Blind and Visually Impaired Community
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Need serious advice I'm totally ignorant and lost (self.Blind)
submitted by massidiocy
Ok less than a week ago my wife started to get very blurry vision. Went to the doctors they checked her blood suger and high but not very a1c of 7.6 so the sent her for a diabetic eye check also a cat scan to rule out a stroke. Eye doctor says no signs of anything. 3 days later she goes black like fade to black pin hole style if that helps we call doctor he says go to er we spend all day in there they redo all the same and same results but asshole acts like she is lying becuse her eye would close if he swung his hand at her face.
Ok now all that being said what can I do to help her we live in a two story house with bathroom upstairs how can I help her to find it independently? Cell phones we have android I've been trying to find ways to help her use it as well in case she needs to call me and for entertainment ie audiobooks or pod casts so she has something to try and relax.
I'm sorry this is so scattered but so am i. We have no diagnoses of what caused this or why? Just a possible of stress but we where on vacation when it all started so we are doubtful. Anyone ever heard of anything like this. Thanks in advance from a seriously scared and lost individual.
Ok now all that being said what can I do to help her we live in a two story house with bathroom upstairs how can I help her to find it independently? Cell phones we have android I've been trying to find ways to help her use it as well in case she needs to call me and for entertainment ie audiobooks or pod casts so she has something to try and relax.
I'm sorry this is so scattered but so am i. We have no diagnoses of what caused this or why? Just a possible of stress but we where on vacation when it all started so we are doubtful. Anyone ever heard of anything like this. Thanks in advance from a seriously scared and lost individual.
Winnmark 12 points 1y ago
If doctors aren't listening to you, just go to your states department services for the blind, I'm assuming you're in America? If not, I would imagine your country has something similar.
It can be frustrating when doctors accuse you of lying, but services like these can at least point you in the right direction.
I hope this is something treatable, if not, there are big changes coming into your life, needless to say, and your wife's.
It can be frustrating when doctors accuse you of lying, but services like these can at least point you in the right direction.
I hope this is something treatable, if not, there are big changes coming into your life, needless to say, and your wife's.
massidiocy [OP] 5 points 1y ago
I'll look into that. Thank you
MostlyBlindGamer 10 points 1y ago
Find the TalkBack screen reader under Settings; Accessibility on her phone. There's a tutorial.
Blind people get around their homes from memory and often by finding landmarks like a door, a couch, the edge of the stairs. You can walk around the place with her and point out landmarks ("the couch is too your right," for example) which she can touch.
If an ophthalmologist doesn't believe her, you can talk to a neuro-ophthalmologist who would be able to deal with blindness caused within nerves out the brain.
Otherwise, nobody on the internet can give you medical advice and you shouldn't take any - doctors need to examine patients.
If this lasts for very long, you can find blindness services in your area who will guide you towards rehabilitation options like Orientation and Mobility training.
Best of luck!
Blind people get around their homes from memory and often by finding landmarks like a door, a couch, the edge of the stairs. You can walk around the place with her and point out landmarks ("the couch is too your right," for example) which she can touch.
If an ophthalmologist doesn't believe her, you can talk to a neuro-ophthalmologist who would be able to deal with blindness caused within nerves out the brain.
Otherwise, nobody on the internet can give you medical advice and you shouldn't take any - doctors need to examine patients.
If this lasts for very long, you can find blindness services in your area who will guide you towards rehabilitation options like Orientation and Mobility training.
Best of luck!
massidiocy [OP] 3 points 1y ago
Thanks I found the talk back thing we are learning it. As far as around the house goes shes doing ok but the stairs scare her at least going down. We are in the process of the doctor for that. Yeah I know I shouldn't look for medical advice online Im just over stressed Thank you very much.
MostlyBlindGamer 4 points 1y ago
Totally understandable.
A good trick for going down stairs without a white cane is to shuffle your feet, instead of lifting them.
You can think of a way to mark the location of the stairs - a night light is good, assuming some residual vision.
A good trick for going down stairs without a white cane is to shuffle your feet, instead of lifting them.
You can think of a way to mark the location of the stairs - a night light is good, assuming some residual vision.
massidiocy [OP] 3 points 1y ago
No residual sight I was thinking tape on the floor carpet
MostlyBlindGamer 3 points 1y ago
You'd want something that'll signal the transition between regular walking to careful shuffling. That will really depends on the layout of your house and what works best for you guys. Definitely start with the tape though. Maybe mark a rectangle around the edge of the stairs.
This is the kind of thing you'll talk to an O&M specialist about, if the blondness is permanent or even just lasts longer than it's tolerable without significant adjustments.
We all want the situation to be resolved, but don't feel like you guys shouldn't talk to rehab specialists, of the doctors still don't know what's going on - living conformably with the necessity necessary adaptions doesn't mean giving up on recoveringsight.
This is the kind of thing you'll talk to an O&M specialist about, if the blondness is permanent or even just lasts longer than it's tolerable without significant adjustments.
We all want the situation to be resolved, but don't feel like you guys shouldn't talk to rehab specialists, of the doctors still don't know what's going on - living conformably with the necessity necessary adaptions doesn't mean giving up on recoveringsight.
complex-blobfish 2 points 1y ago
do you have a Bannister? i dont know what it is called in america, maybe a handrail?.
you can get her to use both hands on the handrail and go down sideways. make sure there is some kind of marker at the top of the stairs. or if all else fails, go down the stairs on your ass. i have had to do this multiple times for stairs that are too narrow.
right now it hasn't been long enough for her to really have a grasp of this. be patient with her.
you can get her to use both hands on the handrail and go down sideways. make sure there is some kind of marker at the top of the stairs. or if all else fails, go down the stairs on your ass. i have had to do this multiple times for stairs that are too narrow.
right now it hasn't been long enough for her to really have a grasp of this. be patient with her.
massidiocy [OP] 2 points 1y ago
I know I'm being patient she just wants independence feeling yes we do I might make it longer in the long run because it stops short at a weird place.
PrincessDie123 2 points 1y ago
Get in contact with your local Commission for the Blind or the National Federation of the Blind and see if you can get her into some classes so she can cope, they may also have recommendations for where to go to find a compassionate doctor and the O&M instructor may have a spare cane for her to borrow until she can get one of her own so she can feel more confident on the stairs and outside the home.
massidiocy [OP] 1 points 1y ago
No transitions, carpet , it's a straight shot to a landing then turn
River-Song-1986 1 points 1y ago
You said you have a banister on the stairs. When the banister ends at the top of the stairs is there a transition in terms of a wall that she could feel? For example, my brother's house has a banister going up the stairs but it stops before it gets to the top and there's a wall so I can feel the wall to know that I'm getting to the top of the stairs. You could also put a piece of tape at the top of the banister so she knows that she's getting to the top. Are your stairs carpeted? What about the landing upstairs?
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