Has there ever been a time where you've felt useless, how do you deal with it?(self.Blind)
submitted by ChipsAhoiMcCoy
There has been so many instances in this last year where I've felt absolutely useless during certain circumstances due to my disability. I have LCA (Leber Congenital ameourosis(?)) which is basically a more severe form of Retinitis Pigmentosa. I'm losing peripheral vision, and it's working inwards. I love playing games, but for the past two years or longer I've just felt so useless when i play with my friends. I'd use another example, but I'm currently in college and haven't worked quite yet, but I'm sure I'll encounter this later in life as well, so I'm trying to find some ways to deal with this right now so I don't have to do it with more important stuff in the future. But for example whenever I'm playing a game with friends, and there's going to be a very visual part up ahead, and they just tell me "Oh, you stay out here. We will do this and you can just join after." and I just sit there outside doing absolutely nothing while I hear them having a blast wishing I could do that same stuff as well.. Or while I'm playing a game with my friends and my girlfriend, and something happens to her and she starts getting attacked by something in the game, and she needs help from someone, and the first person who she calls for help isn't me, it just makes me wish that I had better vision because I know that's why she didn't call me over the other person either.. I'm just starting to feel totally useless, like I'm just tagging along for the ride and other people are just keeping me there for comedic value and jokes that I bring sometimes but it's starting to get depressing. And I know why they do it, but they will never come out and say it obviously because they want to be nice. But when my girlfriend doesn't ask for my help and instead asks my friends, I know it's because she thinks I probably won't be able to help her. And when my friends tell me to wait outside, they probably just know I'm going to struggle and stuff, but I want to struggle.. I just want to at least be there when we get stuff done.
The way i silently get treated is honestly worse than the illness itself and it hurts
aiiishh9 points2y ago
Gaming is supposed to be fun. I empathise with you because I really want to be good at games to play with my boyfriend, but we can still have fun together. It's just a different experience for each of us. Playing with me is not the same as playing with his friends alone for example. If you want to struggle, communicate that. Your friends are probably uncomfortable with seeing you have a hard time and don't know how to handle it. They don't want to make you feel bad, and are doing what they think is right or think you want. The only solution is to communicate what you want. I know some people take gaming very seriously and if they would rather win or perform well than be accommodating to play with a friend, then that's a whole other issue. It sounds like they are supportive though.
People don't understand because they only know what they see and we only know what we see. The only way to bridge the gap is to communicate! A skill I am trying to work on, I am tired of silently hurting or feeling less than for something that isn't within my control. Not sure if this is helpful, but I definitely get where you're coming from. I struggle with the same things you mentioned.
Fridux8 points2y ago
I feel useless too, because I live off disability benefits and no longer pull my own weight. I know it's possible, but can't find a way to be productive enough to be an asset to anyone, so I stay at home coding to distract myself from blindness.
I used to be dependable before going blind, so while I've never been through anything similar I can empathize with your feelings when your girlfriend asks someone else for assistance.
My life is currently suspended until I either regain sight or die, and my only interest at the moment is in keeping up with technology so that I can be competitive in the job market if I ever regain sight. I know that this isn't the right way to tackle the situation, but at least I'm not suffering at the moment as I'm keeping myself busy.
earthgrl172 points2y ago
@Fridux good to hear that you are staying active and up to date in the Tech world. I am a IT professional, although not technical enough anymore to code well. I am fully sighted, but my dad who has glaucoma has very low vision but still loves his laptop, smartphone, iPad etc... I struggle with evaluating devices and apps for folks with low vision but are technically competent. Have you considered starting a podcast/online reference site of some sort to share out what you have found to be helpful and invite the tech community to participate?
Fridux4 points2y ago
I'm not much of a content creator, because I do not like exposing myself. That said, after someone else posted a video of themselves using Logic to create music, I've been considering uploading a series of videos of me coding a simple accessible iOS video-game (yes, video, with 2D and 3D graphics as well as screen-reader integration). The idea is to show everyone how easy it actually is even for a blind guy, and hopefully inspire others, both sighted and blind, to invest time into learning software engineering. However I don't know when and whether this will actually happen since I'm currently busy working on two projects, but if I ever find the time to make the videos, which I really want to, I will certainly post them here.
divgirlarb1 points2y ago
Oh, yes please do that !
