*Video Transcription*

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(00:00) [*White wall. A pink-skinned woman, wearing a black tank top and a golden necklace with a neutral face expression. Calm piano music, black text on white rectangle.*]

Have you ever thought about going blind?

(00:01) [*The woman is starting to wear a black blindfold.*]

**Woman**: I usually try to make these really nice scripted positive videos...

(00:04) [*The woman is now wearing the blindfold.*]

**Woman**: ...but this series of art I'm working on is kind of a way to honour...

(00:08) [*The blindfolded woman is holding a white piece of paper and is showing it to the camera: it shows a gray-and-red painting of a flower.*]

**Woman**: ...for [*?*]. This series of paintings is called "Vision"...

(00:11) [*The blindfolded woman is now showing another painting of a gray-and-blue flower.*]

**Woman**: ...and it's become a processing tool for me for the feelings that've come up...

(00:16) [*The blindfolded woman is now showing another painting of a gray-and-yellow flower.*]

**Woman**: ...over my eye disease that may eventually cause me to go blind one day.

(00:20) [*The camera shows the last painting, resting on a white surface. The camera goes towards the right, showing the red-toned and the blue-toned paintings.*]

**Woman**: The disease is called retinitis pigmentosa, and it's not like this is a new diagnosis for me or anything.

(00:24) [*Timelapse of the woman's hand painting the red parts of the red-toned painting.*]

**Woman**: I've known since I was about 5, and several of my family members...

(00:27) [*The timelapse shows the woman painting the shadow of the red-toned painting.*]

**Woman**: ...have already become blind from the disease. But what is new is that I recently realised that...

(00:32) [*Slow camera movement to shows the details of the red-toned painting. At 00:36, zoom out.*]

**Woman**: ...I [*?*] an art creator, so the thought of losing my vision as time goes on, is... something that I have to work through.

(00:39) [*Another timelapse, showing the blue-toned painting and the woman adding the shadows around the flower.*]

**Woman**: But as I [*?*] these paintings are kind of a representation of what my vision may actually look like in the future. I keep coming back to the fact...

(00:47) [*Another timelapse: the woman is now drawing the flower of a new painting.*]

**Woman**: ...that... nobody can control the changes that happen in their life. All of these go through...

(00:54) [*Perspective change on the woman (right). She has short white hair and is wearing glasses, a black shirt and a white dress.*]

**Woman**: ...scary changes that we can control. But we've always adapted...

(00:56) [*The camera is now centered on the flower of the new blue-toned flower with red and yellow parts. The timelapse shows the middle of the flower being drawn.*]

**Woman**: ...in one way or another and we always will.

(00:59) [*Perspective change of the woman looking at the window for a second (through white blinds) while drawing the flower.*]

**Woman**: So, I've been relishing more...

(01:01) [*The camera is once again centered on the flower. The woman is drawing the petals' black contour.*]

**Woman**: ...on the details that I can make great now. And the vibrancy of the colours that I can really appreciate.

(01:06) [*Perspective change. The woman has given a last touch to the flower and is putting her brush on a jar with water.*]

**Woman**: But I'm also been trying to make attention to...

(01:08) [*The woman is now adding a light shadow to the painting with a thick brush.*]

**Woman**: ...things like the feeling of my brush on paper.

(01:12) [*A glass of water, and the thick brush is being immersed, dissolving blue paint. The brush is then raised above the water.*]

**Woman**: And the sound of swirling water in my water cups.

(01:15) [*Timelapse of the hand adding yellow tones and shadows around the flower.*]

**Woman**: And I'm also reminded of the shit that I've been through in my life. And the fact that beauty can be both bound and created in the darkest of places,...

(01:23) [*The new painting is finished: it is a bigger copy of the third painting. The camera then goes towards the right, showing bigger copies of the two other paintings, with their originals on the top.*]

**Woman**: ...no matter what. And that's what the series represents.

(01:27) [*End of Video.*]

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I was diagnosed with Retinitis Pigmentosa 14 years ago. I was the only member in my family diagnosed with condition, until my father was too 2 years ago. He is 70 years old and he still has better vision than I do.. (i am not too far from being diagnosed legally blind.)

It is good to know that there are people ( such as you) trying to over come the obstacles that this disease brings to one's life.

Keep it up the good work!

Damn you really had to make me tear up on the bus. I’m 20 and have XLRP, diagnosed at 15. It’s been rapid enough I never got a chance to drive and find trouble imagining my future without vision. I know there’s a good chance I lose it but when I have an image of my future in my head well…it’s an image. I can’t tell you good it feels to know others are going through the same thing (not that I’d wish this on an individual, but you know what I mean. Thank you for this!

These are beautiful! I'm a photography student with RP, I feel very much the same.

I've seen a lot of RP posts on here that talk about going blind. I have RP too, as does my mother. I think the vast majority of people with RP don't go blind. My mother is 80 and still has enough vision to legally drive. Am I wrong here? Seems like in this sub, we are being defeatist. Most RP people retain sufficient central vision to live modern lives. Like we can't be extreme sports athletes, but we can do most white collar modern jobs if you retain central vision.

In a week i will get back the DNA test results and will finally now if i have RP (I am waiting for the results for over a year now.) Sooo this video is hitting in the feelings. (Sorry for my English)

I have retina Pigmentosa and I’m an artist and I found this because I was feeling suicidal and wanted to know if there are others out there struggling. This saved my life

I am emerging artist with RP M[24] and have had an artistic career for 10+ years and have made work with this in mind. You go girl! Follow on Instagram @dispencer !!!!

I really, really love this. As someone with RP who got diagnosed just a few years ago, in my mid-thirties, I've been doing a lot of processing recently. I also work in visual media (video production), though I haven't been terribly excited about it ever since I moved out of live news and into commercial post-production. I have other career goals in mind that will be more conducive to vision impairment as my condition worsens (for now I still have a fair amount of usable vision) and I'm working toward those. I do really love pottery, especially wheel-throwing, and I'm getting back into that after not having done it since high school. I want to reacquaint myself with the wheel and the clay - the tactile sensations, the sounds, just like you talk about in your video - so that as my vision continues to deteriorate I will be able to continue doing pottery. Anyway, I just found your video incredibly relatable and wanted to let you know that.