Blind and Visually Impaired Community
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Not sure if I’m going blind? (self.Blind)
submitted by danny-prince
So this started in march, I’m a type 1 diabetic and I know this effects vision however all the tests I’ve had in the back of my eyes show there’s no damage from diabetes etc, (I’ve only had it 6 years and I’m ok controlled) I’m age 25, in march I had my AstraZeneca jab and around two days later my eye sight just deteriorated. Two days later I suddenly needed glasses for every day life(used them for driving prior)
I’ve had numerous tests done and most show
My eyes are ok in the back of my eye but I don’t feel like it’s good enough
In august I had laser surgery done which definitely helped in not needing glasses however I’ve got dry eyes now which I was aware may be a side effect but I’m ok with this, my concerns are since march everyday my vision feels like it’s getting worse, my night vision is shocking I can barley see in the dark, my vision in general now struggles a lot close up and seems to have a general blur when I’m not focusing? My eyes are constantly blood shot and seem to hurt throughout the day( like a general ache)
It’s pretty terrifying and I’m not really sure where to go from here, I’ve just had the front of my eyes tested and I’m waiting the results of this, they also tested the brain responses etc with this but may take 3 weeks.
I struggle to focus on faces and my eyes are very light sensitive, I don’t think it’s because of the jab i just thought I’d mention as it seemed weird it happened so soon after.
I was more just looking for any advice on what might be worth doing, or if anyone ever had anything similar, sorry for the long read - any help would be appreciated
I’ve had numerous tests done and most show
My eyes are ok in the back of my eye but I don’t feel like it’s good enough
In august I had laser surgery done which definitely helped in not needing glasses however I’ve got dry eyes now which I was aware may be a side effect but I’m ok with this, my concerns are since march everyday my vision feels like it’s getting worse, my night vision is shocking I can barley see in the dark, my vision in general now struggles a lot close up and seems to have a general blur when I’m not focusing? My eyes are constantly blood shot and seem to hurt throughout the day( like a general ache)
It’s pretty terrifying and I’m not really sure where to go from here, I’ve just had the front of my eyes tested and I’m waiting the results of this, they also tested the brain responses etc with this but may take 3 weeks.
I struggle to focus on faces and my eyes are very light sensitive, I don’t think it’s because of the jab i just thought I’d mention as it seemed weird it happened so soon after.
I was more just looking for any advice on what might be worth doing, or if anyone ever had anything similar, sorry for the long read - any help would be appreciated
pokersnek 6 points 1y ago
What kind of specialists have you seen? I know it sounds like a dumb question, but some people stop their medical search at the optometrist office. It sounds like you’ve been to a neurologist at least. If they are finding nothing wrong with the structure of your eyes, then neurological testing is the right path. I could go out on a limb and make wild guesses, but I’m not a doctor. I’m trained in blindness rehabilitation.
danny-prince [OP] 3 points 1y ago
Hi thanks for the response,I’ve mostly been to the eye hospital near me which is with optometrists I’ve been to the diabetes eye hospital each time they both are usually scanning the back of the eye, I’ve had an MRI done as this started with severe headaches though I don’t tend to get those anymore, and my most recent test had me hooked up to a machine, it was like two copper foil lancets under both my eye lids, then monitors on my forehead temple and back of my head and I had to watch this check board moving for a long period of time, I’m waiting on the results of this but this was the first proper check / test on the front of my eyes, I’ve also had tests multiple times with the laser treatment optometrists and they’re saying they can’t see anything and that I’ve got 20/20 vision as I can read their test, but this doesn’t take into account night vision and general sharpness - their test is literally reading some letters at distance, but I do fully understand this isn’t their full speciality and can’t expect the same responses from them as I would an eye hospital optometrist. My biggest worry is that they rapidly are getting worse and there’s no explanation so I was more interested to see if there was anyone who’s heard of a similar situation - again sorry for the big read
pokersnek 3 points 1y ago
Interesting. So, like someone else said, just keep asking for referrals. I highly recommend looking for an ophthalmologist (as opposed to an optometrist). They are eye doctors in the medical sense.
Also, ask about something called Cortical Visual Impairment. Basically, brain related blindness. The eyes can be structurally immaculate, but if the brain isn’t interpreting the signals, then you can’t see very well. Also, neurological disorders, brain injuries, swelling, tumors, etc. could cause such a vision loss.
Also, ask about something called Cortical Visual Impairment. Basically, brain related blindness. The eyes can be structurally immaculate, but if the brain isn’t interpreting the signals, then you can’t see very well. Also, neurological disorders, brain injuries, swelling, tumors, etc. could cause such a vision loss.
OldManOnFire 4 points 1y ago
Keep looking. Every time a doctor tells you they don't know ask them for a referral to another specialist who might.
Good luck, and when you find out what's going on please come back and let us know.
Good luck, and when you find out what's going on please come back and let us know.
danny-prince [OP] 3 points 1y ago
I definitely plan to do this, I’m kicking myself for not doing this the last time I saw them and they advised they’re not to sure, I’ve got an appointment with them coming up soon and definitely plan to ask this if they don’t know again, thanks for the advice - I’ll definitely keep updated :)
codeplaysleep 3 points 1y ago
Dry eyes can impact your vision more than you would think, so start with getting treatment for that - there's probably something over the counter you can use, but there are also prescription options if you need them.
Has anyone bothered to check your intraocular pressure since this all started? Some of these things like the headaches, bloodshot eyes, blurry vision, achey feeling, etc. mimic some glaucoma symptoms.
You mentioned your vision being worse at night - this isn't uncommon and night myopia is a thing. Many people are more myopic at night and this could be related to the eye surgery. You may need a different pair of glasses for nighttime use.
You definitely need to see someone more specialized than an optometrist, if you haven't. I love my optometrist to bits. He's great and I fully trust him, but he often defers to my specialists for most things related to my various eye diseases and assists more in the monitoring of things, routine exams, and treating other refractive issues.
Keep asking for a referral to a specialist. If your insurance allows you to self-refer, try doing that if you have to. I would specifically try and see a retina specialist, an ophthalmologist, and then if you're still not making any headway, a neuro-ophthalmologist.
Has anyone bothered to check your intraocular pressure since this all started? Some of these things like the headaches, bloodshot eyes, blurry vision, achey feeling, etc. mimic some glaucoma symptoms.
You mentioned your vision being worse at night - this isn't uncommon and night myopia is a thing. Many people are more myopic at night and this could be related to the eye surgery. You may need a different pair of glasses for nighttime use.
You definitely need to see someone more specialized than an optometrist, if you haven't. I love my optometrist to bits. He's great and I fully trust him, but he often defers to my specialists for most things related to my various eye diseases and assists more in the monitoring of things, routine exams, and treating other refractive issues.
Keep asking for a referral to a specialist. If your insurance allows you to self-refer, try doing that if you have to. I would specifically try and see a retina specialist, an ophthalmologist, and then if you're still not making any headway, a neuro-ophthalmologist.
nullatonce 3 points 1y ago
Get yourself a pair of sun glasses.
And consult if you can use "fake tears" (or something for dry eyes), if it wouldn't interfare with testing.
Will improve life quality a bit.
And consult if you can use "fake tears" (or something for dry eyes), if it wouldn't interfare with testing.
Will improve life quality a bit.
Jevon_2ga 2 points 1y ago
I wish you very best of luck 🤞 I’m blind on one eye and have a small blind spot in the other :/
cherryblossoms2457 1 points 1y ago
could it be possible you have keratoconcus? look up the symptoms & see if you can relate to them
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