After a month of being blind, its finally hit me mentally. I am bored, hopeless, and undriven.(self.Blind)
submitted by [deleted]
I'm so close to graduating with my Bachelors (december) and was ready to take on a Masters program in Social Work that I was accepted to in the coming spring. I finally felt like I had a drive, a reason, a purpose. Then, all of the sudden, from various health issues I became legally blind at 28 years old with major central vision loss. Now. Now, I don't know what I am going to do. I live a good 45 minutes from all places (in rural area of MA) and get massively carsick so public transportation and/or taxis aren't a realistic option.
I've lost my interest in social work and my primary hobbies of video gaming and anime have become unenjoyable for the most part. I tried audio games but hated it. I tried listening to anime and using my peripheral vision to batch glimpses of the scenes, but its not fun for me because the art was my favorite part. Every time I try to play a video game that I used to enjoy or watch my favorite anime I just start bawling my eyes out.
I tried audiobooks of 5 different genres. I tried podcasts. I couldn't get interested and always just got sleepy. The boredom and depression from losing my vision has crippled me.
rmorabia26 points1y ago
I don't have any major advice for you, just -- I've been there. I personally would set a lot of goals at the beginning.
Walk on the treadmill for 2 hours, listen to 2 books this week, etc.. I never enjoyed it, but it gave me the drive to keep going, so I was never bored.
[deleted] [OP]14 points1y ago
Oh thats a good idea. Thank you! I'll actually really enjoy that.
rmorabia6 points1y ago
Glad I could help. :)
Related, if you're going to be pursuing any hobby as a goal: Make friends in that realm asap. (Even just Discord communities.) Seeing people read 2x as many books as me made me push even harder, etc.. The public accountability and the social drive helped.
BaylisAscaris11 points1y ago
I find crochet to be really engaging. I'm also trying to find a good Rubik's cube and get more exercise and learn braille. Sculpture is fun too, as is cooking. I'm not blind but am losing my vision (lost it a few times and crochet got me through the boredom and hopelessness).
I also highly recommend a therapist. Lots of them are doing virtual appointments right now and can work on a sliding scale if money is an issue. I'm wondering if a lot of social work can be done virtually as well, so you might not need to give up on your dream.
If you have friends or family, you can maybe arrange a regular meetup either at your place or virtually. I have a regular meet with my friends via Zoom once a week, sort of like a coffee shop where they can show up or not and it's nice to pop in and talk to people. Depending on pandemic, you could invite friends or family over for a barbecue or potluck once or twice a month. Having something to look forward to can help break up the monotony.
Also look into online gaming groups, something like Dungeons and Dragons. You can also host at your place if people are willing to drive and you feel safe doing so.
Stanford has free lectures on YouTube if you want to learn something new. Languages might be another interesting thing to learn.
2ndChanceAtLife5 points1y ago
Once you have navigated this difficult path, it might make a good career move to help others in your same situation. My step-son might have to deal with blindness and having someone his age who knows what to do next would be a life saver. He was going to go back to college for his Masters when his life got derailed.
You aren't alone!
BaylisAscaris5 points1y ago
I'm already a teacher. It's possible I won't go blind but I have the beginnings of Glaucoma and Macular Degeneration and a pretty bad astigmatism and other things in both eyes, and things have gotten a lot worse in the last 6 months so we'll see. Either way I'm seeing good doctors and learning new skills and hobbies.
I really appreciate all the support here. I find myself putting off making the next doctor appointment because I know things have gotten a lot worse and I don't want that confirmed. Also I'm afraid of surgery and hate getting my eyes poked. Anyways, things aren't too bad at this point and I'm grateful for all the things I can do.
[deleted] [OP]2 points1y ago
Hi, sorry to hear about your struggles friend. I used to crochet all the time, but I have rheumatoid arthritis and I'm worried it will kill my hands even more. A rubix cube is a great idea for me though! I do love them and used to be able to do them in under a minute flat haha. Thank you for the response.
BaylisAscaris3 points1y ago
That's amazing! What technique do you use? I'm still learning and have yet to solve a single one yet. I'm trying to find the Rubik's Touch Cube but everywhere online is sold out. I'm considering just getting a black one and adding my own decorative touch elements.
Also I forget to mention pets. I foster rats and they're really great and easy to care for. They are very loving and can be trained easily. The great thing about fostering instead of adopting is the agency will pay for supplies and if you can't care for them they will take them back. Great for a trial pet to see if it is something you want. If anyone wants to learn more about rats I am happy to answer questions. They're basically shoulder puppies that want to cuddle all the time.
