Everyone here has shared some great things. I would add to take care of your mental health as you start to lose your sight. It is an unknown process as
It is different for everyone. I was diagnosed at 9 and it has slowly gotten worse over the years, and now in my 30s I’ve noticed that it is really getting bad. I also have met someone who was a doctor in his late 30s when he was first diagnosed and he had only just stopped driving. But In every case, it is degenerative and it can be hard to continuously grieve as you slowly lose things.

It can also feel isolating because it is hard to explain what our vision is like. I could function easily in some situations, then need a lot of help in others. And I can’t always tell someone what level of help I may need until I need it. I’ve had people in my life who would get annoyed at me needing help because they didn’t understand. On the flipside however, I’ve had others who have been the best of supports for me and could almost anticipate what I would need sometimes. However, no one but another who has RP ken truly relate.

To my RP folks, you all know the annoyance of yellow caution signs and family members leaving the dishwasher open, am I right? 😉

Learn how to use a white cane, if you aren't already. It'll be an extension of your arm, your eyes, your mind, and your soul. Wield it, and cherish it, as if it has magical powers, because believe me, it does.

And what NiftyPineapple said---Molly Burke on YouTube is wonderful. Check her channel out.

I have rp. Always wear sunglasses around the sun, no matter how brief. Don't put anything on the floor you aren't ok with accidentally kicking. Get a nice bright flashlight you can carry with you especially at night.

That is all.

I have RP as well. There's basic information about RP, which I'm sure you've Googled. RP is a fairly slow moving disease, if you're diagnosed as an adult.

For example I was diagnosed in 2000, and I've been legally blind for about 7 years now. I'm only now moving to accessibility software and have a white cane I would start using in a Winter commute when going to work via bus in the dark (except COVID has changed things).

A good place to start is to understand where your vision is right now. They ran tests when they diagnosed you and would be able to tell you your field of vision and acuity. That's a great starting place.

You could very well have many years of just monitoring the condition. That's the case my siblings are in.

I gave up driving a dusk or night shortly after being diagnosed, because I didn't think it was safe for other people. ;-) And I just worked my life around that.

Ask to get a genetic test. There is a new treatment for one specific gene that causes RP and other retinal diseases. I got the test and qualified for the treatment. Its called Luxturna. Your chances of having this mutated gene is low but I think its worth a shot especially since you jjust got diagnosed and still have decent vision. The sooner you get the treatment the better outcomes there can be. I dont want this to sound like im dangling false hopes in front of you but I think its worth a shot.

My vision was pretty okay until the end of middle school and its been getting worse since. That is when I started having trouble reading and doing my school work. But I kept it a secret from everyone. This lead to me almost failing some classes in high school. My tip is to be open with your family and friends and teachers about vision and struggles you have so they can actually accomidate you. There are so many tools out there to help people with low vision that I know probably wouldve helped me a lot in high school. I know its so temptng to keep it a secret because you may feel embarrassed or weird but trust me if others know it helps a lot. Dont be like me standing around in gym class looking like a moron getting hit in the head when we had to throw a ball back and forth, or missing every tennis or badminten hit lol. I really made a fool of myself for the sake of not telling anyone I couldnt see.

Also make sure to regularly see eye doctors and low vsion specialists. One of my biggest mistakes was that during high school i didnt see an eye doctor until the end of Senior year while as a kid I saw eye doctors pretty frequently. Aftet that I didnt see a doctor for 5 years because I didnt think/know they would be able to help me at all. I also recommend getting a therpaist or counsellor. Because I often felt depressed because of having RP.

Some people find Molly Burke helpful in the beginning. I have zero night vision - it's really important to start acting now to just make your environment more supportive for you. You can get plug in lights from amazon that will activate when you walk past them- they're useful for getting up during the night and maybe forgetting to turn on a light switch. Familiarise yourself with screen brightness and voice over options on your phone and computer. Absolutely do not drive or cycle at night or at dusk with night blindness - it's too dangerous. Get to know your local transport routes and carry a torch on your keyring, it gives you more of a sense of security when you are walking on foot in poor lighting and at night if you need to. Never be afraid to ask for help. Call your local supports and ask about disability funding and resources, government websites with aid details etc.
You will be OK it's just a case of learning a bunch of enw skills 😃