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Blind and Visually Impaired Community

Full History - 2021 - 09 - 01 - ID#pg6rxt
38
Officially sold my car since I can't use it anymore. Really feeling depressed and hopeless about the future. (self.Blind)
submitted by [deleted]
Its been a few months since I lost my ability to drive, which was one of my favorite things to do. I decided to sell my car since it was just rusting away. About to sell my gaming consoles because I can't play them. It's just all really hitting me right now.

I'm almost done with my bachelor's and am considering getting a Masters, but even that feels pointless right now. Therapy hasn't been helpful because my day to day existence is just so numbingly boring. Sorry for the rant, I am just hoping for some advice or guidance. Thank you in advance.
505Griffon 8 points 1y ago
Its been years since I last drove a car. I can relate to your situation. For me it was a form of freedom that I lost. I eventually got used to it and now just manage different ways to get around. My wife is more patient than I expected as she is willing to take me places. I now make shopping lists based on destinations to ensure when I get out, I get what I need.

I now am a happy passenger who is never the designated driver. I can fall asleep in the passenger's seat and annoy the driver. I'm less stressed as I don't have to fight road rage anymore.

Don't dwell about what you lose but on different ways of accomplishing things that are important. I still can ride a bike without hitting anything or getting hurt.
[deleted] [OP] 6 points 1y ago
Thanks for sharing. It's absolutely that lack of freedom for me too. I just kind of feel like pursuing higher education in a field that would require me to leave the house and get rides everywhere would be pointlessly stressful too.
Lighthouse412 2 points 1y ago
I don't know if this is an option for you...but there are lots of cities w/ absolutely fabulous public transit options. I'm in awe of how well my father navigates the subway and bus systems near him despite being nearly entirely blind. Most of them for free with his Blind Access Pass.

Good luck to you.
[deleted] [OP] 1 points 1y ago
I wish I lived near a ciry haha maybe one day
rumster 3 points 1y ago
A friend I knew back in my NIB days lost his ability in driving himself and he actually said it had an awesome result which was he can drink and never ever had to worry about being the dez. You're second sentence reminded me of this lol
[deleted] [OP] 7 points 1y ago
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[deleted] [OP] 4 points 1y ago
Thanks for the optimistic perspective. I e been trying to think of my life as starting over but on hard mode.
[deleted] [OP] 4 points 1y ago
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Shadowwynd 3 points 1y ago
"Blind Drive" is available on Steam. No sight needed. You play a blindfolded driver of a car taking orders from a madman on the phone.
ChangeAcrobatic4632 5 points 1y ago
I am in a very identical situation. If you ever want to message me and have someone to talk to that understands, I am around. Best of luck to you, it’ll even itself out soon.
[deleted] [OP] 6 points 1y ago
Thank you for the offer, I'll take you up on that tomorrow. Just took some benadryl and I'm going to sleep. I'm sorry you're also struggling with this.
ChangeAcrobatic4632 3 points 1y ago
Get some rest and sweet dreams, talk to me when you can :)
B-dub31 4 points 1y ago
Losing the ability to drive was one of the worst things about my vision loss, right next to gaming and firearms. I worked in public safety and was on call for response 24/7/365, so I had to resign my job as well, so my graduate degree in public safety administration is useless. It's frustrating at first, but over time it gets better.

If you can work, that's what I would recommend. Your state's vocational rehab office might be able to help you obtain work-related accommodations. Being on disability sucks. I get by OK because I had worked for over 20 years before I lost my vision. But I am constantly checking into things I might be interested in doing.

You might want to consider relocating to a place where public transit and ride sharing are available if that's an issue for you now. And honestly, I think we are on the cusp of self-driving technology becoming widely available. Maybe in a few years our cars will pick us up and take us everywhere we need to go.

