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Blind and Visually Impaired Community

Full History - 2021 - 11 - 15 - ID#qujiaw
24
Why do some blind Americans seam to really not like Molly Birk? (self.Blind)
submitted by bradley22
I'm from the UK and have subscribed to her and think she's doing great for herself.

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I think she's living alone now and even if she isn't, so what?

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There seams to be a true hatred for this woman from some blind Americans and I don't understand it. IF you don't like her can you explain why?
taversham 33 points 1y ago
I'm in the UK and certainly wouldn't say I hate her but I have cooled towards her over time. The reason I stopped watching her channel was because earlier I found her content very interesting and accessible/relatable and covered important issues to do with sight-loss, but as time went on she became a lot more "influencer"y - doing loads of clothing hauls and declutters, building up suspense for days before making announcements about her personal life, clickbait, not giving any credit to the people working for her behind the scenes, cultivating parasocial relationships, generic influencer material...

I totally respect her choosing to have this sort of career if it makes her happy and it seems like she's making plenty of money from it, so more power to her for making the most of her opportunities. But it does make her less approachable and for me the "I'm just a regular blind girl"-shtick rings a bit hollow these days, because while she does still face struggles due to her blindness, she also now has loads of wealth and success which has changed her life a lot and gives her options that most blind people don't have.

I will always appreciate her for teaching me I could wear mascara though. I'm completely blind in my left eye but have a bit of usable vision on my right, when I was about 14 I tried to wear mascara for the first time and ended up jabbing myself in the right eye which got infected and I had to wear a patch for a week (so I had no sight at all for that time). My eye was fine but I built it up in my head as "I'm too blind for mascara, I just need to forget it", until I saw a video where Molly put mascara on and I was like "if she can put mascara on with 0 eyes, I should be able to do it with 1", so I tried mascara again and it's been fine ever since.
princesspooball 16 points 1y ago
I agree with this 100%.

>she also now has loads of wealth

She grew up wealthy, her dad owned a sport team
not_so_kawaii13 10 points 1y ago
I kind of agree with this. I like her as a person and like her videos for background noise. I think she genuinely tries to be a good person. But agree that she has has become very influencer-ish. And I just avoid those types of videos. I can see where that's not everyone's kind of thing. And like expecting one person to be able to represent a whole community is so outlandish. She's just doing her thing.
zersiax 9 points 1y ago
I think the problem there is that people can't really do anything BUT expect that. It's silly, I absolutely agree with you, but there is also an undeniable fact that a LOT of people who have not come into contact with blind people before will stumble across her content and assume she DOES represent blind people as a whole, because who is going to set them straight? This is just how people work in general; a person of a minority group puts themselves out there and becomes the face of that minority group, makes it approachable for people who aren't in this group and people generally want to have the comfort of sticking a set of stigmas and expectations on a minority's label to make them easier to classify.

So, if , say, blind nephew Johny Joe Johnson goes for a job interview, and the interviewer has seen her content, it is absolutely possible that dear Johny will be judged by what this person has seen Mollie do or not do. Is that fair? Nope. Is that likely? Ehh ...I guess it depends on the person, but it's certainly not impossible.
taversham 8 points 1y ago
Yeah, I think if there were loads of other blind YouTubers with similar levels of popularity then people would have less of a problem with whether Molly is "representative" or not. But the only ones even slightly close are Lucy Edwards and Tommy Edison (and both of those are still well under 1 million subs), so Molly ends up being "the voice of the blind" on social media even though that's not necessarily a role she intended to take on.
not_so_kawaii13 3 points 1y ago
That's a reasonable statement
MaplePaws 8 points 1y ago
I do agree with the fact that she has leaned heavily into the influencer persona at least online, so much so that I feel she is almost indistinguishable from the other influencers floating around the internet except for parts that now feel like background to the flashy portrayal of her life she posts. As you said it feels insincere that she tries to portray herself as just a regular blind girl when her lifestyle has given her more opportunities than a lot of people will end up with because she is now an influencer which is okay, I am glad that Molly gets to have these experiences but she does feel more I guess fake.

