I'm totally ignorant so if I over step or something let me know. that being said my wife who's 36 suddenly went blind we still dont know why but how can I help entertain her shes expressing alot of issues with boardem and depression recently. any help would be appreciated(self.Blind)
submitted by massidiocy
OldManOnFire10 points1y ago
It's cool that you're trying to help. Reaching out to strangers for help is never easy. Your wife is lucky to have you.
The boredom and the depression are real. I'd like to share my perspective on each of them. I don't know of a cure for either one, but in my case just knowing my wife understands helps me feel not so alone.
First, the depression. It's not just that we're grieving the loss of our eyesight, we're grieving the loss of our potential. We felt like we mattered when we were fully capable. We made things happen. We got shit done. We kept our companies profitable and we kept our families fed and we kept our cars washed and our lawns mowed. Our coworkers and customers and families depended on us. We were integral parts of our teams. We were proud because we made a difference. And then it stopped.
There comes a time in everybody's life when our best years are behind us. We plan on retiring once we're too old to be on top of our game, but we plan on doing it on our terms. Blindness doesn't wait for our terms. It resets our lives. We either retire or we continue working in a way that feels less like we're necessary and more like we're being pitied. Our inner monologue is screaming *Wait! I'm not finished!* But we are finished and accepting that is one of the hardest things I've ever done. We know it isn't our fault but that doesn't make it feel less real. We feel like we've let the people we care about down. They used to depend on us to fix their cars and stock their grocery store shelves and teach them algebra and run their machinery and now we can't. There's some guilt - I won't deny that. But it feels wrong to feel guilty because blindness wasn't our fault, so we end up feeling guilty for feeling guilty. But most of all there's just an ache to feel like we matter again.
On the boredom we experience - yes, there are ways to occupy our time. There are eBooks and podcasts and spin bikes to entertain us and educate us and exercise us. What's missing is *purpose.* We imagine having unlimited time on our hands would be a great thing until it happens, then we realize all this free time we have has no point. We don't think about it until it happens, but there's a purpose to how we spend our free time when we're fully capable. We entertain ourselves to recharge our batteries. We educate ourselves in the hopes that one day we'll be able to put our newfound knowledge to use. We exercise to keep ourselves strong and able to meet whatever unexpected demands life sends our way. But when we lose our sight there doesn't seem to be a point to recharging our batteries. There aren't many situations in our foreseeable future that require our recently acquired knowledge, and staying healthy seems like a cruel joke for someone taking a permanent sick day from work.
If I could offer any advice I guess it would be this - we're still who we were. We've lost something important and our lives need to be restructured around our blindness but other than that we don't want to be treated any differently than we were treated before. Our abilities may be diminished but our passions and desires and dreams haven't changed. Please recognize this. Your wife is still the girl you fell in love with. Going blind changes everything but it changes nothing, too.
Good luck to you. I wish the best possible lives for each of you.
Fridux2 points1y ago
Holy cow you've just described my feelings better than I ever could! I rarely reply to threads where I cast votes, but this is exceptional! I have money, I don't have to work, I have all the time in the world for myself, I can code all day when I feel like and sleep when I don't, and yet I'm not even close to being as happy as I was with sight.
OldManOnFire1 points1y ago
Thank you.
Remember that old adage about the inverse relationship between time and money? When you have enough time you don't have enough money and when you have enough money you don't have enough time? Seems ironic now, doesn't it? We finally have enough of both and suddenly we're not interested.
I think we'll find purpose and meaning again. It probably won't be through our careers - we'll always be at a disadvantage there - but there are other ways to contribute.
massidiocy [OP]2 points1y ago
Thank you , that was a very powerful message.
OldManOnFire1 points1y ago
Hey, how is your wife doing? Are the two of you okay?
massidiocy [OP]2 points1y ago
The situation is the same pretty much her job let her go. The neuro optimalgist is blaming stress as the reason no one will give us a diagnosis so we where unable to get her short term disability and with out a diagnosis we cant really move forward with social security. No doctor even wanted to help her get a blind cane or orenteering class becuse well font you want your sight back is always the answer. So we did research on canes and bought one she used it for the first time last night she was able to with the cane and her current level of anxiety meds her thru the store with minimal?( 4 or so breaks to center her self ) problems. Now that is the good but she had some real ruff patches before all that she told me twice she wanted to kill herself once I think it was a response to stress but the second time she actively searched way for lack of a better term. All options have been removed or secured. Its honestly been so stressful I forgot I posted this.
OldManOnFire1 points1y ago
That sounds awful. I hope it gets easier for the two of you.
