Blind and Visually Impaired Community
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I'm bummed that I can't even see the lights from the Christmas tree or fireworks anymore. (self.Blind)
submitted by guitarandbooks
We put up our Christmas tree recently and my eight year old asked if I could see the lights. even when I moved close enough to feel the heat from the lights on the tree, I couldn't see them at all. It is depressing. My left eye was removed when I was a teen due to terrible constant glaucoma pain. My retina in my right eye is 97% detached and I have scar tissue on my cornea. I can see some sunlight sometimes or a really bright ceiling light if I look right at it but that's it these days. I can't even see fireworks anymore. What really gets me is that I am forgetting what things looked like. I try to bring up images in my mind and a lot of the time, I just can't do it.
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Sometimes this just sucks so much! I'm not really going anywhere with this;I just needed to vent a bit.
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Sometimes this just sucks so much! I'm not really going anywhere with this;I just needed to vent a bit.
rumster 14 points 2y ago
Dude. I'm sorry - My favorite part of the year is the 4th of July. Every year no matter how bad my year is I look forward to blowing up money. I 100% feel for you and I hope technology catches up and somehow able to restore some vision to you.
Sometimes it's okay just to let emotions go.
Sometimes it's okay just to let emotions go.
OliverKennett 12 points 2y ago
Really sorry to hear this. I've been blind for about 20 years, it does suck ballballs but... Sight is certainly not the only aspect of xmas, music, candles, textures of rapping paper, the taste of food that we eat no other time of the year. Yeah, the twinkle is something I remember fondly too, but now you can pay attention to other glorious things of theseason.
RelativeBite 11 points 2y ago
That sounds really hard and it makes total sense to be bummed! It sounds like you are living your life with your family, but vision loss is HARD. Sending online hugs. Stay Strong
niamhweking 7 points 2y ago
Absolutely, vent away, there are only some people who "get" your frustrations
whiskeyandtaxes 4 points 2y ago
It sucks and I’m sorry that you’re losing all sight. Yes, you’ll adjust but it still sucks. Stay strong.
DrillInstructorJan 3 points 2y ago
Have a good vent, I know exactly what you mean.
There seems to be this weird idea that after a while in this situation everyone just gets used to it and it's okay and doesn't bother anyone. I've said this before but my approach has never been that I have to find a way to love it. I have to find a way to deal with not loving it, and I have, but that doesn't mean every so often I don't hit a huge wall of frustration and grind my teeth about it. Once a month, maybe, I find myself having to take deep breaths. Don't know how that works for anyone else?
There seems to be this weird idea that after a while in this situation everyone just gets used to it and it's okay and doesn't bother anyone. I've said this before but my approach has never been that I have to find a way to love it. I have to find a way to deal with not loving it, and I have, but that doesn't mean every so often I don't hit a huge wall of frustration and grind my teeth about it. Once a month, maybe, I find myself having to take deep breaths. Don't know how that works for anyone else?
cyclops32 3 points 2y ago
I completely feel your pain. I was at that stage in my life about 15 years ago now, and since then I’ve completely lost all Visual images, and visual concepts.
Forget to turn on and off the lights, not knowing if something may or may not look good,, shades of color, and other things that are visual in nature.
Sounds like you’re with family. Stay strong, feel free to vent.
Forget to turn on and off the lights, not knowing if something may or may not look good,, shades of color, and other things that are visual in nature.
Sounds like you’re with family. Stay strong, feel free to vent.
triton100 3 points 2y ago
I’m so so sorry to hear that. It must be awful and maybe even scary. I wish I could offer words that could help. But it’s unlikely. Just maybe try and stay positive by thinking of the family you have around you. Maybe ask them to describe things to you in as much detail as possible. The things that you are forgetting what they look like. Hope you manage to find peace and acceptance and hope that technology moves fast with new treatments on the horizon. All the best
[deleted] 2 points 2y ago
The unexpected or unnoticed progression can be so hard. My family put up our tree last weekend. My daughter and I put the lights on it, and when we turned it on we were enjoying how colorful the lights are (they're new). My husband had already been having a "bad eye day" - he has only one eye and very low vision - and had spilled his tea and already tripped once or twice that day. I walked across the room to give him a hug and he tearfully whispered in my ear, "I can't tell the lights are colored this year..."
We had thought his loss-progression had halted, and this was the first proof in years that it is still getting worse. It's heartbreaking. I'm sorry you are going through this.
We had thought his loss-progression had halted, and this was the first proof in years that it is still getting worse. It's heartbreaking. I'm sorry you are going through this.
siriuslylupin6 1 points 2y ago
Definitely interesting. I guess I am so sensory either I didn’t miss it too much. Depends on the person if I try I can bring up images from memory but it is an effort for me. Lost my light perception at least 3 to 5 years ago and didn’t even notice also been blind since I was like 8 so pretty use to just using other senses.
[deleted] 0 points 2y ago
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