My eyesight has been getting really worse and I am terrified(self.Blind)
submitted by Tinypanda20
Im 21 and my eyes are rapidly going bad. I can’t read bus signs and supermarket labels , I can’t read books anymore because I can’t see the text at all. I can’t even properly see my phone, ipad and laptop. I have glasses but I still can’t do the above things comfortably. My glasses are very strong already and they just keep adding more and more numbers to them but I never am able to do the above said things. This monday I will go to a glasses doctor to get reccomended to a eye doctor. I did a online official glasses test made by licensed doctors where you have the screen 30cm in front of you and you do tests. My left eye saw 20% with my glasses and right saw 8%. Im scared that I might turn out to be legally blind and would like some tips and advice on how to cope with if I actually turn out to be legally blind
OldManOnFire24 points1y ago
First, take a deep breath. You're going to be okay. Even if you go completely blind you're still going to be okay. I promise!
You don't know why you're losing your sight. It might be something temporary and correctable, or it might be something permanent but stable, or you might end up slowly losing everything. It's usually smart to expect the best but prepare for the worst.
How would you do that?
* By getting a proper diagnosis, finding out what's causing these changes and what to expect. Until you know what's happening your mind is going to imagine the worst case scenario and you'll be miserable every time you think about it. Knowledge is power. Know what to expect. It will bring you peace of mind. * By taking care of what you need to while you can. If your eyesight is getting worse each day then today is the best day to do things. Visit the people you care about. Tell some jokes and eat some pizza and make some visual memories of them smiling and having fun. That's the way you'll remember them. Chop some firewood, shoot an arrow from a bow, paint a picture, and if you can do it safely, drive a car. Volunteer at the animal shelter. Take some pictures. Shoot some hoops or ride a bike or step into the ring and throw some leather. Live your life while you can still see it. Take it from an old man - it's never the things we do in life we regret once we're older, it's the things we didn't do when we had the chance. * By researching your options. Learn what government benefits are available and what it takes to qualify for them. Learn what career choices or business opportunities can be done by the visually impaired. Make a plan, then plan B, then plan C. Be ready with career options when you see your doctor. It's easy to panic when your plan is shattered by a declaration of legal blindness and you don't have a plan B. Know where your income will come from, where you can get the help you need, where you can find a talking alarm clock and a software program that reads Reddit aloud to you and a white cane and a guide dog. Knowing they're there for you if you need them gives you peace of mind just like knowing there's a spare tire and a jack in the trunk of your car.
Change is always scary. I get it, and I hope I'm not sounding like I'm trivializing your concerns. That's not my intention. I'm trying to show you some positive things you can do with your mind so it isn't stuck imagining the worst case scenario. The first few weeks after my diagnosis were hard, I won't deny that. But it didn't take long to adjust. Human beings are surprisingly adaptable.
You'll be okay. You've got this!
carolineecouture14 points1y ago
Don't put the cart before the horse. You don't know what could be going on right now, and trying to figure it out on your own only increases your stress. See what the doctor says. There could be many reasons why you are having problems. Depending on where you are, there are services available for VI people. I'm surprised you haven't had a referral before now if your prescription is changing so frequently.
Wait for the doctor and any tests they might need, and then go from there.
PrincessDie1236 points1y ago
I’m legally blind and have been losing my vision since I was a little kid, it’s scary sometimes but just take a deep breath, you’ve made it this far. Look for classes for white cane mobility and Activities of Daily Living for the Blind they will teach you how to utilize your other senses and may even have classes for assistive technology like screen readers and Braille displays and can teach you how to navigate bus systems and public transit safely. Try to be patient with yourself there’s a learning curve but it will be okay. Also legal blindness differs by state and country so it doesn’t necessarily mean total blindness, and most of the tips and tricks involve learning to be aware of your surroundings and not move too fast or compare yourself to sighted people too much because doing so makes it really easy to get discouraged really fast. For example being legally blind it’s hard for me to read signs and things so sometimes I take wrong turns, miss a buss stop, can’t find an aisle in a store which my friends and family find easily which can sometimes make me feel very flustered and emotional and yet because I know how to use my hearing and my white cane to navigate when caught out and about after dark I ended up leading my sighted friends back to their car because they were totally lost without their visual cues. Just because we are losing one of our senses doesn’t mean we are senseless.