I'm also a VI recent computer science graduate.
I feel like you have so much to offer, as you seem quite experienced.
Is it ok if I dm you?
Fridux1 points2y ago
Sure, no problem!
[deleted]1 points2y ago
I agree with you 100% I don't know how people are so comfortable living with a disability.
grinchnight141 points2y ago
Well it's normal cause I've never had vision ever. Seeing just sounds hard, like there's yet another thing to focus on.
divgirlarb1 points2y ago
sad, but true. Like i was born with a disability. I'm 22 yo and still can't accept myself as VI :( it's reaalllyy hard to constantly having to ask for help. not being fully independant abs break my heart every sec.
[deleted]1 points2y ago
[deleted]
[deleted]7 points2y ago
Fuck, I feel your Payne, and I don't even know you. Honestly, this is the reason my social circle is so closed. I hate feeling like this, so I'd rather be an introvert instead.
BexTheMixer2 points2y ago
Same!!!!
divgirlarb1 points2y ago
sameee
eddie_the_shit4 points2y ago
I'm getting this myself in recent years. I get frustrated as hell that I can't help my elderly parents as much as I want to, and usually end up needing help from them instead. I feel like a pet rather than a relative. Disability involves putting a lot of trust in others and it *suuuuucks* to be on edge about trusting people's motives for being nice to you. I don't know what to tell you to do because I haven't figured it out either, but I wanted to empathize nonetheless. (It just occurred to me that, in doing this, I feel somewhat useful.)
divgirlarb2 points2y ago
I soo get you with wanting to help your elderly parents. to a point I feel like a burden on them :(
it hurrrrts
BexTheMixer3 points2y ago
It's not so much that I feel useless, though that is a very real thing for me as well, as it is that I feel like a burden. I have siblings and cousins around the same age as me (in our twenties), and we love to play games, both indor card games and outdor sports. I have Braille card games, but what makes me feel like a burden to them is when we play something like spoons and they always put a spoon slightly closer to me so I can have a better chance of grabbing it. And when we play sports, I don't really do much except hike or throw my brother the ball and watch everyone else play and laugh and have fun, wondering what's happening and who's winning. I just stand there not doing anything except when my brother plays that side game with me of throwing the ball back and forth. He says I'm not a burden, and that they all like playing with me and are happy to adapt games for me, but I can't help still feeling like it. I feel bad whenever they have to adapt games, even it's just the tiniest little thing. I also wish I could get more volved with them when they play sports. I hate just standing there and "watching". By the way I put watching in quotes. Sorry for this super long rant, I just want you to know that I totally get you. Oh, I also feel super useless/awkward whenever I eat with utencils, especially if I'm with sighted people, and especially if those people are my blind teachers or people I don't know well.
TodesKoenig3 points2y ago
Totally blind here and I can empathize with you. Over the last five years that I’ve been completely blind, I’ve felt more and more useless since I don’t contribute to the household in whatever ways I used to. I feel like people close to me are much more content and not being around me because of my blindness since they don’t have to worry about talking to me or being familiar with me. I’ve also sensed that more of my friends quickly distanced themselves from me since I don’t get the calls or texts from them like I used to. I also feel like if something happened to me that removed me from their current lives, some of them would not miss me at all and some of them would be relieved to not have me around anymore. It absolutely fucking sucks to hear the one person you love the most in the world tell you that sometimes doing the simplest things with you are not really worth doing because of the added difficulty of including me in said activity.
DCL_JD2 points2y ago
My dog went blind. I paid thousands of dollars for expensive eye surgery and his vision still never came back. Things were rough for a while sure, doing the things we used to do became more and more difficult. He passed away not long after and I often wonder if he felt like he was becoming a burden to me. I feel like I could’ve done more for him if I had just known more about blindness and worked harder to improve his quality of life. I would be lying if I said I never felt like taking care of him was a chore, because at times I did, but not a *single* day goes by that I don’t think about him or miss him or wish we could do those things together just one more time even if they were becoming more difficult for him. I loved him even when he was blind just as much as I loved him when he could see. I’d imagine your friends and family feel the exact same way to an even greater degree. They absolutely love you, and if I had to guess, they just aren’t sure what things to do with you or alternatively want to avoid making you feel handicapped by trying something new with you that maybe doesn’t work out so well with your disability. You should search for something new to try and invite them to join you instead of hoping for them to invite you to something. Trust me, as someone who can see I’m not sure what type of things my blind friend would be comfortable doing or even what would be fun for them to do. I’m also sure there are some things that you would still like to try out in life and these are the things you should ask them to experience along with you. Trust me, you’re not a burden but when you’re not blind it’s hard to think of the things that a blind person would enjoy doing.
siriuslylupin61 points2y ago
My best advice they all suck find some better friends. When you go blind you learn who your friends really are.
