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Blind and Visually Impaired Community

Full History - 2020 - 12 - 10 - ID#kafy7r
15
Is Blindness the worst disability? (self.Blind)
submitted by [deleted]
[deleted]

$1
LadyAlleta 20 points 2y ago
I think the article is missing the boat. It's horrible being blind and living in a society that doesn't try to accommodate.

Out here in the middle of no where Texas, with no transit, no walkable jobs, no walkable grocery stores, and no willingness to change the status quo - yes. Being blind is basically imprisoning.

Being blind in a city that has accessible places and a job that allows you to work from home or accepts you being blind - that isn't so bad.

But I suspect you're still in the grieving stage of losing your vision and the ideal future you wanted. Which is totally normal and healthy when you are recently diagnosed. It would be strange if you began going blind and were happy about it. Going blind is a loss. And it does impact you. And it does suck. And no matter how much you adapt, losing vision is emotionally taxing. It hurts.
Blind_Not_Clumsy 3 points 2y ago
I understand where you’re coming from.

I live in the biggest city in my state- yes, we have public transportation, we have ADA accessible transit for those who need it.

However...the ADA buses do not run in certain parts of my city on the weekends. They do not go as far out west in my city as I’d like. Yes, I still can get to work during the week, but I’d like to enjoy going to other parts of the city during the weekend. It’s frustrating.

Sidewalks and the crosswalks are a joke here. I have been in contact with a mayoral candidate to discuss with him about improving this situation for us; because I can’t afford Lyft/Uber on a daily basis like some people. It sucks.
[deleted] [OP] 1 points 2y ago
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Fridux 12 points 2y ago
I used to think it was a pretty bad disability, due to affecting pretty much everything across the board, but even then I never thought it was the worst. Being paralyzed like Stephen Hawking was is much worse in my opinion, and he managed to live through it.

I surely took my time (over 5 years) to finally stop pitying myself, but it did happen eventually, and I'm glad it did. At least I don't feel pain, the rest of my body works perfectly, and am completely free from medication, not to mention that, unlike many posts that I read at /r/disability, blindness is a completely reliable disability, in the sense that I always know what I can count on, and can almost take for granted that tomorrow my body will function just as well as it does today.
DrillInstructorJan 9 points 2y ago
I always think that comparing disabilities is a really dangerous line of thought to go down. I say that for a number of reasons but mainly because I have met people who have basically exactly the same disability I do whose lives were far worse screwed up by it. I base this on a visit I once made to a place in eastern europe where they had people in long term care who seemed to me to have severe mental health issues, but when I asked what was wrong with one of them the answer was "oh she's blind." Blind and what? Oh just blind. She was my age and she had the same condition as me, and she had been left to rock back and forth in a room her whole life and as a result she had basically gone completely wrong mentally. It went through me like a knife, it was utterly horrifying, and that moment will stay with me for the rest of my life.

That stuff makes at least as much difference as what's specifically wrong with anyone.
TheLoneViking 7 points 2y ago
I'm not saying being blind is easy, but it could be a lot worse. Imagine being a quadriplegic. Personally, I'd also take being blind over being severe mental handicap. Then there's all those cases where disability stems from rare, extremely debilitating disorders.
macadamia_owl 4 points 2y ago
This one any paralysis, any severe multiple disability.

Dementia and similar are the worst saw many cases in my family and neighborhood too. No cure.
Spastic muscular and similar diseases saw cases with my own eyes hard to deal with pain scream at night when you can't help and docs too either. Person bounded to wheelchair permanently in painfully positions due to muscular spasms they can only scream.
Muscular dystrophies, SMA etc
Yes blindness is very disabling more than hearing loss (was in primary school many years with girl in same class with total hear loss apart with some social situations it was much easier manageable than other disabilities) she had no problems in school and then in choosing dream career comparing to others it was integration mixed class: healthy kids with disabled ones: autism like spectrum, on wheelchair, blind & visually impaired, diabetes etc

I had once symptoms for 3 years had problems walking that progressed to using wheelchair quite quickly, none really had time helping i was crashing downhill at parked cars with white cane in one hand on wheelchair it was school for disabled and blinf. Then problems with left side overall. Was lying in bed only 1 month of intensive physiotherapy from not moving at all to i was able to walk few meters again in hospital.
I had rare Plica syndrome, swollen inflamed knew and injured meniscus and other structures, side effects from some meds i regularly had to took at that time for 3 years found out with arthroscopy.
cabc79863 7 points 2y ago
Every disability has pros and cons. What makes me the most problems is definitely my autism. If I would be able to communicate better and have less problems with the executive functions I wouldn't mind trading that for the rest of my vision. The deficits in communication and the isolation is my biggest problem. The disability I most fear is being deaf-blind.
Real_Space_Captain 9 points 2y ago
Oh yes! Deafness didn’t scare me until I got the blind diagnosis.
niamhweking 3 points 2y ago
Yes! I feel for my daughter her VI wont be her biggest issue as she grows up and is an independent adult, her autism will be her biggest "problem"/dufficulty
[deleted] [OP] 1 points 2y ago
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thicccdragon 1 points 2y ago
Do you have issues with verbal communication? You sound quite eloquent to me
cabc79863 3 points 2y ago
I do and sometimes I have problems with communication in any form. But most times written conversation goes well. It's just hard to get acceptance when you want to use written communication. And in personal contact I often get completely overwhelmed, but I also feel lonely and want contact. :/
cabc79863 2 points 2y ago
I have to get care and assistance in day to day life. I feel very unfree and dependent with that. And I know blind people who can live very well on their own or with little help. I would love to be more independent and able to care for myself. But it's okay the way it is. I can accept it.
AuxxyFoxxy 3 points 2y ago
"SEE RESULTS" LOL JOKES ON YOU I AIN'T SEE SHIT
ratadeacero 3 points 2y ago
No. One of my buddies is in a wheelchair with little muscular control. Do you have to seek someone out any time you have to go urinate? There are way worse things than blindness.
[deleted] [OP] 2 points 2y ago
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[deleted] [OP] -3 points 2y ago
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noaimpara 2 points 2y ago
I think every disability has its pros and cons and the worse disability is different depending on who you ask. If you asked 15 years old me who had just started going blind, I would have told you that yes, blindness is the worst disability anyone could have. Present 20 years old me still thinks it’s pretty high on the list of shitty disabilities but I think there is much, much, much worst out there. Although I’m a strong believer in pain and disability not being a competition. Life is not a big dick contest.

