybunny 1 points 2y ago
I've heard of nothing.
bjayernaeiy 1 points 2y ago
Not that I've found of anything of the like. I also have optic nerve damage.
Furnessian90 1 points 2y ago
not as far as I know, I have optic nerve damage, but there is hope... $1
macadamia_owl 1 points 2y ago
It's only 9x9 mm implant that gives 473  light spots not much compared to real vision. I have heard years ago of wireless implants with 16x16 mm coverage in clinical human research ongoing.
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