Honestly like you she has had a positive impact on me, I am not blind and while my doctors cannot see anything wrong with my eyes at this time I am definitely noticing some deterioration of my peripheral vision over time. She has helped me realize that losing my vision if that is my fate is not the end of the world, I just need to learn and adapt so that I can still participate just in a different way.
bradley22 [OP] 3 points 1y ago
Thanks for explaining your side of things :)
changeneverhappens 2 points 1y ago
You summed it up perfectly
DrillInstructorJan 2 points 1y ago
For what it's worth I can put mascara on with zero eyes too, although I must admit I usually don't.
Raf_AL 19 points 1y ago
I think people don't like her because she isn't representing the average blind individual. She gets a lot of help with her videos and social media and has become quite successful because of it, which makes people envious of her. I think it's really nice that she has a supporting family around to help if needed.

In northern Europe, we have the unwritten law of Jante, which sums it up quite nicely. You should never show off your success in any way since that's basically bragging about how much better you are than the people around you.
bradley22 [OP] 2 points 1y ago
Interesting. I don't think she intends to represent the average blind person though, I could be wrong though.
JosephSeabourne 12 points 1y ago
I'm in the UK too and also don't understand why people don't like her. There's a video that I'll link below which explains why that creator doesn't like her.

One of the most prevalent arguments I see is that she doesn't live an "independent" life and that she doesn't represent them. Which is rubbish because of a few reasons.
First, people say she lives with her mum who does things for her. She actually currently lives alone, and the reason they lived with each other was because her mum worked full time as an employee of Molly's in her business. They also just have a close relationship. Hey, who said you can't live with your parent(s)?
What does it mean to be independent anyway? Like, just because I don't do something on a regular basis, doesn't mean I can't. Not all sighted people live alone, yet many blind people think that to be independent they must live alone and must cook for themselves every day and must do everything on their own and must not ever ask people to help them. Personally, I think being independent is just as much being able to ask/accept help as it is doing something yourself.

A lot of people are saying that her videos are very "look at me, look at how much money I have" which is kind of true, you can definitely see it. But, is that not any big YouTuber with millions of subscribers monetising their content? Does it matter that she's blind?

People also say that she doesn't represent them, but, does she not say at the beginning of every single one of her videos that she is "Molly, and Molly is blind" and that she can't represent everyone?
I think a lot of it is jealousy of her success. Yeah, the average blind person isn't that big on YouTube, doesn't have that much of a following, doesn't have that much money, etc. Neither though does the average sighted person.
Molly faced that inequality in employment. She was one of that 80% of blind people who are unemployed. But, she decided to employ herself and has become successful.

But yeah I agree. Molly is how I - in a way - properly found the blind/disability community. Like, I knew it was out there, but hadn't thought about it until I found her.
bradley22 [OP] 3 points 1y ago
I live with my parents but am independent so to me that argument doesn’t make much sense. You can be independent and live with parents and housing isn’t that easy to come by.

As for her money, good for her :) i’m happy for her but I’m sure she’d be one of the first to say money isn’t everything.

The jealousy thing wouldn’t surprise me at all. It interests me though because I don’t think I’ve been jealous of anyone.
Normal_Human_4567 9 points 1y ago
(not blind myself)

I'm in the UK too, I'm on the same page. Seems odd to not like someone just for sharing their own life experience?

I know she doesn't represent all blind people, her experiences are not universal. I do think she has a platform that allows other/sighted people to see how she lives. I like that from her, I have a base understanding of the ways *some* blind people navigate the world.

Also her cat and guide dogs are cute
bradley22 [OP] 3 points 1y ago
Exactly :)
DrillInstructorJan 7 points 1y ago
I don't get the impression that there's that much dislike going on. She's maybe showing us a rather idealised lifestyle that is probably not very attainable for a lot of people, but the point is it isn't attainable for her, she probably isn't really living the life she appears to be living. That's not to imply she's not being honest but it shouldn't be a massive surprise to anyone that the lifestyle of a social media influencer is edited for public consumption. That's youtubers, that's what it is.

There are a few things about her we don't really know, such as how she affords what must be an amazingly expensive Los Angeles apartment, or at least how she used to afford it before she was such a massive name. There's also the issue of how she as a Canadian got paperwork to live and work in the United States. But those are things we don't know, which aren't necessarily our business. If she's got a rich dad who's helping out, so be it. I'd do the same for my daughter if I had one!

