Blind and Visually Impaired Community
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Recently lost all vision (self.Blind)
submitted by aswim01
Hello!
Little background I recently lost all my vision including light perception after having Brain surgery/a brain tumor. I sometimes get weird flashes of light that are purple and sometimes green.
Now I know I’m not really seeing anything but is it possible it’s my brain trying to make sense of losing all my sight?
Thanks! :)
Little background I recently lost all my vision including light perception after having Brain surgery/a brain tumor. I sometimes get weird flashes of light that are purple and sometimes green.
Now I know I’m not really seeing anything but is it possible it’s my brain trying to make sense of losing all my sight?
Thanks! :)
UnsightlyOpinions 14 points 2y ago
It’s a condition called Charles Bonnet Syndrome. I get those flashes too. :) I consider them my internal lava lamp of neon blobs that only I get to enjoy. In short as your retina is used to sending signals and your brain is used to receiving them but since you are getting neither your brain is trying to fill the gap for you. Medically they are classified as hallucinations from your brain and retina not understanding you can’t see. Some people see shapes, figures, warping of spaces or flashing lights. It may stick with you or fade over time.
Marconius 6 points 2y ago
That's called the $1 and it is indeed exactly what you think it is. Hallucinations that occur after vision loss as the brain adjusts to no longer having any input coming into the vision center. I lost my vision very suddenly back in 2014 from a retinal arterial occlusion, and I had this syndrome for a few months. I'd "see" a fiery red-orange circular field in the center of my vision, or sometimes it would be a bright electric blue. I'd wake up from very vivid dreams that had one of those colors feature very prominently in them and it would take a while for the color field to fade away.
It's harmless and nothing can be done about it, so you just have to ride it out.
It's harmless and nothing can be done about it, so you just have to ride it out.
siriuslylupin6 3 points 2y ago
Even years after vision loss? Just wondering I am not concerned just really fascinating. I’ve never told. Anyone because I thought people would deem me weird or odd. I actually find it sensorially fascinating and have moved my head to follow them before. Even putting some imagination in it. While it happens. Sometimes it’s these flashing lights that move and dance and shift. It’s definitely lessened in the last 5 or 10 years. But yeah.... but I still see light when there’s no vision and such. Even very bright light.
DrillInstructorJan 1 points 2y ago
I've been told that if it isn't recognisable objects it's not CBS but I wouldn't argue with anyone, it's just a term. I see random patterns and lights and I'm 20 years in. It was very very bad for the first year or so, then it became less and less to about one night a month where it keeps me up, and that's basically where it's stayed.
I credit it to the fact that I still remember a lot about sight in a way that some people don't seem to. I know what light looks like, I know what colour looks like, because I still see it, even though it's nothing at all to do with the world.
I credit it to the fact that I still remember a lot about sight in a way that some people don't seem to. I know what light looks like, I know what colour looks like, because I still see it, even though it's nothing at all to do with the world.
siriuslylupin6 1 points 2y ago
Ah, I see one wonders what it is it’s never objects just lights and flashes.
And that makes sense limitedly here but yes couldn’t ever see much but I am a very sensory type person and love lights and colors and stuff. I loved prisms bay windows and kaleidoscopes.
And that makes sense limitedly here but yes couldn’t ever see much but I am a very sensory type person and love lights and colors and stuff. I loved prisms bay windows and kaleidoscopes.
DrillInstructorJan 5 points 2y ago
This is pretty normal. A friend of mine lost her sight after surgery for a brain tumour and describes exactly the same thing. I see red and green which is less common apparently, but it's pretty normal stuff.
Sometimes for me it builds up to a really powerful light show that can totally stop you sleeping and is a real migrane inducer but if that hasn't happened for you great!
Sometimes for me it builds up to a really powerful light show that can totally stop you sleeping and is a real migrane inducer but if that hasn't happened for you great!
siriuslylupin6 3 points 2y ago
I get them too I am very sensory so I like them they’re kind of neat hahaha! Sometimes I think I see lights and sometimes they move in weird patterns. I know I don’t see anything but they are sensorily fascinating.
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