Edit : after reading comments, I also want to add that there is a layer of privilege to this. I’ve always lived in huge European cities with fantastic public transportation, great benefits, and I have very good access to accessible tech, healthcare and education, so being blind really is not as bad for me as it would be for someone in rural Wyoming who doesn’t have a good grasp on tech.
momopeach7 2 points 2y ago
I suppose it’s hard to say truly partly due to different opinions.I know some who would rather be blind than deaf, for example. Others would be the opposite. Some would hate to have any mobility disability, yet there are ones I know who are teachers and professors and still have fulfilling lives.

It’s hard no matter which disability one has, and if blindness is the only one you have then yes, it will feel like the worse in the world.
bradley22 1 points 2y ago
That all depends on you and your outlook on life.

I was born this way and if something else happened to me, I’d handle it as much as I can, it’s all down to your outlook on life and situation.
[deleted] [OP] -8 points 2y ago
[deleted]
zosobaggins 13 points 2y ago
(In the event that you’re **not** a bored troll who created an account to post this)

I don’t know what you’re looking for here. You come into a subreddit community supportive of a disability and outright say that it’s better to be dead than be blind? You imply the community here are losers and incapable of any level of success. And then in a world where disabilities that have people in constant, agonizing pain, or trapped in their own unmoving body, or any number of others, you proclaim that blindness is the worst? Don’t come here projecting your own fear and insecurity.

Here’s the thing: yes, blindness sucks. Yes there’s trauma in loss of vision whether it’s slow or fast. People blind from birth have a whole different set of things I can’t speak to. But Disability only sucks if you let it suck. You get to interpret how you feel about it.

You were wanting to be a physician: $1. There are blind lawyers, blind teachers, blind athletes.

You were looking for “the good life?” You said it like being a doctor is a ticket to easy street. I don’t know what branch of medicine you want to be in, but blind or not you’re going to have to bust your ass and then when you’re retired you get a boat.

Honestly dude, blindness sucks but things can be a lot worse. Please reach out to a counsellor or a support group through your local blind advocacy organization. There is a ton of support out there to help you and there is no reason to not be successful. Your life is going to be different than what you planned, but plans change and we all have to adapt. It’s up to you how you do that.
Real_Space_Captain 6 points 2y ago
I think it’s healthy acceptance.
At first I remember being upset, like this isn’t something I’m going to “get through” because even if I mentally get better I’m still going to be physically bad.

But then I remember there are people who are diagnosed with cancer at my age who may not get through it at all. And there are others with diseases that will render them bedridden or others who got in accidents that have left them severely paralyzed. None of this is a competition at all, but made me realize at a certain point everyone gets some terrible shit delivered to them, this is just mine; and mine just hits young and is pretty obvious.

I’m not saying it doesn’t suck and ruin some dreams, it really does. I worry everyday if I’ll have a job in the future, can I live in the city where I want, how can I manage watching after kids, etc. But what am I suppose to do? Stop trying? I guess I’ll figure it out step by step.

And that’s what a lot of people where are doing. They’ve been figuring things out and adapting so their lives aren’t as bleak as they felt they’d be when they first heard that diagnosed. And a lot of that figuring out is lamenting like this, complaining and ranting to your fellow community. It can help you in the end.

I hope you find peace in your disability.
DaaxD 5 points 2y ago
In my humble opinion intellectual and other developmental disabilities can be far worse than blindness. As a blind, or in my case as a legally blind, I can still live mostly independent life just like anyone else.

That wouldn't be the case if I had a severe intellectual or developmental disabilities which could make it impossible to me to take care of myself, live independently or even express myself so that other people can understand me without too much trouble.

This is not to say that being blind is a cakewalk and it can surely ruin lives and dreams, like your dream of becoming a doctor. But you asked if the blindness is the worst disability. In my opinion there are disabilites which are much more unforgiving than blindness.
cabc79863 2 points 2y ago
It needs time to accept that. The doctor told me I had to live dependent from others with autism the rest of my life. It took 3 years and therapy for me to accept it. But one can live a worthy and good life and help others and change the world not only with our disability sometimes even because the disability enables us to think differently about some stuff. Did you watch the video?
thicccdragon 1 points 2y ago
I'm sorry, did you link a video? I didn't see it
cabc79863 3 points 2y ago
I did below your other other post: https://www.youtube.com/watch?v=-kLMr3iCXd0 this video helped me accept my disability better even though he speaks about a different disability than my ones.
MostlyBlindGamer 1 points 2y ago
It sounds like you could benefit from speaking to a professional. You have a lot going through your head, right now, you you might need some help sorting it out.

There's as much shame in getting help with your mental health as the is with your vision or a broken bone - none at all.

I hope you feel better soon.
[deleted] [OP] 1 points 2y ago
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