AnElusiveDreamer3 points2y ago
This hits very close to home. I also have LCA and can understand how you feel. Losing vision gradually over time really sucks, especially when it interferes with doing activities you once enjoyed. It can be so alienating and lonely.
divgirlarb1 points2y ago
I so relate to this
tresgregory3 points2y ago
This hit home. My advice is to just have fun honestly. I have RP and it's really hard for me to see video games. Everything is too dark and moves much too fast. Even though I absolutely suck, I make it a point to play with my friends. In my opinion it's not at all about winning. It's about having fun! I may get 2 kills and 27 deaths in Call of Duty, but I'll have a blast doing it!
bradley223 points2y ago
I usualy put on music or audiobooks or videos when I feel down.
the-cat15132 points2y ago
The truth is that during the past year and the current one I have felt vastly useless.
First, since the quarantine began, my university began to use an online class model, to which I could not adapt.
Then, due to the lockdown, my ex-girlfriend ended our relationship due to distancing issues (she lives 18 miles from me) and while before the confinement I could see her almost every day throughout the previous year, the public transport service was not possible. it was restricted to essential workers.
Also, since I live in a third world country (Argentina) I don't have access to as much technology as in other places, nor to so many job opportunities. Thanks to discrimination and several other factors, I am unable to access any job that does not require studies or training that I cannot afford.
An example: here many people my age earn money working for food and delivery companies, but this requires sight. It hurts to see advertisements on the internet and on TV, in addition to the comments of many people on social networks, that with your cell phone and a bike you can start to get ahead. It's not those people's fault, just my disability.
I am much further behind than my brothers, for example my twin brother managed to get a scholarship and a job in Spain starting as a cook at McDonalds.
And to make matters worse, I can't go to train Brazilian jiu jitsu, which was my favorite activity.
And well, on a small note, I cannot collect the disability benefits offered by the state without losing other services that I need, for a reason that is a bit complicated to explain.
my social circle is and was insignificant. As time went by, I lost friends because they were immersed in their interests, things in which I could not follow them. During the first half of last year, my ex-girlfriend was almost my only contact, until what I mentioned above happened.
I live in my parents' house, and because of how the country is and because of my lack of money and work I suppose it will continue like this for a long period of time.
I honestly feel like shit, and I don't know how to get out of the well.
Sorry for the length of my answer and the grammatical errors, English isn't my native language.
I forgot to say it, I am totally blind, I have no visual remains.
grinchnight141 points2y ago
I just know there will never be another me, and that if I was to suddenly die, my friends' lives would be a lot worse, I wanna be sure everyone around me that I care about is happy, and I can't do that if I just feel useless.
Sometimes I feel like I'm just not worth anything, but then I remember that I want to be remembered when I pass, and I'm not gonna get there if I sultk about the fact I can't do anything, when really I just need to realise I can do things, I just need to do them and show what I can offer the world, and eventually my YouTube fans when I get ooff my ass and start uploading again
siriuslylupin61 points2y ago
Have you tried being assertive about maybe I want to join you guys and I want to play the visual parts and struggle or ask your girlfriend to ask you about those things?
BuddyIntelligent45101 points2y ago
Just a question. what are ur opinions on neuralink and Elon musk stating that they will be able to cure blindness? Would you want that yes or no? ( the reason I’m asking this is because someone on tiktok claimed the blind community wouldn’t be okay with this, so I came to ask) (I apologise if the words I used were a bit insensitive )
[deleted]4 points2y ago
I don't want to be that guy, but, to me, anything Musk says should be taken with a huge block of salt.
siriuslylupin61 points2y ago
No there was a thread on here about over stimulation. And if you regain sight you need to learn how to use it it can be very stimulating and can be too much.
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