Blind and Visually Impaired Community
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Changes in my visual field driving me crazy. Anyone wear an eyepatch? (self.Blind)
submitted by B-dub31
I have severe optic nerve atrophy in both eyes. I’m functionally blind in my left eye—I see light and color but extremely little to no detail at all. My right has static and floaters in my visual field as well as blind spots around the periphery. I’ve noticed that I’ve begun seeing a “shimmering” area in my visual field now that is visual input from my left eye. I used to see nothing out of my left eye when my right eye is open. Now, when I close or cover my left eye, the shimmering goes away. I’m of course going to contact my ophthalmologist, but I’ve considered wearing an eyepatch over my left eye until I can get in to see him. Anyone else here have a similar experience or any suggestions?
ScatheX1022 1 points 1y ago
That sounds like a really good temporary solution, did you try it?
I can relate almost exactly to much of your eyesight, I can't believe I found someone who sees similarly to me! It's pretty exciting, honestly. I also have optic nerve atrophy, i had a benign brain tumor removed from my cerebellum, the massive intercranial pressure is what caused the damage. I am also legally blind in my left eye, though I have some vision - details are almost impossible. My right eye is low vision, 20/60. Visual field is limited in both eyes, have blind spots. Also looks like I'm looking through TV static, never stops or changes. Sometimes I get sparkly dots here and there, they come and go. Reading things on a white background is really hard.
Let me knew how you're doing 🙂
I can relate almost exactly to much of your eyesight, I can't believe I found someone who sees similarly to me! It's pretty exciting, honestly. I also have optic nerve atrophy, i had a benign brain tumor removed from my cerebellum, the massive intercranial pressure is what caused the damage. I am also legally blind in my left eye, though I have some vision - details are almost impossible. My right eye is low vision, 20/60. Visual field is limited in both eyes, have blind spots. Also looks like I'm looking through TV static, never stops or changes. Sometimes I get sparkly dots here and there, they come and go. Reading things on a white background is really hard.
Let me knew how you're doing 🙂
B-dub31 [OP] 1 points 1y ago
My atrophy was caused by a blood clot in my brain which caused intercranial hypertension. It snuck up on me and then it took them six months to find. Our vision sounds very similar. I see flashing dots of various colors often too, especially when I'm startled. I have a little patch of good vision around the 2 o'clock position. I'm thankful for it, but it's not great.
As far as the shimmering goes, I've just been dealing with it. My neurologist thinks it's a drop in acuity in my right eye and my brain is compensating, but he said he'd defer to my ophthalmologist. I had to reschedule my appointment to next month so I'll give you a holler and let you know what he says after my alpointment.
As far as the shimmering goes, I've just been dealing with it. My neurologist thinks it's a drop in acuity in my right eye and my brain is compensating, but he said he'd defer to my ophthalmologist. I had to reschedule my appointment to next month so I'll give you a holler and let you know what he says after my alpointment.
ScatheX1022 1 points 1y ago
Do you mind me asking if you drive or work? I'm going through a real struggle with that right now.
B-dub31 [OP] 1 points 1y ago
Unfortunately, I've not been able to drive for about five years now. The job I had in public safety required me to drive, so I had to resign. I've been on disability since then, mainly because where I live doesn't have good enough public transit. We were going to sell the our house and move, but the pandemic put that on hold.
ScatheX1022 1 points 1y ago
You have no idea the glimmer of hope you just gave me - seriously. I just applied for SSDI last week and I'm terrified they're going to deny me. I mean, from what I've heard they deny pretty much everyone ans then you need to appeal, but they're basically my last hope.
I also live somewhere with no public transportation. I'have worked with kids (in special education, as an assistant) most of my adult life, able to find jobs within walking distance from my home in schools and childcare. I have walked to and from work everyday, taking rides where I can but nothing reliable. My SO drives me when he can, but he works full time. I started a new job in March because my old job of 6 years was closing because of Covid. The walk doesnt have a sidewalk for half the walk, and I have to deal with crossing a huge intersection with limited vision and no sounds ti help at the crosswalk. I tried to make it work for 6 months, and I just couldn't do it anymore, I left mid August. Between it being so unsafe and the fact that I cant do that walk in the winter anyway (I live in Maine, winters are awful) I didn't see any options.
Sorry, thats a lot of info. I've been so stressed out about everything lately. SSDI is my last resort. I've looked for remote jobs and found nothing, there's no Uber since Covid (not that I could afford it anyway) and the voc rehab here is no help with transportation. So, yeah., Sorry to hijack your thread!
I also live somewhere with no public transportation. I'have worked with kids (in special education, as an assistant) most of my adult life, able to find jobs within walking distance from my home in schools and childcare. I have walked to and from work everyday, taking rides where I can but nothing reliable. My SO drives me when he can, but he works full time. I started a new job in March because my old job of 6 years was closing because of Covid. The walk doesnt have a sidewalk for half the walk, and I have to deal with crossing a huge intersection with limited vision and no sounds ti help at the crosswalk. I tried to make it work for 6 months, and I just couldn't do it anymore, I left mid August. Between it being so unsafe and the fact that I cant do that walk in the winter anyway (I live in Maine, winters are awful) I didn't see any options.
Sorry, thats a lot of info. I've been so stressed out about everything lately. SSDI is my last resort. I've looked for remote jobs and found nothing, there's no Uber since Covid (not that I could afford it anyway) and the voc rehab here is no help with transportation. So, yeah., Sorry to hijack your thread!
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