The only concrete objection I have to her is that on a couple of occasions, particularly once when she was flying from an airport, she's let people do a lot of work for her that I would have made a point of doing myself. But honestly that's a minor quibble, we all deal with this stuff differently.


She has made the disability her brand and if you want to see it that way, you could object to that, but I think it's taking lemons and making lemonade.
bradley22 [OP] 2 points 1y ago
On vorail there was a huge thing about... Something, a couple years ago and I was just confused as to why some people in america has so many issues iwth a woman who's living her best life.

I'm sure there's a lot we don't know, fears she has, things like that, but she's got a boyfriend, she has money and she's doing good for herself :)

As for things in airports, from what I remember she's had a lot of issues with staff not thinking she's blind and people thinking her guidedog was just another fake service dog. I might be more confident than Molly in certain things but I've not done half the things she has and truely do wish her the best of luck.
DrillInstructorJan 4 points 1y ago
I do think that more people should look to have a frankly more normal life. I pay a mortgage, I have a job, I have a long term, live in, carnal sin type man toy to whom I'm not married and anyone who doesn't like it can go jump in a lake. In winter. These things are possible and we shouldn't have people turning up here in the automatic assumption that their only available choice is to live on benefits. If that's how we're bringing people up, something is wrong, and if Molly helps counter that, great. I do think we need to be clear that there are other ways to a good life than being a star, the fame thing we get on the internet right now is not very helpful, but I think there is at least a bright side to look on. If we want to.
bradley22 [OP] 1 points 1y ago
Random question, what does toy mean in this context?
DrillInstructorJan 1 points 1y ago
Use your imagination! Anyway he says he's not a toy, he's a utensil for all the chores I claim to be unable to do. Remember, mum's the word!
bradley22 [OP] 1 points 1y ago
I live off of benifits but I get your point.

Live and let live is what I live by.
DrillInstructorJan 1 points 1y ago
No disrespect at all. To me it depends on all kinds of things, particularly what your background is, how long you've been in this situation, and what you're actually doing with your days. Maybe we're driving this off topic now but I think it's an interesting subject. I have always pushed my padawan learners to do something useful, even if it's not conventionally a job.
jennyquarx 7 points 1y ago
What? Is she widely disliked? (I'm American and a fan.)
bradley22 [OP] 1 points 1y ago
I think so, yeah.
serrebi 6 points 1y ago
I think a lot of people wouldn't have a leg to stand on if she'd admit when she relies on other people. I'm not really an expert on why people hate her, but I think\ that's an overview of the issue. Also, people disagree with some of the statistics she's quoted in her videos. Since employment rates are fuzzy numbers around the world how can these people even know themselves?
bradley22 [OP] 2 points 1y ago
Right, I've not watched all her videos but the thing is to me at least; she doesn't seam to hide it.


It just seams odd to me to dislike someone simply because they don't represent what you think a blind moddle should be like or something along those lines.
serrebi 3 points 1y ago
Yes
Vicki7789 5 points 1y ago
I’ve watched a few of her videos and I didn’t find myself warming to her. But I’m not a huge fan of influencers in general so it’s nothing against her in particular I don’t think. I’m in the UK too.
bradley22 [OP] 1 points 1y ago
Ok :)
mammaube 5 points 1y ago
I don't particularly like her cause as someone who has RP her depiction of it isn't exactly accurate. Everyone experiences RP differently don't get me wrong it's just the fact that most blind or low vision people with RP aren't as privileged as she has been. And people keep stating or thinking that she's the "average" blind person with RP and she's not. She just a girl who is very privileged. She gets A LOT of help from people to do her business which there's nothing wrong with that but you can tell it's a business now. Maybe in the beginning it wasn't that way. It probably was just about her disability and her living her life and stuff but now it's diverge from that. As people have stated it's more influencer videos now.
DrillInstructorJan 2 points 1y ago
Isn't that exactly what we want though?

I don't want to be known as the blind person doing the job I do, I just want to be known for being good at it.