Adventurous-Bid-93415 points1y ago
Same! My eyesite is something ridiculous like 400/370 and nope I can’t read shit without my glasses - I call them my eyes, and it’s been like this since..3rd grade? So yeah by 21, if I took my glasses off at night when you can see traffic lights and cars it was almost like an acid trip.
Tinypanda20 [OP]1 points1y ago
Honestly same, without my glasses I can’t see anything really. Taking off my glasses always feels like having a extremely foggy filter or constant haze
Adventurous-Bid-93411 points1y ago
Exactly! But please, wait until you’ve gotten a formal prognosis from a couple good eye docs! I’ve been scared, when I was 28, my eyes had gotten way worse, but I just make sure I spend nothing on frames and a lot on my lenses! Lol not a lot, but compared to most folks…I keep them thin, scratch resistant, UV protectant, and…something else.. no glare I think? Lol but lo and behold, when I turned 31, my vision improved! Not much but still! And it’s basically either stayed the same or improved a little bit since, and I’m 43 now. Of course I worry that my eyesight will continue to decline, and I am considered legally blind since I was about 18, but with so many 100% blind folks in my family, I feel blessed. I can see 20/20 as long as I have my glasses! 🤓
Tinypanda20 [OP]2 points1y ago
Thankyou so much, your story definitely helps me understand a bit better. I will definitely try to look up the possibilities☺️
PrincessDie1231 points1y ago
You’re welcome. Good luck!
Geminiraa4 points1y ago
Hi there I want to let you know that it's totally okay to be legally blind. I know that it's scary and tough I haven't lost my vision over time, I can only imagine how scary it can be for you. My advice is to connect with someone on here who's lost their vision. I can help you connect with someone like that btw. Also with reading text, I suggest learning how to use screenreaders and getting some apps that can scan and read text for you (I use smart lens).
JosephSeabourne2 points1y ago
So, this is coming from someone who has always been blind, so not sure hoe much help I'll be here, but…
First of all, if you weren't terrified, I'd be surprised, that's very normal and understandable. Like another comment said, try not to panic, do things you want to do with sight, and know your options and what to expect. 1. See if you can find out what is causing it, and what kind of progression often comes with that. Temporary? Permanent but stable? Permanent but progressing (how fast/severely?)? 2. Consider the kind of skills and equipment you might need should you lose more sight. Braille? Cane? Guide dog? Technology (screen reader / enlarged text / screen enlargers / invert colours / apps like 'Seeing AI' / etc - I'd have a dig through your phone's accessibility settings and see what helps)? Even small things like being able to feel to identify monetary coins/notes? 3. Do those things you want to get done. Sight seeing? Seeing family/friends? Driving if you can (remember you can ask a family member to let you have a go on private property)? Any experiences you'd like to have? 4. Engross yourself in the blind/disability community. Join Facebook groups, obviously there's r/blind and r/disability. There are also loads of blind creators on social media, YouTube and podcasts who you can always learn from (I always do). You know you'll be fine, but this might help remind you of that. 5. Do think about careers and stuff. What are you doing now? Most jobs are or can be made accessible, but of course there are some that won't be (obviously taxi driver or airline pilot aren't really options 😂)
Obviously though, don't stress, you don't know what's happening, and remember that it might just be temporary or correctable. Even if it isn't you'll be fine.
All the best
BlackSnapdragon1 points1y ago
Omg I’m in the exact same position right now. Went to the opticians yesterday so they could give me a referral and they said my eyes are healthy even though I failed all the tests horribly and I walked into the doorframe on the way in!! I just got fired for not being able to see my work properly so now the pressure to do something about it is really on. Have you tried learning to use voiceover on your phone? That at least let’s me feel like I’ve got some kind of control left
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