Blind and Visually Impaired Community
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Questions for those who have had eye removal, either enucleation or evisceration (self.Blind)
submitted by Unlucky-Water
Hi. I'm looking to hear from people who have experienced eye removal surgery. My keratoconus flairs have gotten bad enough that I am seriously considering it for myself. I've been doing some research, and have read that the pain is not that bad and the recovery time is pretty short. Has that been your experience? Did things go pretty smoothly, or did complications arise? My insurance is Oklahoma Medicade, do any of you know whether eye removal will be covered by it? The pain and discomfort are to the point that I really just want the eye gone, especially because other approaches don't seem to be working, but I also don't want to act too quickly. My eye doctor is completely open to this being a route we take, but I wanted to hear from people who have actually taken it. Thank you for reading this.
tcat8999 10 points 2y ago
You might want to check out the website losteye.com or the Facebook group Lost Eye.
Many of the people there have had eyes removed and can advise you on it
Many of the people there have had eyes removed and can advise you on it
Unlucky-Water [OP] 6 points 2y ago
Awesome. I will be checking out the site and the group. Thank you for letting me know about them.
deldo54 1 points 2y ago
Thank you for this information. My father is currently debating having his left eye removed. After some trauma in his 20s, it has deteriorated to the point of no return after many surgeries. I'm honestly worried about his mental health, and I think being able to speak with and hear of others' experiences may help him make the decision.
BenandGracie 6 points 2y ago
I have had both my eyes removed. The first one didn't hurt, but the second one did. The doctors think the first one was hurting before they removed it, and the pain from the operation was less, so I didn't feel it. The second one hurt at first, but it went away after a day or two.
Also, I couldn't lift anything heavier than a newspaper for 6 to 8 weeks after, but I know other people who didn't have this restriction. I don't know if Medicare covers this sort of thing or not. Good luck, and if you have any other questions, I will be happy to answer them.
Also, I couldn't lift anything heavier than a newspaper for 6 to 8 weeks after, but I know other people who didn't have this restriction. I don't know if Medicare covers this sort of thing or not. Good luck, and if you have any other questions, I will be happy to answer them.
Unlucky-Water [OP] 2 points 2y ago
Thank you for sharing your experience. Would you mind talking about what caused you to have the restriction of not lifting for six to eight weeks?
BenandGracie 3 points 2y ago
When they remove an eye, they put a little ball with holes in the socket and attach the muscles to it. After 8 weeks, you go to a specialist who makes the prosthetic eye. The eye sits on that ball which allows the new eye to move. The restriction was to keep the muscles from tearing.
MolemanusRex 4 points 2y ago
I had one eye enucleated several years ago. Didn’t really hurt, as far as I remember, and helped solve a lot of pain and discomfort. The main thing that arose afterwards is that the socket and new prosthesis can tend to get watery and mucusy, and you have to keep it clean. But it’s much better overall.
[deleted] 3 points 2y ago
[deleted]
CajunDragon 1 points 2y ago
I just had my an eye evisceration on Tuesday the 26th of my left eye. I decided to google around as I was curious how many weeks/months before the eye looks normal again. I look like Stallone at the end of Rocky 3. The pain wasn't as bad as I thought. I have a very low grade headache now and taking OTC paracetamol/advil at the moment.
more_than_yours 1 points 2y ago
Hello CajunDragon. Could you give us an update on how you are doing?
CajunDragon 1 points 2y ago
Sure. It looks to be 98% healed. It's been less than 3 weeks and all the pain is gone. I am overall very surprised and pleased. The temporary shell that fits over the implant doesn't match my right eye exactly but they are going to fix that March 12. I was putting this off and worrying a lot. Like most things, the anxiety was worse then the actual event.
Afraid-Month 1 points 1y ago
Hello u/CajunDragon, How is it going? I hope you are great!
CajunDragon 1 points 1y ago
Hi. Everything still ok. No major issues. If there is ever irritation I'll take it out for the evening and use eye drops.
guitarandbooks 1 points 2y ago
I had my left eye removed when I was seventeen due to severe and constant glaucoma pain. At least as far as my personal experience went, yes, there was quite a bit of pain and discomfort on top of the various physical restrictions. Once it was done though, it was a relief. Getting the prosthesis later on wasn't a big deal but it was a bit painful when they did the initial mold.
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