I have bilateral, precursor lesion of idiopathic Choroidal Neovascularization. I had multiple thorough examinations, scans and photos taken of my eye. I'm being under observation in a very good student hospital in Seoul where I live.

My case is I believe quite unique... because I'm not myopic, I don't have a family history of eye disease, and never had any eye problems. To add to this, my CNV got bad overnight in September last year (wavy vision in one single spot in left eye, could not see objects or read text completely straight even with both eyes open, despite only left eye producing symptoms), got a little better for a couple weeks, got even worse a month later, and after about a month the symptoms has subsided almost completely, and my vision still remains 20/20, with a very faint, unnoticeable wavy vision in my left eye. I've had all the necessary tests done 3 times, which showed the movement/"natural progression" of the lesion, but no growth or leaks so far. My left eye is a lot more affected than my right eye, which remains mostly clean.

My prognosis is total unknown, I could keep a perfect sight for the rest of my life, or need eye injections next week.

However, I believe there's some change for the worse again (just this past week, I had scans 1 month ago and there was no change since October) and I think it's related to alcohol consumption but it's something I can't verify anywhere.

I'm in the dark with this disease and I'd love to reach out to other people who might have it and to have access to a variety of sources on the topic. I'd especially love to read experience of people who have CNV, how it progressed, their treatment results, and maybe some reassurance too ; ;

I'd love to talk to someone about it.