Hello, I am a first time poster. I have been trying to create a community of people with my genetic issue (defects to the PRPH2 gene which is one of the genes that contributes to / causes RP). In any event, it is at
$1 I just started it a few months ago and really don't know where it is going but I feel accumulating members is a necessary first step to begin advocacy for research. If people have any suggestions, great. Also, feel free to join if you are a PRPH2 affected person (I'll send you an email once you join to exchange info on our mutual situations)