Hi there- I'm a sighted teacher for the Blind and Visually Impaired. If you're in the United States, your son may be eligible for vision services through his school district. It's a part of the special education department and helps to ensure that he has access to his classroom curriculum.
An ophthalmologist is certainly the right place to start. If he is considered legally blind, you can take that report straight to his school and request a functional vision evaluation and an orientation and mobility eval. (The process is probably similar if you're out of the US but I'm only speaking to the US).
I want to be clear that it is ok to have feelings about this. Be sure to Allow yourself space to process this.
However- this is your son's life. This is his normal- what's new for you is what he lives with every day. I encourage you to focus on supporting him and finding resources to support his visual skills instead of trying to correct something that may not be fully correctable.
Use positive language that supports him and encourages him. Focus on what he can do and growing his skills in areas that challenge him.
There are some great online resources. I've listed two good ones to start with below.
>1. Paths to Literacy >2. American Foundation for the Blind- Family Connect
t_town9183 points1y ago
Reading through your response, both of his parents are hard of hearing. I am 50% deaf and his dad 70% deaf.
Our son is currently going to a private school because of learning disability. His can't read. My son has been on an EIP since my son was 3. I contacted Blind-Family contact.
Thank you.
FaerilyRowanwind1 points1y ago
Awesome. This will help him a lot.
FaerilyRowanwind3 points1y ago
Hey friend. Teacher of visually impaired and blind her. I’m the one talked to you before. Your child should probably be receiving services in school. With acuity like that with correction he qualifies as legally blind and may need services to access his curriculum. Please check in with your school about this. He may be getting visually fatigued and be struggling academically because of this.
Edit: depends on your location. But I feel like you said US before
t_town9181 points1y ago
My son has been getting help for his vision for over 9 years, he is 12. Why does is scream US? All free to me and him. All free.
FaerilyRowanwind3 points1y ago
You’ve been getting medical help. Educational help is different. And educational help should be free too. But also. Can you son read materials in his classroom? Can he see the board when his teacher is teaching? Does he get tired when he is at school (visually fatigued) from making his eyes work so hard? Is it possible he may need Braille or technology training so that he knows how to use a computer or use magnification to make things bigger? Once you lose acuity you don’t get it back. It’s more than likely permanent. At the acuity you mentioned he shouldn’t be driving when he is older. Does he need orientation and mobility? With being monocular (possibly having one eye) he probably doesn’t have depth perception, so does he trip over things or run into thing? In the US we provide this as part of accommodations and modifications in education to make sure kids can access their education. Where are you located?
t_town9182 points1y ago
He is starting to read when he is 12. Yes he is getting help, once a week. He has free education since he was 3after 9 years., we are paying for private school.
He has one eye that doesn't work. That vision is 30/200, his other vision is 20/200. He doesn't need any assistance for his mobility. He loves to ride his bike, hid his scooter, he loves going to the local skate park.
I have a hearing loss. I can hear out of one ear, at 60% hearing and my other ear is 40% hearimg. I can't hear annoying out of my bad ear. What I do hear , I can't understand.
Is vision the same, you can see but not understand what you see?
t_town9182 points1y ago
I don't consider my ear I can't ear out of as my dead ear, I just don't use it. With vision, I don't know to compare.
Should my son learn Braille? I have always wished my parents taught me ASL. It would have made life easier. Would braille help my son?
FaerilyRowanwind1 points1y ago
Sometimes yes. If you are doing private school and in the US. And in Tulsa. Then you can ask the Arizona Services for Visionally Impaired and Blind outreach to do a Functional Vision Evaluation to see haw well he sees in regards to school. Some of his reading issues may be that he has a hard time seeing what he is reading rather than he has a hard time reading in general like a reading disability. Would you like contact information for them so that you can get these services? At least the evaluation? It’s not the same as a dr eye test it’s about seeing what he can and can’t see in an educational setting to make sure he isn’t missing information.
t_town9181 points1y ago
He can't read. If something is read to him, he can pass a test, even state tests. He was the only child in Oklahoma that had his state test read to him and past.
Again my son can't read. He knows common places he passes by because I read places name.
He loves to ride his scooter and his bike at the Gathering Place. He can see out of his good eye. We live in Tulsa, Oklahoma.
I take it, I can hear out of my good ear. I am deaf. I can hear 60% from my good eye. I hear 40% from my bad eye. If you put a phone to my bad ear, it is like a tunnel, I can't hear shit. I can hear out of my good ear, not perfect but good.
Is this what vision is like?
FaerilyRowanwind1 points1y ago
This is what 20/200 looks like. And your child is one eyed. With one eye not working so it’s less than this. $1
FaerilyRowanwind1 points1y ago
He may be able to see big things out of his good eye. But not enough to read. So. His reading issue may be that he can’t see to read it.
t_town9181 points1y ago
He is getting medical help.
FaerilyRowanwind3 points1y ago
Right. I’m saying he may need educational help for his vision
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