I am brand new to this group and also have pericentral RP due to Ushers syndrome. I'm in my late 30s and was only just diagnosed about 3 years ago; my vision started to deteriorate in my early 30s (much later, of course, than most people with RP/Ushers, except for my two older brothers who also didn't start showing symptoms or get diagnosed until their 30s or 40s). Anyway, the reason I'm commenting is first of all to say hello as a fellow pericentral RP person, but also because I am starting to feel the fatigue you describe. My vision is still \~okay\~, like I can drive during the day but I evaluate my performance literally every time I get behind the wheel because I know my driving days are coming to an end and I want to be the one to make the decision rather than waiting until something bad happens. Anyway, I've been struggling a lot the last few weeks with the fatigue that comes from just working a full-time job, and going grocery shopping, and trying to learn and enjoy playing new video games, and keeping my living space relatively clear of things I could knock over and break or spill or whatever. So no, I don't have much advice that hasn't already been given here (thank you, other commenters!), but I wanted to commiserate and let you know that it's really cool that you work as an ophthalmology technician trying to help other people with vision impairments.

I'm not sure if this is really what you're asking about, but if you're talking about the fatigue of just dealing with not being able to see what you're doing every day, oh god yes. I have often said that it's just like doing two jobs the whole time and I fall into bed totally exhausted on a busy day. When I had a full time job, I always thought that I felt on Wednesday evening the same way everyone else felt on Friday evening just because of dealing with it.

I don't think there is any way around it really. The only thing you can really do is to ensure you book time for yourself and if you spend that time having a lie in, so be it. Don't beat yourself up for being less productive on days off because you will be useless and a danger to yourself and others if you don't rest up adequately.

It is worth it though.

I don’t really have a great answer for you, but just doing little things to minimize the fatigue really adds up for me. Have you started to learn Braille? If not, I really recommend it. It won’t help you for a while, but it is a good skill to have. I am in a similar situation as you, as I have Ushers syndrome. I am a good bit younger than you, but it’s the same idea. Also, realize that your brain is working a lot harder than other people’s, so if you need a nap, or have a headache, it doesn’t mean you’re lazy or anything like that.