Sighty here - to those who have lost their sight(self.Blind)
submitted by pandabanda74
Hello! I've always been curious? Those of you who have had sight and then lost it at some point. Is the experience of being blind similar to when you would close your eyes and it would be dark / black?
thewalruscandyman7 points1y ago
Going blind here, one eye a little better than the other. In my case, neither has peripheral any longer. Everything drops into the void, as I call it. It isn't black, black would be a thing...it's nothing. I can see nothing. It is no different than what's behind my head. As far as what I can see, at present, is like layer of Vaseline on a pane of glass, covering more and more as time goes on. I can only assume that it too, will drop into the void.
Fridux6 points1y ago
As I understand it, what you see consciously is not what your eyes see. Your brain interprets the incoming information, turns it into concepts, and then recreates the images again.
During my process of going blind, my brain started filling up the blind spots with what it thought was there, so it was common for me to see people that I thought were in my peripheral vision disappear as they reached my central vision, and after going blind all that remained were the hallucinations, which I still have today even 7 years after losing my sight. At the moment I'm sitting in front of my computer and can see a very blurry keyboard and display, but it's not real vision, as I don't even have light perception anymore. The images are so accurate in familiar places that at one point shortly after losing my useful vision I even had a psychotic break thinking that I had developed some kind of spectral sight.
These hallucinations concern me, because even though I never had hallucinations before my issues with blind spots and contrast perception began, I'm afraid that if scientists either find a way to regenerate my optic nerves and restore useful vision I will still not be able to trust what I see. Fortunately my hallucinations are not bizarre or scary like reports I've heard of people seeing Donald Trump sitting on their toilet or dead bodies in their bed.
Tasdigo2 points1y ago
I think the hallucinations are called Charles Bonnet syndrome. They’ve been known about for a very long time. Some are very pleasant but for others they can be quite scary. Or so I’ve been told.
BaylisAscaris1 points1y ago
You might enjoy the book called Hallucinations by Oliver Sacks. He talks about how common hallucinations are, what causes them, and the personal stigma people associate with it. Really interesting read and helped me feel better about seeing things. The audiobook is very well done with the author narrating.
MrDanMaster1 points1y ago
Is it accurate to say that the subconscious creates this environment that you see — blurry keyboard and computer — for you conscious mind to interpret? Can you use the visual ideas your mind creates to do stuff such as reaching out and opening a door thinking about it in sighted way, for example? Like using where you know the door is if it’s closed for hand-“eye” co-ordination?
Also, how accurate is the time in these scenes? Does nighttime in the same room look the same as daytime? Does new information add to what you can “see”, like if someone told you there was a stain on a wall, would it suddenly appear?
Fridux1 points1y ago
It's as accurate as the awareness of the world that I have without sight. If I know that the door is closed, and am in a familiar place, I already know from muscle memory where the handle is, so my hallucination will show me that. I've learned not to rely on it though, because sometimes my mental image of the world around me is wrong. With time of day it's exactly the same thing. If my subconscious knows it's daytime it will project brighter light coming through windows than when it knows it's dark. And yes, things appear and disappear from my mental image of the world as I become aware of them, so if someone told me there's a stain on the wall I will likely project it there, as long as I think the stain is big, because the vision is very blurry.
I'm getting so used to not trusting my hallucinations that, in dreams where I have the usual sight I had before my glaucoma became unstable, I still use a cane to walk around, grab people's elbows, and rely primarily on my other senses, and then start questioning why I'm doing that when I actually have vision. If I ever regain sight, getting used to a sighted life will take some time.
MrDanMaster1 points1y ago
Thanks for the detailed reply! I get an existential crisis looking at my dog and thinking “how is that alive” even though I know that there is a rational answer to that question which I understand on a certain level.
But actually having to be skeptical of what I “see” would be completely mind-blowing, knowing it’s just representation of information that I understand to be reality. The way I see know is that I literally just see it and I know that it is literally is. I just understand it as reality even though it is created by the mind and available information. Absolutely unreal. Have a good one.
MusicLover0351 points1y ago
I relate to this so much! I'm literally losing my vision currently (it might be actually all gone) but I can still 'see' things. I kind of use all my senses to create an image lol.