She's being an influencer, that's a job these days. I think the problem is that people want to believe it's all real and that's what people's lives actually look like, and when you think about it rationally it can't possibly be true. It's not that I'm saying Molly or any other youtuber is being dishonest but obviously they're only showing you the good stuff.
bradley22 [OP] 2 points 1y ago
Ah ok.
CosmicBunny97 5 points 1y ago
I generally like her, but some of her content doesn't interest me (I don't care much for the fashion or condo videos). I know that she has to appeal to both blind and sighted audiences.
bradley22 [OP] 1 points 1y ago
Same here.
CosmicBunny97 1 points 1y ago
I do think she does a lot for awareness, so I’m appreciative of that.
bradley22 [OP] 1 points 1y ago
She does.
AllHarlowsEve 4 points 1y ago
This isn't my beef because I don't watch influencer videos or listen to podcasts or anything like that, so I don't know the validity of any claims. That said, I've seen people say that she claimed to need help to shower as an adult, amongst other learned helplessness situations. With her being one of the most visible blind people in the world, it really harms the independent adult blind people who are trying to break down the stereotype that we're bumbling children who need a caretaker to do simple life tasks.

EDIT: Rephrased because my original comment was a really ugly run-on sentence.
bradley22 [OP] 0 points 1y ago
It’s interesting to me how some blind Americans say things like this.

Why must one person represent others?

I Hope you guys don’t think that I hate America or something, it just seems that the blind community in America can be quite different to the UK.
AllHarlowsEve 4 points 1y ago
It's not that she has to be a representative of all blind people, it's that she's the only example many people are aware of that's been relevant in the past few decades. Briefly, Christine Ha, a contestant on Master chef US, was an example although people seem to have forgotten about her unless she's mentioned.

A lot of sighted people don't really consider how blind people could do things, and just draw from that to figure out what blind people should be capible of, in their opinions. If a blind person confirms that, then they have no reason to question their bias. By putting herself out there as an "average" blind person, if that's her shtick, then not being able to shower alone or feed herself or whatever else would mean that people would assume that the average blind person can't do those things either.
bradley22 [OP] 2 points 1y ago
Ah ok. I understand a bit more now about how people feel.
I still think she’s doing great for herself and that people should judge everyone individually, but I do see where you’re coming from.
Nighthawk321 3 points 1y ago
I'm not speaking for myself, just for what I've observed over the years. Many blind people feel that Molly misrepresents the blind community. Many counter by saying, Molly doesn't speak for the blind community, which is true. The problem, in my opinion, comes in when sighted people think she is the only source for blind education, when in fact there are so many more content creators/advocates with specialized knowledge.

TLDR, Molly is successful, some sighted people assume she speaks for the blind community, blind people think this is wrong.
bradley22 [OP] 1 points 1y ago
Right, I understand now :)
Tarnagona 3 points 1y ago
I’m fairly indifferent to Molly’s videos. I’ve only seen a couple and they’re fine. I found the person from Life After Sight Loss more engaging, honestly, even though he has far fewer subscribers.

I do worry that these famous blind YouTubers are taken as representatives of blind people. I’ve seen people make that assumption with Molly Burke and with … Tommy Edison I think is his name? And I don’t think it’s because they’re trying to be spokespersons for the blind but it still happens, and they need to be aware of that, because they may be the only exposure someone has to blind people. If Molly can’t cook her own food, for example (and IDK whether she can or not), she needs to emphasize this is her, Molly, who can’t cook, not blind people as a whole who can’t cook. If she does do that, then awesome. If she doesn’t (for this or anything else really), that potentially creates problems for the rest of us trying to get past all the stereotypes.

Essentially, because there are so few well-known blind YouTubers, fame and popularity make blind YouTubers like Molly representatives of the blind community, whether they intend to be or not. And whether they want it or not, that comes with a responsibility. If Molly isn’t being a good representative in someone’s eyes, I think that’s where dislike and frustration come from, not jealousy. Because we potentially deal with the fallout from that, while Molly gets to just keep doing her thing without consequences.

