Blind and Visually Impaired Community
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Is there anyone who went through the process of STEM cells treatment for curing Optic Nerve Atrophy treatment or improving their sight? (self.Blind)
submitted by breathingMF
UltimateAtrophy 5 points 2y ago
I didn't even realize this is a possibility yet. Do you have an option for such treatment?
breathingMF [OP] 2 points 2y ago
There are different researches going on, if you search on the internet. A German, US, and Chinese institute and hospitals come up. Google: STEM cell treatment of ONA.
macadamia_owl 3 points 2y ago
Under this $1 you will get explained how currently is the state of stem cells replacement, why it's so complicated, why it's going so slow, why implanting directly into eye or bloodstream is risky or useless, why not go to China. It's from 2020.
I am from Germany, there were many stem cell "clinics" offering "treatments" for everything you wanted if you paid private hundreds of thousands of Euros. I was really interested because of other degenerative eye disease and regenerating my damaged fully blind eye to regenerate my optic nerve. We also had contacts with Japan and USA.
Many clinics were shut down not only in Germany but in Italy, Czech, France etc because the clinics were not treating properly. As for now it's all in clinical trials because of safety reasons, the cells after infusion aren't controlled into what they will change it's Russian roulette: undeveloped cells, mutated cells, cancer cells... Any kind of cells that are in body - yes i don't mean embryo cells because those are banned in Europe but cells created from your body. All of this is as clinical experiment on humans.
It's against the European medical law to pay for clinical studies as patient mountain of money for such thing, receive no long term care afterwards, no follow up for side effects, no extra insurance, no release if research papers results and statistics. All was closed no third party was allowed to check even patients doctors who later taken care of them in home country. Clinics in China are doing the same, as for now it's dangerous practice for 15 years they close one clinic new one with new name pop up elsewhere.
Singing up contract for treatment you agree to use all your data, your story for marketing: one man died disease speeded up while on stem cell treatment but clinic but his photo and story as "successful cured happy patient" for years. Family went to court but they had hard time winning this because of some tricky points in clinics policy.
I am from Germany, there were many stem cell "clinics" offering "treatments" for everything you wanted if you paid private hundreds of thousands of Euros. I was really interested because of other degenerative eye disease and regenerating my damaged fully blind eye to regenerate my optic nerve. We also had contacts with Japan and USA.
Many clinics were shut down not only in Germany but in Italy, Czech, France etc because the clinics were not treating properly. As for now it's all in clinical trials because of safety reasons, the cells after infusion aren't controlled into what they will change it's Russian roulette: undeveloped cells, mutated cells, cancer cells... Any kind of cells that are in body - yes i don't mean embryo cells because those are banned in Europe but cells created from your body. All of this is as clinical experiment on humans.
It's against the European medical law to pay for clinical studies as patient mountain of money for such thing, receive no long term care afterwards, no follow up for side effects, no extra insurance, no release if research papers results and statistics. All was closed no third party was allowed to check even patients doctors who later taken care of them in home country. Clinics in China are doing the same, as for now it's dangerous practice for 15 years they close one clinic new one with new name pop up elsewhere.
Singing up contract for treatment you agree to use all your data, your story for marketing: one man died disease speeded up while on stem cell treatment but clinic but his photo and story as "successful cured happy patient" for years. Family went to court but they had hard time winning this because of some tricky points in clinics policy.
breathingMF [OP] 1 points 2y ago
Thanks for sharing. What choice scientists have in testing the trials for ONA?
B-dub31 2 points 2y ago
My ophthalmologist is a researcher and is plugged into the research community worldwide. I will talk to him at my upcoming appointment in a couple months. He told me he had a couple patients--not sure if they were optic nerve atrophy patients specifically--travel overseas for experimental treatment and ended up losing the little vision they had. He has said that any advances in spinal cord injury treatments could possibly be adapted to optic nerve damage as well.
Namrakk 1 points 2y ago
A hospital in Thailand completed a large scale dosing of stem cells for RP treatment a few years ago, if I remember correctly. There is also a company called ReNeuron that is in the phase 2A clinical trial stage for stem cell RP treatment (although I think their trial was delayed last week due to a likely bacterial infection following the dosing of one of their patients). Jcyte is also in phase 2 clinical for stem cell RP treatment.
The Thailand one is particularly interesting because they dosed a large number of patients and claimed they restored vision to some who were totally blind. Thailand is also a popular medical tourist destination, so I wonder if there are publically stem cell options there for vision. Would be interested if anyone has info on any of these
Edit: jcyte completed phase 2B with positive results and is moving to phase 3
The Thailand one is particularly interesting because they dosed a large number of patients and claimed they restored vision to some who were totally blind. Thailand is also a popular medical tourist destination, so I wonder if there are publically stem cell options there for vision. Would be interested if anyone has info on any of these
Edit: jcyte completed phase 2B with positive results and is moving to phase 3
00_denisa_00 1 points 1y ago
hey. do you have any updates?
Namrakk 1 points 1y ago
Unfortunately, ReNeuron ended funding for their RP program. As far as they’ve indicated, they will try and see if they can license out the IP to any companies if interested.
I don’t think JCyte has any updates since last time.
If anyone else has info, I’d love to hear it.
I don’t think JCyte has any updates since last time.
If anyone else has info, I’d love to hear it.
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