Blind and Visually Impaired Community
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Fuchs Distrophy - anyone have experience? (self.Blind)
submitted by merbyderby
A family member who already had pretty minimal vision in one eye, and reduced vision in the other, is now experiencing severely reduced vision, including distorted, hazy vision, though their eye doctor and several specialists have rules out RP which I've seen discussed here previously. It's worsening at a pretty rapid pace.
One of the retinal specialists they met with mentioned Fuchs Distrophy. Does anyone have any experience with Fuchs Distrophy? I am reading up on it but would be grateful to learn more if someone is willing to share their insights.
Thanks in advance.
One of the retinal specialists they met with mentioned Fuchs Distrophy. Does anyone have any experience with Fuchs Distrophy? I am reading up on it but would be grateful to learn more if someone is willing to share their insights.
Thanks in advance.
GetttDunkedOn 3 points 1y ago
Hi! My grandmother had this in both eyes. She still has it in one, as due to other issues doctors can’t operate on it. She experienced those symptoms you described rapidly, and became unable to read. They normally do a cornea transplant, as that’s what it affects. She had a trial surgery, a partial cornea transplant using a synthetic cornea and has recovered her vision in that eye.
It’s hereditary, and children have a 50/50 chance of developing it, usually after 40. Sometimes it stays dormant but make sure those related to them get tested regularly at that age to catch it early.
Your family member should get looked at by a cornea specialist if possible!
It’s hereditary, and children have a 50/50 chance of developing it, usually after 40. Sometimes it stays dormant but make sure those related to them get tested regularly at that age to catch it early.
Your family member should get looked at by a cornea specialist if possible!
merbyderby [OP] 1 points 1y ago
Thanks for this, really helpful. Family member has seen their corneal specialist as well - had a previous lens replacement in one eye, with vitrectomy, and that one is the better sighted eye. Corneal doc said issue seems to be thinning of retinas and cornea is okay. Sounds like specialist is worried that their retinas are so fragile (atrophied?) they do not feel comfortable with any further procedures.
Will look into this more, maybe I'm misunderstanding what the specialists are saying. Thank you for sharing!
Will look into this more, maybe I'm misunderstanding what the specialists are saying. Thank you for sharing!
loonling 1 points 1y ago
I know this is an old thread, but I have been diagnosed with this recently and will soon be getting a partial corneal transplant.
My vision became increasingly blurry over the summer, and I chalked it up to needing a new prescription as I'd skipped a year due to COVID. My biggest issue is low-light or high contract situations. I am by no means severely impaired, but if I tested for a driver's test right now, I might not pass. And since my diagnosis in the fall, I have stopped driving at night.
I wish your family member the best.
My vision became increasingly blurry over the summer, and I chalked it up to needing a new prescription as I'd skipped a year due to COVID. My biggest issue is low-light or high contract situations. I am by no means severely impaired, but if I tested for a driver's test right now, I might not pass. And since my diagnosis in the fall, I have stopped driving at night.
I wish your family member the best.
[deleted] 1 points 1y ago
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