Blind and Visually Impaired Community
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Leber hereditary optic neuropathy (LHON) (self.Blind)
submitted by weezywa
My brother in law was recently diagnosed as a 24 year old male. He started to get blurred vision in his eye a month ago and lost peripheral color vision in that same eye. He’s a chemical engineer who just started his first job at chemical plant so at first he just thought something got into his eye. My husbands parents just told us last night. Does anyone here have recommendations/experience with LHON?
CosmicBunny97 3 points 1y ago
I don’t have experience with LHON but I would recommend the YouTuber Life After Sight Loss as he has LHON. Other than that, counselling and vision services are the other things I would recommend
BlindmanDrinking 2 points 1y ago
Hi there, I have LHON am age 30, got it at age 6 (fairly rare from what I hear). I have lost vision severely in one eye but not so bad in the other. As others have stated there's no current cure, but there are some tests going on in America which seem promising.
I'm happy to answer any specific questions.
I'm happy to answer any specific questions.
RunsOnBoltCoffee 2 points 1y ago
I’ve been affected since 2009 at age 19. No cure but there are some promising gene therapies taking place for newly affected. This is a good place to start:
https://www.facebook.com/groups/29805437752/?ref=share
If I can help in any way, please reach out.
https://www.facebook.com/groups/29805437752/?ref=share
If I can help in any way, please reach out.
niamhweking 2 points 1y ago
What country is he in?
weezywa [OP] 1 points 1y ago
US
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