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Blind and Visually Impaired Community

Full History - 2021 - 09 - 15 - ID#pp1mja
9
Where do I start? (self.Blind)
submitted by Littlebiggran
My vision went from treated macular degeneration 10-15 years ago, then recent vision changes, a few cataracts and two weeks ago full crisis of no central vision. What I see often moves orcI imagine /make patterns of what ai see. I cannot read and cannot write at all the size and straightness changes..

In one swoop I lost my retirement job subbing, my Sunday school first grade volunteer job, and my ability to drive. I love to write and now I can't even see to sort out my short stories and memories.

I don't have a doctor's appt until end of next week. My husband is still working but in denial. Today left me with the pets, grandson with no food laid out so I could make him food. Taking my medications is a nightmare. Holding my phone two inches from face.

When should I Do? Who do I see first? I

Very depressed. Live out in rural area.
xmachinaxxx 5 points 1y ago
Start with finding a low vision clinic. That is in addition to your regular eye doc appointment if that’s what you have next week. The low vision clinic can get you set up with O&M training and help with ADLs. Most regular eye docs don’t help you transition at all.

Edit for spelling
SoapyRiley 4 points 1y ago
Have you started using a screen reader on your phone/computer yet? Once you learn the gestures for your device, it makes the tech easier to use. You’ll be able to resume reading and writing that way at least.
facilelavage 3 points 1y ago
I'd start with finding if your state has a state commission for the blind because they'd have comprehensive services and advice to help with vision loss. Also there are online stores with vision aids and devices and there are free and paid phone apps that read labels, pages of type, receipts etc. both on android and apple. With windows you can enlarge the mouse pointer, change screen colors, and magnify in Ease of Access settings. Windows and phones have built in screen readers and there are apps that read books etc. The Hadley Institute has hundreds of video tutorials. It takes practice to make use of this stuff, some more than others but once you start, you get it.
yoyo2718 3 points 1y ago
I’m sorry for what you’re going through. My vision challenges are very different from yours, but I can definitely relate to the frustration. I also left my job while I figure things out. I like to write too, and have been frustrated by not being able to do so visually anymore. I’m working on learning to write/edit with screen readers…it’s pretty different, and at the moment I completely stink at it, but I find that having that hobby goal is helpful.

For what it’s worth, I’ve found the people at my state dept for the blind and visually impaired to be really helpful. They’d probably be a good place to start. I was able to get both in person and tele-appointments for tech tutoring. Hadley School for the Blind has been good for free distance learning Braille courses. Even if you don’t see yourself using Braille to read books, learning individual letters and numbers is helpful for labeling stuff. And I’ve found it kind of a fun distraction. The National Library Service has a program called Bard you can look into for audiobooks. Also a good distraction.

Hang in there.
Littlebiggran [OP] 2 points 1y ago
Thank you. Today I went to a local center that let's you try out things. I came home with a bunch of goodies to read and write with.

My favorite is a beeper for when my cup is full. It is for kids and plays "It's a Small World " when cup is filled.
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