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Blind and Visually Impaired Community

Full History - 2021 - 06 - 07 - ID#nun21u
8
I'm not sure whether this is normal for VI people or if I should be concerned? A new thing happened yesterday. (self.Blind)
submitted by letspaintthesky
[removed]
Only1lunatica 5 points 2y ago
I can't move my eyes at all, so I move my head/body instead. though despite them being still every time I move my head (except when reading) I have to take a second to focus on what I see, lots of movement gives me headaches and drains my energy very fast so yeah I get it.

however it has always been like that for me and since it's new for you, mentioning it to your eye doc wouldn't hurt
letspaintthesky [OP] 1 points 2y ago
Optometrist or opthamologist?
Only1lunatica 1 points 2y ago
optometrist
letspaintthesky [OP] 1 points 2y ago
thanks. will do this week :)
Hallowss 4 points 2y ago
Has your vision gotten worse lately? I know I get tired quicker when my eyes have gotten worse, or my prescription is too old

I also sometimes get really tired in loud busy environments, so maybe it was just too much stimulation that day

Edited to add: did you eat enough that day? I always get like that if I haven't eaten enough.
letspaintthesky [OP] 1 points 2y ago
In the last six months of last year, I went to the optom three times-once for new readers, and twice because I thought my vision was changing. It aparently wasn't.


I'm starting to wonder if something's changing, though. But I just don't know for sure.


I did eat enough yesterday, and yes, the busier the environment, the more visually and mentally tired I get.
carolineecouture 3 points 2y ago
I definitely have the experience that things are "moving too fast" for me to process them. Happens when my husband is driving, and I'll be looking out the window and when in stores. He'll often leave me behind because I've stopped to read/process something I'm looking at. My eyes don't hurt, and I don't get physically exhausted, just mentally exhausted.
letspaintthesky [OP] 1 points 2y ago
Mental exhaustion came on along with the visual and physical. It can be really rough, can't it?
carolineecouture 2 points 2y ago
It is. I don't think my husband understands this either. He's not rushing me on purpose, but he just doesn't get it. There is an offering here in the states called "Be My Eyes" it's an app that lets you connect with a person with better vision who can assist with things like searching shelves or reading signs in the grocery store.
Agreeable_Morning_60 3 points 2y ago
I feel you. I have been getting super tired and unable to function at times because the blind “ring” around my central vision has been getting worse. Im almost to the point where looking around quickly will tire me out like you. Definitely think it has to do with our brains having to fill in gaps faster and the stimulus it has is less. Basically like trying to get a car to drive further on less gas.
letspaintthesky [OP] 2 points 2y ago
>Basically like trying to get a car to drive further on less gas.

That's exactly how it feels. Thanks for giving me words for it :)
Agreeable_Morning_60 2 points 2y ago
Sure thing, it only clicked for me earlier today haha
niamhweking 3 points 2y ago
I suppose it might depend on your condition. In the last year when I am really tired I seem to get temporary nystagmus (which I don't think is a thing but it's the best way to describe it) . My eyes bounce up and down rapidly, nothing stops it, not my will, not closing my eyes or rubbing my eyes etc.

We're you tired first and your eyes decided they were too tired or did the experience make you tired
Agreeable_Morning_60 2 points 2y ago
Have you tried bearing down? Closest action is basically like trying to poop (sorry its the only comparison I have). That triggers your vasovagal response in your body, thus relaxing all your muscles upon release. Learned it in paramedic school.
letspaintthesky [OP] 1 points 2y ago
I've had temporary nystagmus myself. Mine goes side to side :)


The experience made me tired, definitely.
Amonwilde 2 points 2y ago
You might want to try navigativing similar environments on your own at your own pace. Trying to keep up with a sighted person by doing things that they do is not going to have good results, you're sprinting in place while they're walking. There are different strategies you can use as a low vision person to navigate around and look for stuff, but they take time and space to develop. Maybe just have your mom drop you off some time and have her come back in 90 minutes, and just spent the time experiencing the place without a goal. Wander around and see how many stores and places you can identify without focusing in. You'll be surprised at what you can infer from a blur. Some brands have distinct outlines in their signs, and you can smell bath and body works or places that sell pretzels from pretty far away. Just take your time and build up some comfort with an unfamiliar environment.

What you're describing is very probably a stress response to what felt like a radically unfamiliar or hostile environment. I used to get those when I was taken to parties when I was pretty young, like 17, and it felt like an adverse environment. Your body dumps a lot of hormones and burns resources to keep up and survive in a difficult situation, and you have to pay all that back. If you can modulate your response by relaxing, that will mean you are less tired. This will likely only come with exposure and the development of skills that make you more confident.
TK_Sleepytime 2 points 2y ago
I don't know what this could mean for your eyesight but what you are describing sounds a lot like autistic shutdown due to sensory overload. The florescent lighting in shopping centers reflecting from the displays and floors really screws with my ability to visually process my environment and can be physically painful. I have been visually impaired my whole life but only recently learned that I (42F) am also autistic. If your opthalmologist does not find an answer, the issue may not be your eyes.
letspaintthesky [OP] 2 points 2y ago
I've been asked by my opthamologist before if I'm autistic because of things that happen as a response to my photophobia. Interesting thought, thank you for sharing :)
impablomations 1 points 2y ago
We can't give medical advice on this sub, please consult a Dr if you have concerns regarding your eyesight.
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