Blind and Visually Impaired Community
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Redditors with Right Homogenous Hemianopia / total right side visual field cut in both eyes - how has this affected your day to day life? (Aside from driving) (self.Blind)
submitted by Chemical-Key
I ask this question because I am considering having a craniotomy to remove an AVM (vascular malformation) from my left occipital lobe. It is partially embolised, stable and being monitored but it puts me at risk of a brain bleed and I'd ideally like it gone.
I have partial right side visual field cut in both eyes due to a stroke (see my visual field test scans $1) If I am to have the surgery I will have a full right side field cut which is permanent. Craniotomy is my only option for treatment, I've thoroughly explored all other options.
Although I am already partially sighted, I'd like to know of people's experiences with full right side visual field cut in both eyes (see this $1) . How has it impacted your career? Independent day-to-day life? Ability to walk and use public transport alone? Reading and using a computer? Social activities? Ability to see and recognise faces?
I am too visually impaired to drive so don't really need advice on that one but would be great to learn from others experiences :)
I have partial right side visual field cut in both eyes due to a stroke (see my visual field test scans $1) If I am to have the surgery I will have a full right side field cut which is permanent. Craniotomy is my only option for treatment, I've thoroughly explored all other options.
Although I am already partially sighted, I'd like to know of people's experiences with full right side visual field cut in both eyes (see this $1) . How has it impacted your career? Independent day-to-day life? Ability to walk and use public transport alone? Reading and using a computer? Social activities? Ability to see and recognise faces?
I am too visually impaired to drive so don't really need advice on that one but would be great to learn from others experiences :)
impablomations 3 points 2y ago
I have left side (also from a stroke) and tbh apart from the driving thing, I can still do everything I could before, just with some adjustment.
For gaming & general computer use, I use a square monitor a little further away than I did before so i can see more of the screen.
I use a guide cane (like a long cane but shorter) to avoid bumping into things on my blind side.
> Independent day-to-day life
Still more than capable of cooking and housework, doing everyday things I did before.
>Ability to walk and use public transport alone?
No reason you can't do these either, you just have to be more aware that you are missing vision on one side so extra careful when crossing the road, etc
>Social activities?
Same as before. If I'm in a pub or something, I just make anyone I'm with is sitting on my good side. So if you're all sitting at a table, don't sit where everyone is on your blind side.
For gaming & general computer use, I use a square monitor a little further away than I did before so i can see more of the screen.
I use a guide cane (like a long cane but shorter) to avoid bumping into things on my blind side.
> Independent day-to-day life
Still more than capable of cooking and housework, doing everyday things I did before.
>Ability to walk and use public transport alone?
No reason you can't do these either, you just have to be more aware that you are missing vision on one side so extra careful when crossing the road, etc
>Social activities?
Same as before. If I'm in a pub or something, I just make anyone I'm with is sitting on my good side. So if you're all sitting at a table, don't sit where everyone is on your blind side.
jek339 1 points 2y ago
Late to the party here, but I also have a full left side cut from a stroke, and my experience is similar. Reading is a bit tougher for me - I mostly read ebooks now and keep the reader in my functional field, which helps.
Chemical-Key [OP] 1 points 2y ago
Thank you so much for your response. I've found it really difficult to find people with homonymous hemianopia to talk to.
This is really helpful. This is re-assuring since I already do most of these things since becoming VI. Hopefully wouldn't be too huge of an adjustment.
I'm most anxious about how losing my remaining RHS central vision will affect my reading and how hard it will be to adjust. From research online, it looks like I won't be able to see a full word by itself, only half a word? Did it take a long time learning? (I know it's still differant since your LHS and I'm RHS but still).
This is really helpful. This is re-assuring since I already do most of these things since becoming VI. Hopefully wouldn't be too huge of an adjustment.
I'm most anxious about how losing my remaining RHS central vision will affect my reading and how hard it will be to adjust. From research online, it looks like I won't be able to see a full word by itself, only half a word? Did it take a long time learning? (I know it's still differant since your LHS and I'm RHS but still).
impablomations 1 points 2y ago
My guess is that reading might be a little easier for you, since reading is left to right so you'll be able to follow a word along as you read it.
My main trouble with reading is with smaller text as I also have Charles Bonnet syndrome (also because of stroke) and it overlays geometric patterns over everything. I find using my phone as a digital magnifier for things like menus works pretty well.
My main trouble with reading is with smaller text as I also have Charles Bonnet syndrome (also because of stroke) and it overlays geometric patterns over everything. I find using my phone as a digital magnifier for things like menus works pretty well.
Chemical-Key [OP] 1 points 2y ago
I had Charles Bonnet syndrome directly after my stroke too. Mine stopped after bout 12 days but it made me super nauseous. Im hoping it doesn't return if I have this surgery.
Do you have it on your blind side only so instead of nothingness it is replaced by patterns but your right side is totally unaffected?
My neuro-opthalmologist told me it is very rare for people with homogenous hemianopia to have Charles Bonnet and he was really surprised.
Edit: spelling corrections
Do you have it on your blind side only so instead of nothingness it is replaced by patterns but your right side is totally unaffected?
My neuro-opthalmologist told me it is very rare for people with homogenous hemianopia to have Charles Bonnet and he was really surprised.
Edit: spelling corrections
impablomations 1 points 2y ago
Blind side is nothingness, while the Charles Bonnet is on my sighted side.
During the day or in a well lit room it's not too bad, but in a dark room or outside at night it's pretty much all I can see. I looks like the inside of a kaleidoscope you might have had as a kid.
During the day or in a well lit room it's not too bad, but in a dark room or outside at night it's pretty much all I can see. I looks like the inside of a kaleidoscope you might have had as a kid.
[deleted] 1 points 2y ago
[deleted]
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