You sound young and I know you feel like you are facing insurmountable odds, but there are so many things available today that visually impaired people even a decade ago would love to have. I hope that each day gets better and easier for you!
[deleted] [OP] 1 points 1y ago
I'm sorry to hear about your struggles. Life can certainly be difficult, but I always say that the universe doesn't owe us anything. I have been considering moving to a more city like environment in the future, but that's many years away given my families financials and the fact that my wife is doing her doctorate. The hardest part was the speed I lost it at. Within a month I went from perfect vision to 20/400 and HM
B-dub31 1 points 1y ago
I completely understand. I went into the hospital with mild vision problems and came out legally blind 11 days later after a major medical emergency. It’s very traumatizing and it took me a year or so to adjust and begin really processing it. You might consider seeking mental health counseling to help your processing of the grief. In retrospect, I should have

I’d like sell our house in the country and move to a more urban area, but the housing market is crazy. We could sell high, but we’d have to buy high too. You should complete your undergraduate degree if it’s in a field you can work in with accommodation. If not, you might consider changing majors to one where you could. There are a lot of partially sighted and completely blind individuals who have fulfilling careers. I see coding mentioned a lot. Hopefully as you continue discovering your new normal, you will find your best path forward.
[deleted] [OP] 2 points 1y ago
I'm so sorry, that is traumatic for sure. If it was anything like my hospital stay, nobody set you up with resources or showed you how to live. They just toss you back into the world. I am seeing a counselor, but it hasn't been helpful because it's a very personal experience, you know what I mean, I'm sure.
B-dub31 1 points 1y ago
Yes I do and I'm so sorry you're going through it. I'd get so frustrated because things that used to be so easy that you'd take it for granted seemed hard. But day by day you figure out ways to do the things you need to do. It does get better.

Has anyone referred you to a low vision specialist? They helped me so much. You can get orientation and mobility training and referrals to assistive technology. I'm in KY and the services here have been helpful.
[deleted] [OP] 1 points 1y ago
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dunktheball 3 points 1y ago
I never could drive to begin with and I still think about it my whole life because I hate not having the freedom to just go wherever whenever. It would be even harder, though, if I had driven before and then stopped being able to.
[deleted] [OP] 1 points 1y ago
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EffectiveYak0 2 points 1y ago
Hey OP.


Sorry you're having to go through this. I lost my vision 2 years ago and used to game all the time before then. I really miss playing FPS with my friends, but I've slowly been finding new ways to enjoy my life. I think approaching it as a new adventure really helped shape my attitude towards my vision loss.

Feel free to DM me if you need someone to talk to about it.
[deleted] [OP] 1 points 1y ago
Thank you ! New game plus with an arrow to the knee is what I told my friends it feels like haha
Krishibi 2 points 1y ago
I keep writing and deleting this. I will preface with I am not visually impaired. I joined the subreddit to gain a better understanding of some of the struggles that the people the organization I work with serves. Also, if maybe I had any information that could help-then why not?

If you haven't already, it may be helpful to reach out to your local Vision Rehabilitation Therapists. If you are in the USA I know a lot of the time they are contracted through or work directly with the State at the Division for Blind and Visually Impaired. They are a good resource and can also help connect you with resources.
[deleted] [OP] 3 points 1y ago
Hello there! Thank you for the advice. To be honest I'm not really sure what a vision rehab worker does as communication has been lackluster from my states commission for the blind and from my medical team. I'm absolutely open to it once the commission finishes my processing.
Krishibi 2 points 1y ago
So, I am not a Vision Rehabilitation Therapist, I am just in HR. I know they can teach braille, make lighting suggestions, show technologies to help with continuing to use computers, there are orientation and mobility specialists to teach how to use a white cane and navigate, we have a training apartment to teach people how to cook again, do laundry, many activities of daily living... I feel like I am under selling it still.

We have an employee who came to us as a client. She was going to become a nurse, lost her eye sight, came to us and learned these skills... Then decided to become a vision Rehabilitation therapist to help others. IF you want I can share the video (it's posted online with her consent). I feel like she can paint a better picture than I can... And it's just an empowering story.
[deleted] [OP] 2 points 1y ago
Wow that sounds really cool! Thank you for giving me that information!!! I appreciate you helping me, you're the best!
ReadersAreRedditors 1 points 1y ago
I know exactly what you're going through. Getting to that point each day that pasts.
EggBender93 1 points 1y ago
You will be fine. I'm 28 and have never been able to drive. But I'm doing fine. I can use public transportation or just ride a bike. Also think about howuch money you're saving by not having a car.
QuentinJamesP89 2 points 1y ago
I've never been able to drive either, but it's not necessarily easy for everyone. Not everyone has access to public transportation or the option to move. I do now, but didn't for most of my life. I used to be able to ride a bike, but you have to have a decent amount of vision for that. I can't ride a bike anymore. Also, because my wife drives we pay for a vehicle anyway. I guess we're saving by not having two vehicles, but I doubt we would have had two anyway. Transportation is the single most difficult thing about not being able to see well.
QuentinJamesP89 1 points 1y ago