[deleted] [OP]2 points1y ago
I wish I could have a pet in my current space, but that's not possible unfortunately. I'm not sure what the method is called to be honest haha it was just the one that came in the box with the instructions hahahaha
BaylisAscaris1 points1y ago
Your place might allow emotional support animals. That's how I got mine. I mean technically mine could be considered service animals since they're trained to perform a lot of tasks.
chicklitter2 points1y ago
Regarding crocheting with RA, try Furls crochet hooks. They're ergonomically designed and lots of folks with hand issues love them (myself included). They're on the pricier side, but they're incredibly well-made, balanced, and comfortable to hold and crochet with for long periods of time. The cost is definitely well worth it, IMO.
[deleted] [OP]1 points1y ago
Oh wow ! That's awesome to hear. May I ask which grip style you use? I hold mine like a knife rather than like a pencil.
chicklitter1 points1y ago
I hold mine like a knife, too.
BaylisAscaris1 points1y ago
You can also make your own custom handle covers for regular crochet hooks.
draakdorei6 points1y ago
I can relate to that very well. I bought six new games on Steam during the Thanksgiving sale/Christmas sale before I went legally blind. None of them are blind-friendly and two are multiplayer only. Because I had surgeries coming up within the month, I didn't refund them and lost the chance to afterwards. I also used to watch anime, mostly HorribleSubs fansubbed stuff. Dubbed animes just aren't the same and the voices are really off-putting. Some old stuff like Dragonball Z is great dubbed, but newer anime just sounds weird. Like Overlord and Youjo Senki are great in Japanese, but I can't imagine them dubbed. Have you tried blind-friendly games that aren't purely audio-based? World of Warcraft, for instance, has mods for the blind. Someone else posted that Hades has a blind-friendly mod. I'd imagine something like Skyrim or other single player Bethesda games would have the ability to play blind through modding. What motivated you about social work? Why is being blind stopping you from it? It's a field I want to go into still, once I get funding for school again. Plus, my own social worker does everything over the phone now or through video calls. Even my JAWS training is supposed to be through Youtube videos and video calls; which entirely confuses me. I think my mobility training is supposed to be a video call too, with me walking around the house holding my phone up... Rambling comment just to say, you're not alone and there's people willing to talk if you need to reach someone who can relate and resonate with your situation.
[deleted] [OP]5 points1y ago
I didn't realize there were accessible games out there! I beat hades about 200 times before I went blind, I'll see if my switch version has the accessibility option.
Wow, I can't imagine mobility training being digital! Thats absurd haha. I hopefully will hear back from the massachusetts commision for the blind soon so I can get training (hopefully in person haha)
bradley223 points1y ago
The switch won’t have accessibility options, but windows with steam does. If you go to audio games.net and the new releases you can find out about the Hades months.
LuisSalas2 points1y ago
Why dont you try to play Minecraft? We are having a lot of fun with it.
That sounds amazing but I don't think my current laptop could handle it haha
DrillInstructorJan5 points1y ago
OK, here's the truth as I see it. The reason you feel this way is probably because you feel like you can't do anything and it's boring, and you are understandably concerned that this will never change. You probably won't believe me right now, but I will tell you the way out of this is that you have to figure out a whole bunch of techniques and procedures that let you do stuff in a fairly normal manner and once you can do that it becomes a lot easier to deal with. It is a process, it's basically like doing a course on something, and it's not something anyone wants to do. It's also very hard to find motivation to do it when you're in the depths of all this.
The part you have to do is to find that motivation, somewhere somehow.
Doing this stuff will involve interacting with lots of organisations and people to deal with travel, mobility, cane stuff if you need it, widgets that can help out, whatever. Google is your friend. Figure out something you want to do and can't, and figure out a way to do it, and organise it. It is something you can and should deal with and be in control of, you make the calls, you organise stuff, you run it. It's your life. But you will need to do that.
It probably feels like it's too soon to start doing that, but that's the fact that you're all down and pissed off talking. The reality is that it will never feel like the right time, and you just have to do it and eventually it just becomes a normal part of life, which is sort of what you're aiming for.
If you're like me you'll never love it, it's a total headache, it'll never be something you adore about life, but you can get by. That's what I think anyway, and I hope that makes sense to you and everyone else.