KillerLag7 points1y ago
What kinds of things did she like to do before? Has she started getting any rehabilitation to learn/relearn new skills? That could help her find new hobbies as well.
massidiocy [OP]6 points1y ago
Video games, movies
KillerLag8 points1y ago
How does she feel about descriptive video? It might be good for her to start with movies she's already seen before to see how she feels about it.
massidiocy [OP]4 points1y ago
We haven't tried it yet
TheYear20465 points1y ago
Descriptive video is a hit or miss. I would also recommend audio books and getting an Alexa or Google Home since there are interactive audio games on there as well as helpful audio apps
KillerLag4 points1y ago
I see in a different post, you asked about a Buffy RPG. If she's learned/learning how to use screenreading software, that would let her keep track of her own stats and stuff (and there are apps that roll the dice for you).
retrolental_morose2 points1y ago
we picked up a secondhand Nintendo wii for our daughter. We can play Tennis and bowling without sight, and join in with prompting with a few others.
sunflowerdecay1 points1y ago
Mortal kombat is a good video game. There are others that are really good with audio, but I'm just starting with them. I think racing games like mario cart was suggested.
massidiocy [OP]3 points1y ago
Thank you all I just want to add how much your support means to me personally. I want to add the doctors haven't been much help they have been holding out to see if progress can be made ie getting sight back I think that was just to keep her spirits up. I plan on going to our local center for the blind to figure more out. Thank you all so much.
paneulo3 points1y ago
You've gotten plenty of good advice from others. I would just add that while entertainment is great, it's no replacement for feeling useful, and like a contributing member of the family/community/society. In short, she needs to get training, and she needs some good role-models to show her that while life may have changed drastically, it certainly isn't over. Most people, including we blind people, seriously underestimate what is possible in spite of blindness.
guitarandbooks3 points1y ago
I lost my sight within a week when I was 14 years old and they were never able to restore it. It is a really tough thing to adjust to that's for sure.
​
What sort of things is she interested in? What were her hobbies before she lost her sight?
​
If this will be a long term thing, it's essential she gets assigned to an O and M instructor, tech instructor, and an independent living skills instructor.
​
If she could start learning how to use the built in screen reader on Windows, the Mac, iPad, or iPhone if you have one, then she could read e books, read articles, use reddit, facebook, twitter, start a blog, listen to things on Youtube... Netflix and many of the other streaming services have an audio description mode you can enable... there are audio games, there are board games that are adapted so that blind and sighted people can play together... You have Bookshare and BARD which is a free service offered by the Library of Congress. They offer audio books and Braille books as well as magazines either through the mail, via their web site, or, via their iOS app. maybe she could take up an instrument if music interests her... There are plenty of free music lesson courses for instruments including piano and guitar etc. Also, the Hadley school offers free adult ed courses that are totally accessible to blind people if she'd be interested in studying something...
[deleted]3 points1y ago
[deleted]
minorshan2 points1y ago
I'm not legally blind or anything, but I've got pretty bad vision without glasses (no reading street signs, only crisp within 1 ft of me).
Anyway, I've long been a fan of old time radio and find it's a wonderful source of entertainment when you don't want to stare at a screen (I also get awful migraines that make me light sensitive). There's endless YouTube videos that provide them.
Many shows/movies on Netflix also have an "audio description" audio option as well. They're great at just acting like a narrator and I've listened to them at times and sometimes the narrator clues me into details I hadn't visually caught.
*Cool thing old radio did was radio show versions of movies. They're abridged but do a far better job at painting a picture.
I hope I'm not speaking out of turn since I'm no expert and new here.
River-Song-19862 points1y ago
Does she like to read? There are apps for audio books and e-books but also, YouTube has audio books on it as well. I'm not sure what kind of games she's into I know you said video games she would be able to play Dungeons & Dragons if that's something she's interested in.
River-Song-19863 points1y ago
Also, I hope I'm not overstepping but I am around your wife's age if she needs someone to talk to :-)
massidiocy [OP]1 points1y ago
No overstepping I'll check
massidiocy [OP]1 points1y ago
Thank you to all that said audio descriptive movies and on a side note the cleavland library group every movie dvd and blue ray we checked so far has them. So she got to check out alot. Thank you all so much.
Eriona891 points1y ago
Documentaries.
Dietzgen171 points1y ago
Find organizations that serve the blind. They can recommend experts and programs, including therapy. Depression is common in people who've had sight and go blind in middle age. It's a major adjustment.
massidiocy [OP]1 points1y ago
We found one doctors have been weird about alot of things like the cane basically replied it's not necessary. Its been very frustrating I'm over the mind try everything they seem to want to wait on one test an mri
Our mission is to provide everyone with access to large- scale community websites for the good of humanity. Without ads, without tracking, without greed.