I've never been able to drive, but there are certainly other things I've lost and I can understand that feeling. Moving to the city when you're able to definitely helps. I am able to use public transportation; it's still a pain and takes forever but it beats having to depend on my wife for everything.
My vision has been a problem my whole life, but last year I lost much of my remaining vision. I can tell you that while it's certainly still a very big struggle and adjustment, over time I have been slowly figuring out new ways to do many of the things I love. I've had and still have moments of major discouragement over how seemingly impossible it all is, but once I was able to move on from mourning to trying to work out solutions and not focusing as much on how much harder and less enjoyable it is to do all the things I love I can say that my life has improved a lot. I would encourage you to continue with your plans for your life and go to grad school if you are able. You've said it feels pointless, but I've actually found that just getting out and doing things makes life feel less pointless. It's going to be hard, no way around that, but it's the only way forward. I can't tell you how many times I've tried to do something and just broken down because it's so hard it seems basically impossible. I would try to play complex new pieces on the piano though I'm no longer able to see the music on the stand. It feels like I've regressed so much even though I'm technically capable of playing all of it. When you struggle to see the music and have to painstakingly decipher it in small chunks as you go and memorize everything it's just a huge set back. But on the other hand, because I didn't give up I'm still doing what I love and when I do master a new piece the sense of accomplishment is considerably bigger knowing the hurdles I've had to overcome to do it. I know it's hard not to look back, but I'm sure over time you will figure out how to live well in this new reality and enjoy the things you love.
Sommiel 1 points 1y ago
Getting your MA is not pointless. Improving your mind is never a waste of time.

It's that one tipping point for everyone.

For me, it was picking up and reading a book. I had a bottle of Oxy in my medicine cabinet to take on the day I couldn't read a book anymore. I was so depressed.

I went to my local blind education center and met people that were completely blind and they taught me my orientation and mobility. It was super inspiring that they were totally normal, just blind.

The really helpful part is that they had a support group. Therapy can be helpful, but being with a group of people that are going through the very same thing that you are is priceless.

Now I not only get all over the place on transit, I work full time, love my job, volunteered and teach a class on how to cook blind at the center.

It's going to take some time for you to figure out what to do to keep your mind busy. There will be trial and error, but eventually you will reach a balance. Please be patient with yourself.
[deleted] [OP] 1 points 1y ago
Thank you for the words of hope, friend. I'm glad to hear it does get better with time and effort. That's so Wonderful that you have not only maintained an active lifestyle but also helped others!
SoapyRiley 1 points 1y ago
I’m thinking about selling my car as well. I can still drive when lighting conditions are perfect, but as we head toward fall and the sun sits lower in the sky, those days are becoming fewer and it just seems a waste of money. Knowing my vision wouldn’t get better without some miracle of my brain suddenly firing correctly, we moved into the city from the suburbs. It’s been totally worth it to not feel trapped in my suburban neighborhood and have access to 3 bus routes within walking distance so I can get to most parts of the city with zero problems. And I live in a city with crappy public transportation. Know you’re not alone in this pain and if I hadn’t moved, I’d be so depressed right now too. But take heart that it’s not actually hopeless, just takes a little work and some expense to find solutions.
[deleted] [OP] 3 points 1y ago
Thank you for the kind words and for the hope! I'm hoping to move near a city within the next 5 years, but that also depends on so many factors. Selling my car was worth it because it would otherwise just be sitting losing value
[deleted] [OP] 1 points 1y ago
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okraSmuggler 1 points 1y ago
I'm doing this over the weekend.
[deleted] [OP] 1 points 1y ago
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[deleted] [OP] 1 points 1y ago
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