[deleted] [OP]3 points1y ago
Thank you for the insight. It's good to know that what I'm dealing with is normal and going to resolve itself over time. For me, the hardest part is my sudden lack of transportation independence. I used to just drive around for fun, and now my only option is to go for a walk or have my wife drive me because we don't really have Ubers or taxis here
DrillInstructorJan2 points1y ago
I'm glad it helps, although I have to pick you up on one thing. It will not resolve itself. You have to resolve it, and that is an important difference. You absolutely must not wait around for something to magically happen because unless you make it happen, it won't. If you wait, you'll just wait forever.
I work in London and ubers and taxis are basically a way of life regardless whether you can see or not, so it's tough for me to make concrete suggestions. If it were me, and if literally the only way I could get out of the house was to drive, I'd look at relocating, but obviously that's kind of a big deal. All that stuff is tied up with what you do for a living, what you'd like to do, any other attachments and goals you have. I know all that probably feels like it's something you should deal with when you have everything fixed up in your life, but frankly do it now. It will never feel like the right time and like I say, if you don't make it happen, it never will.
Orinks3 points1y ago
I highly recommend Superblindman, a Twitch streamer and Youtuber who works in the industry who happens to be blind. It's actually a great time to be a blind gamer now, especially with the increased interest in devs implementing accessibility. Other than that, stay strong. The state agencies seem to have priority over who they help the most, and newly blind/losing vision is their top priority.
AllHarlowsEve3 points1y ago
Let yourself grieve, first and foremost. I was 18 when I went blind while making plans to go to art school, so at least you have a potential career that you can still do. 🙃 Once you're ready, you can start learning more things. I always recommend people start playing with their existing devices using their built in screen readers. I taught myself how to use my mac and iPhone just by not being afraid of them.
Winnmark3 points1y ago
You can still go to school bro. I mean, you can still be a social worker. Your life hasn't ended, it's just changed.
Also, make note that you're not going to get used to this new life overnight. Not super helpful, I know, but it's the truth man.
[deleted] [OP]3 points1y ago
I just don't have any way of pursuing the kind of social work I wanted to (hospice care) because I wouldn't have people to drive me everywhere; especially in my area.
NeedMoreGrits3 points1y ago
I hire retired guys from my church to drive me places.
Winnmark2 points1y ago
Aaaasyyyyy?!!
This guy's playing Christianity on a whole new level.
jage92 points1y ago
My grandma died in a hospice that was a house where patients were brought in to them to live out their last days. That may be slightly different from what you were thinking, but may still be related to the type of work you want to do. You're very close to the degree, if you can find a way to do it, definitely finish that off. You can adjust your career goals to what is practical for you transportation-wise or otherwise later on. But try not to throw away the progress you made in school. Depending on where you live, there may be other blind or low vision people to talk to that could give you ideas. The National Federation of the Blind state convention is in Boston in February. That could be a weekend worth going to and meeting others.
[deleted] [OP]3 points1y ago
[deleted]
[deleted] [OP]2 points1y ago
Thank you for this <3
zersiax3 points1y ago
Hades, Slay the Spire, Hearthstone, Skullgirls, Sequence Storm, TLOU: part 2 if you own a ps4 or ps5, Code 7 are all adapted to work with screenreaders.
As for anime, you don't need to watch them dubbed. You can use Podplayer and enable the options for echoing subtitles to the screenreader. Does require you to have the files locally though and by that I mean both videos and srt/ass files. Online subtitle retrieval is an option but isn't always very reliable.
A way I tend to do it is to use youtube-dl to rip stuff off CrunchyRoll.
AnimePlanet's videos in particular work well with the LION NVDA addon to read subtitles as well, so that is another option. I realize this won't bring the art back, but it at least you'll be able to watch original anime.
Also, Netflix and friends have audiodescription, definitely make use of that as it might help. It might still be something that puts you to sleep, but again, it's an option.
[deleted] [OP]3 points1y ago
Oh wow, thank you for all the ideas! I'm gonna try some of those games this week! I already love hades and StS, I had no idea they had options for accessibility though!
zersiax2 points1y ago
They don't :) More and more games are becoming accessible through two ways: Either the devs got off their asses and did it properly from the get go (skullgirls, sequence storm, tlou etc.) or some kind of mod, patch or addon allows you to play a game that is traditionally inaccessible. Both Hades and StS are in that second category.
