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Blind and Visually Impaired Community

Full History - 2021 - 04 - 05 - ID#mkskan
37
One Year Since I Was Blind (self.Blind)
submitted by zjuy
Hi, it's been a very long and tough journey to get here writing this post. Mostly because I have experienced a lot of fear and trauma and could not face this head on.

Last year in January, I turned 21 and I got diagnosed with severe cataracts (steroid cream got into my eyes). It went fast and it went deadly, doctors have stated it was extremely aggressive. The wave of COVID-19 surged in my city and everything locked down, my surgery to remove my cataracts was delayed until further notice.

I was so damn scared because I was slowly losing my sight, I had fear every single day. I got so paranoid and afraid I tried to get an emergency appointment at a very good hospital with an Ophthalmology department. I told them I felt scared and something was wrong, I didn't want to become blind just because my elective surgery got delayed. I needed an emergency surgery. The doctor at the hospital made me wait hours, only for them to tell me he forgot about me. I'll never forget waiting in the room just crying and panicking all alone.

The doctor came to me and said, you aren't going to become blind don't worry go home, wait for things to reopen. I became legally blind from late April till early July, could not see at all. I suffered a lot last year. I got my surgery, but I lost one eye permanently due to a retinal detachment (cataract was untreated for too long). I experienced so many different emotions, grief, anxiety, panic but also release and happiness. When I could see the outside world again, I was so fricken amazed how green the trees were and how the sky looked. I had a new outlook on life.

Afterwards, I refused to associate myself with being blind, searching stuff up on it, finding resources, etc. but I have finally come to accept it. I realize that I have developed some sort of ptsd with sounds and light because of this. I just wish that I had more help... I went to a retina specialist and he kind of just said yeah its too late and I didn't know what to do. I felt that if I confronted this issue and I started coming to terms with it, I would somehow manifest losing my other eye or something bad would happen.

Regardless of all that has happened to me, I realize that I am lucky to be able to see in the other eye (not the same as it will ever be). This experience has taught me so much, but one thing I will always remember. Life is too short to not do the things you want to do and be the person you want to be. It almost made me euphoric, I am no longer a bitter person or holding grudges or waiting for the right moment at the right time. I realized I did not want to waste another day of my life, waiting for a better moment in time or not taking care of my body. I could die well before I lose my other eye, and I don't want to say at the end of my life that I didn't do anything.

In the span of the year I went blind, lost my eye, went through surgeries, and suffered in ways I never thought I would... I managed to get my dream job, move out to a condo, and doing well overall. I'm coming up on a year since it happened, I am still trying to adjust and learn. I told my story a couple of times on Reddit and to people I know, everyone says get a lawyer and sue the hospital or find legal action because they denied me help and I lost from it. After all of this, I just didn't have the want to take that action against them. Lots of people were denied help, it sucks I got caught in the crossfire but I certainly did not want to re live it in court. All I wanted to do, was move on and live a better life.

I hope to be apart of this community and learn a lot, hopefully find some sort of counselling or help to my situation. If you have any idea, I would be eternally grateful. Thank you for listening or reading :)
Only1lunatica 5 points 2y ago
hey I just wanted to say thank you for sharing, you have gone through a lot and sharing that is a good first step to move forward with.

I hope you find answers here but I would always recommend a professional (eye doctor or psychologist) we can only do so much :)

you will learn how to deal with it at some point, humans are creatures of habits so with enough time it will just be normal. keep trying things, if you don't feel comfortable with it because of you new impairment that's okay, that's learning, it's figuring out ones limits, and limits are moveable if you're not afraid of trying things out, which it sounds like you're ready to do, so good luck and I wish you all the best.
MostlyBlindGamer 5 points 2y ago
What a rollercoaster.

I had a major surgery delayed by at least 6 months and had to have an entirely different emergency surgery last year.

A lot of people had cancer and other life threatening conditions go undiagnosed.

It's been brutal.

Anyway, seeing better is pretty exhilarating. I'm glad you got to experience that, even if you didn't get back to where you were before.

Welcome and feel free to jump into any conversation or ask any questions.
notcheska 2 points 2y ago
I’m crying because this is a very similar story to mine-

Due to COVID & the negligence of some health care providers and my eye surgeries being an “elective” one I have lost vision in one of my eyes and adapting to this life has been so hard-

I also have PTSD from my surgeries and my conditions, and example is when I was on the dentists table I had a little episode because I thought I was going under again lol 😭


It’s hard to explain to people how it feels, how to talk about it to people, but despite it all you’ve done it ❤️

I’m extremely proud of you. Thank you for sharing, truly :,)
TheBlindCreative 2 points 2y ago
Hi. Thank you for sharing your story. On the psychological side of things, I would try finding a therapist that specializes in working with people experiencing chronic illness, disability, and/or medical related PTSD. If you are having trouble finding a therapist with these specialties, I would ask your doctor for recommendations or for a referral to a medical social worker of the hospital who might know of a mental health provider who can meet your needs.
K-R-Rose 2 points 2y ago
It sounds like you had quite an experience. I can’t say I know what that’s like, but I completely understand the fear of feeling helpless as a blind person. I’m also blind in one eye, and honestly, I don’t even notice. It doesn’t effect my life at all (except I bump into people on that side lol). I’m sure it feels like a loss, but honestly, it’s like your appendices. You really don’t need second one anyway. I try not to get hung up on it because it’s not preventing me from living a full happy life. I’ll just live my life as a proud cyclops lol
Thatoneperson37892 1 points 2y ago
Your at strong and inspiring 💕
exoticbleep 1 points 2y ago
❤️❤️❤️❤️❤️❤️❤️
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