DrillInstructorJan3 points1y ago
Don't try this, it's not very good for you, but you know that thing where if you rub your eyes too hard and you see red and green splotches? Imagine that, only so intense you can't see through it.
PepperPhoenix1 points1y ago
That's how my mum describes her vision loss too. Patches of opaque coloured splodges in her field of vision.
She's kept me updated on how her vision has changed over time so I'll recognise it when it happens to me.
Similar to the answer above, my brain will try to fill in the blind spots but not get it right, so the first thing I'm likely to notice is that my field of vision will seem distorted, like the shimmer above a hot road. Straight edges and lines will be the most noticeable at first so we use an Amsler grid to gauge the damage. Right now, I have no distortions.
Eventually the patches will begin. Small at first then spreading out to obscure most of my sight. She says that sometimes they seem to shift around but that could be her brain trying to fill in rather than true vision.
OldManOnFire2 points1y ago
u/Fridux nailed it. The absence isn't a color, it's an absence. Your ears don't look black to you, they're just absent from your field of vision.
Hold your arm straight in front of you and make a fist. That fist is roughly the size of the area I can see. Fortunately for me that's also the size of a cell phone screen. I'm one of the lucky ones. Everything outside of that little radius is overlayed with dark tv static, and the further outside of my viewable radius we go, the darker everything gets until it blends in with the void behind my head.
But I don't notice the static or the void, much the same as you don't notice the world outside of your cell phone screen when you're looking at it. That's why texting and driving is so dangerous - not because the cell phone is blocking your view of the road, but because it's the only thing you notice. I'm seeing the static now because I'm thinking about it while writing this, but in a few more minutes it will blend into the background and life will go on.
BaylisAscaris1 points1y ago
It depends on the cause of blindness. I temporarily lost my sight due to a severe eye infection. For me it was like looking through a bright white fog. In the beginning I noticed that black was grey and all colors were muted, as if it was overlaid with white. Things were blurry. As it progressed everything was white/blurry when my eyes were open, and grey when they were closed, instead of black. I could sort of make out vague patches of color but not distinct shapes and it was very painful to try to look at anything. It was too bright so I mostly sat in the dark with my eyes closed.
For most of my life my brain doesn't accept information from my bad eye, so everything looks 2D. If I close my good eye and try to look out of my bad, things are blurry and misshapen and a bit uncomfortably bright.
If I lose vision due to a migraine aura it starts with a dot in the center of my vision where my brain corrects it to look like the surroundings. Often I don't notice it but if I look at text or a bug or something it disappears. Over the next 20 minutes it enlarges and develops a jagged undulating rainbow along the edge in a crescent shape. The vision in the center is blurry and darker. Sometimes I lose peripheral vision, so it it either dark or just not there.
I can't speak for permanent blindness. I am losing vision over time and my eyes often correct things I can't see as people, insects, cats, or rats, trilobites, but only in my periphery. This is worse when I'm tired or having allergies.
Individual-Fan16391 points1y ago
I went from 20/20 to absolutely nothing. No light perception. Yes, it’s dark.. but also light. It almost looks like I am looking out into the night sky. Then take that night sky and overlay that on to white. That is what it “looks like” nonstop for me. I also see what appears to be a light wave of motion going through / over / in the dark sky.
CosmicBunny971 points1y ago
Not really, but it's different for everyone. I've been completely blind in my left eye since birth and it's just like nothing's there. I went blind last year due to scarred cornea and everything's just cloudy and grey. I can see a tiny bit but it's not useful. I can still see what I can see when I close my eyes.
SoapyRiley1 points1y ago
I guess you could say my blind spots are black, but when I close my eyes I see shifting colors, not black so it’s not the same as that. It’s even different than when in a pitch dark place because I see static like in an old tv even when there is no light except in that spot. It’s just empty and I can really only see it because it’s tear drop shaped. Then around the edges of it it looks like falling silver glitter like at a new year’s party. So heavy I can’t see through it. Then there’s the white flashes that look very similar to a projector bulb burning through film. They move from left to right across my vision at random.
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