StS: either $1 and $1 for a text-based interface to control the game with typed commands, or $1 , which requires a controller.
I know very little about both SaytheSpire and the Hades stuff. Can tell you more about TexttheSpire and what I don't know I can find out, so please don't hesitate to ask :)
acousticsking2 points1y ago
My wife is going through the same thing. She's going on about 1 month with the loss of all her vision in one eye and about 75% in the other. I am so grateful that she was able to retain what she has. What she has left only allows her to move around the house and care for herself but she can't do any of the things she enjoys in life. She's handling it much better than I would but I fear that she may also become bored, hopeless also. I am doing my best to make life easier and more enjoyable for her.
I don't have an answer for you except I understand what you are going through.
[deleted] [OP]2 points1y ago
You're a good person to do that for her. Many in my life are just reiterating all my losses in a negative way. They mean well, but it sucks hearing things like "well there goes all that education". Like, no, I'm very happy with my degree and plan on going in to my masters it thanks haha.
I'm sorry you and your wife are going through this, I'm very happy that she's doing as well as can be expected but I'd like to say sorry on behalf of the universe that you two also must go through this.
acousticsking2 points1y ago
We have been together for nearly 30 years so I am in it for the long haul. It's a shame that some of the people in your life don't have any compassion. I don't know if it's a generation thing or not but going through something like this does open your eyes to the people in your life truly have your best interests at heart and people who are toxic.
We are hoping that in time the damage to her optic nerves may heal. No one can tell us and she has already proven her surgeon wrong so far.
I have bought tons of Alexas, audible books etc.
I am going to look into VR goggles to allow her to watch TV and a computer screen. Hopefully it can place the view in her limited visual spot.
[deleted] [OP]2 points1y ago
Thats a very good idea regarding VR. It does seem to be generational, but maybe not in the way you meant. I have found those over the age of 40 to be very harsh to me and always focused on the "work" aspect of it. They will say things unprompted like, "well your still going to need a job! Then again, what can you even do?!". Really upsetting, but I'll be fine.
coarsing_batch2 points1y ago
Hey. I hope you are doing as OK as you can today. So, you say this is hitting you after a month? Do you have any idea how much time that isn’t in the span of things? You could basically see for 28 years before this. This is new, and you need time to grieve. If you’ve lost the ability to appreciate things in the way that you always have for your entire life, that is going to take a lot longer than a month to work through. And that’s OK. I know it sounds weird, but it really is OK to not be OK at this point in your life.
You also do not have to quit that masters. Not even close. I almost went through for a Masters of social work myself, and I have been blind since birth. You may not be able to go into it right now. There’s probably a lot that you will need to relearn, and a lot of mental work that you will have to do before going there. But universities all have accessibility offices, where they can accommodate pretty much any disability you can think of. you can probably get mentors and tutors and other kinds of people who will be able to help you as well. Your school will be able to put your materials in a format that best suits your needs.
As for losing your vision in terms of how it affects your appreciation of anime and manga, I am deeply sorry that has happened to you. I am very grateful that I was born without sight, because losing it that much later in life would be devastating. again, allow yourself to grieve that loss for a while. It’s a big one. Maybe someday you will get into audiobooks, but it’s way too early yet. Maybe someday you will be able to watch anime again, hopefully was description or something useful like that. And eventually, perhaps you will be able to develop a different kind of appreciation. But you are right. You lost that ability, and that hurts a lot. There are no quick and easy answers here. You have to allow yourself that time. In time, you begin to learn what you are capable of doing. It’s a lot more than you can see right now, but that’s OK. Someone mentioned finding a therapist, and they are absolutely correct. If you can afford one, I definitely recommend it. I know there are a few blind ones actually that have their masters in social work and have got their own private counselling practice. If you’d like, I can find her info again and send you a private message with it. Maybe you could talk to the one I know about what you were going through, because she went through the exact same thing, and she is doing brilliantly now.
You are not broken or lost. You are just learning your way again. Good luck, and reach out if you need support.
[deleted] [OP]2 points1y ago
Thank you so much for the kind words and sage advice. I'm sorry you have been blind since birth, but I do understand what you mean about having it and then losing it because I know what it was like prior. What sort of things do you do as far as career, hobbies, and entertainment?
coarsing_batch2 points1y ago
No need to be sorry. It’s not a problem for me. I mean, it has its problems for sure. Getting a job was significantly harder. But I don’t regret being blind, nor do I wish I could see it at all. I am a musician. I do street performance, as well as going into group homes and day programs and basically any group will have me. I do what I like to call participatory music, which is just a fancy way of saying I don’t sing for people, I sing with people. I wanted to study music therapy, but kind of thought that it might be a little too clinical for me, and I really just wasn’t ready to go in when I did the audition for the Masters program. For hobbies, I love watching shows, going for walks, swimming, martial arts, hanging out with friends, and of course music from every genre and country you can think of.
complex-blobfish2 points1y ago
.it sounds like you are still in the comparison phase. you still remember visual life so clearly, and have no idea how to do things blind as it is completely new to you. so it seems impossible. it is kind of like you are still thinking with a sighted brain, if that makes any sense to you. it is understandable that you would be bored when you do not have the knowledge on how to do anything blind. i would be bored at a lecture on astrophysics. the boredom serves a needed purpose, it is your brain motivating you to learn new things, stop looking back.
learn piano, try woodcarving, painting, photography, skateboarding, football/soccer, screaming along to karaoke. these are all hobbies either me or my blind friends do. you just need to learn how to do them.
it may sound a bit harsh, but you kind of need to get to the point where you accept your sight is not coming back, there is nothing you can do about it, and you have a life ahead of you, so there is no point just waiting around at home for things to change. this usually comes after a great depression.
walking is better for you anyway and you will meet new people.
as i understand it america is not very walking-friendly, but i am sure there are some places that are more accessible than others, maybe think about moving to one of those areas once you have the groundings for orientation and mobility.
games can be modded, anime subs can be read aloud, new hobbies can be found. it is not the end of the world.
let yourself wallow in grief for a while. it will be cleansing.
then come back to this sub and begin asking questions on how we adapt things for us, then use the answers to develop your own techniques.
i'm sorry this couldn't be more helpful but to be honest, you are not ready yet. it may take a few months yet. just remember not to feel bad for feeling this way, it is normal.
and remember we are here to help when you need support. :)
niamhweking2 points1y ago
By MA do you mean Mass? I'm not American sorry, Perkins school for the blind is in MA, next town to Medford if thats any use to you, they could be a good resource, for mobility training, advice, support, anything really I'm sure they can certainly point you in the right direction if they aren't the right place for you
[deleted] [OP]3 points1y ago
Yes, Massachusetts; sorry. I have been told about it, but I'm quite far away. I may need to make the trip soon because I am hearing great things! Thank you.
Midget_Katt2 points1y ago
Obviously time is the biggest factor. I know it's not what you want to hear but it's the truth. You need time to adjust to your new lifestyle. But maybe listening to some D&D podcasts or something like that will bring you a little bit of entertainment. There's much more to the world then what you can see. You just have to explore your new world to find what you like. You may find that you like something that you didn't before. You're experiencing the world differently so maybe your tastes adjusted to it too.
BIIANSU2 points1y ago
Hey. I'm sorry to hear that. That really sucks.
Have you considered picking up an instrument? I play the guitar and only know 5 chords. I just improvise most of the time and I can safely say, I'm a pretty sick guitarist. It takes a while, but can be done.
Have you been receiving any psychological help from a professional to guide you through this period?
[deleted] [OP]3 points1y ago
I do have a therapist thankfully. I actually think that's a great idea regarding an instrument. I just haven't found one that I like and can use with my arthritic fingers haha
BIIANSU3 points1y ago
Hmmm. How about the Harmonica? Sounds awesome and isn't an instrument designed for working sight nor does it require much physical dexterity at all.
[deleted] [OP]2 points1y ago
Hmmm that's not a bad idea\~
WadjetAD1 points1y ago
Have you heard of audio description? It's a form of voice over that tells you what's happening on screen while you watch a show. Most of the anime on Netflix has it as an option. Obviously it's not the same as seeing the art you love, but it might help you find more enjoyment in television. Take care.
BlindBear9021 points1y ago
I live in MA as well and just got done with my bachelors degree and thinking about a masters. I been dealing with my eye sight my whole life PM if you ever wanna talk.
[deleted] [OP]1 points1y ago
Oh great, thank you so much
bradley221 points1y ago
You could try audiovault.net for free audio described movies and shows, if you’re into that kind of stuff.
Motya1051 points1y ago
Besides the Mass commission for the Blind, I’d suggest getting in touch with the Mass Association for the Blind and Visually Impaired, (MABVI). They offer support groups which may be useful to you.
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