I feel like I’m a bit all over the place. And in the end, I’m pretty ambivalent towards Molly. She just doesn’t take up much space in my head. Also, for what it’s worth, I’m Canadian.
bradley22 [OP] 2 points 1y ago
interesting. I don't care much what people think about me as a person blind or otherwise so it's just interesting how much weight people put on this kind of stuff.


Is weight the right word here? Do you know what I'm trying to say?
Tarnagona 2 points 1y ago
I don’t care as such what people think of me, but it’s more how what they think of blind people can interfere with me living my life. That’s the part I care about. Like, for example, if someone thinks blind people can’t use computers, that will effect whether that person decides to hire me, a blind person. That’s the kind of thing that concerns me.
bradley22 [OP] 1 points 1y ago
Ah, ok.
BenandGracie 3 points 1y ago
I have never watched her videos. I don't generally watch blind influencer videos. As a totally blind guy who has been blind since an early age, I find most of them a waste of time and kind of cringe worthy.
bradley22 [OP] 1 points 1y ago
Ah ok :)
Tasdigo 3 points 1y ago
I’ve read the comments on this post and what seems to come through to me is envy and jealousy. Molly says constantly that she doesn’t represent the blind community. It’s not her fault if there are so few blind people in the public sphere to offer a diverse view of blindness. If she was born into wealth then that is no more her fault than her blindness. All any of us can do is live our lives to the best of our abilities. No one has to ‘do blind’ or ‘do low vision’ the exact same way. It’s human nature to sometimes be jealous of those that have what we want. It’s an emotion we have to acknowledge and curtail to be better people.
cahillm7 1 points 8m ago
About her wealth: I think the reason it's grating is that she doesn't acknowledge the privileges she has from being wealthy. Louise Pentland is someone who I think does a bit better of a job acknowledging that her lifestyle isn't attainable for everyone and that she benefits from wealth in ways that others can't. Just acknowledging her privilege makes her videos more palatable to me.

Additionally, I think her wealth leads her to be out of touch with the struggles of ordinary folks. I saw a Molly Burke video recently where she was discussing how stressful life was, but some of that stress she brought upon herself: she doesn't have to have two apartments (one in Canada and one in LA), she is her own boss and can set her own schedule. She has the power to reduce her workload if it is too much, folks like Sierra Schultzzie set good examples of how they adjust their workload when things get to be too much. When discussing her stress, she was sitting on the balcony of her luxury LA apartment, in the middle of workday, having recently gone shopping and relaxed by the pool. She is allowed to have that luxurious of a life, but she needs to acknowledge that her stress is relative and that she is quite privileged to lead such a lifestyle. She just comes off as out of touch with reality such that it makes it hard to find her relatable.
bradley22 [OP] 1 points 1y ago
Exactly.
moonpegasus19 1 points 1y ago
one other thing is that she doesn't seem offiliated with any of the bliness organizations which means she does stuff the way she wants instead of the way they want blind people to do things. That rubs folks the wrong way. The bullying thing is not great though, but I honestly know of people who were bullies and had an incident chane the way they do things. Kids an be cruel. I like her. I think blind people need to kind of get off their high horses. Independence is great, but people should not have to live a certain way and get judged. One big part of successfully living as a blind person is asking for help when you need it, and it's not always the best idea to go around asking strangers to help. They have their lives too. I don't travel on my own. I've trained for my entire life and can't get further, plus it makes me feel like I'm going to throw up everytime. I still feel independent, but I do things my way. I pay a little extra to get rides to where I need to go, or get help with groceries because this is how I feel safe. I do live alone though, but I know I'm going to get judged by somebody as giving the blind community a bad name. Molly has help with things too but only when she knows she needs it. This is a sign of strength, but some people in the community view that as laziness and weakness.
bradley22 [OP] 1 points 1y ago
Yeah it’s odd tbh. We should be able to live how we like and not have to live up to others standards.
Superfreq2 1 points 1y ago
I find her voice annoying. I kind of find her endlessly cheerful attitude annoying (because I'm an asshole probably) I don't care about women's fashion at all. And influencers tend to be terribly shallow borderline sociopaths so I dislike them on principal.
I haven't even watched enough of her stuff to know if I have a problem with her on anything to do with blindness, but I wouldn't be terribly surprised if I did... I just don't like her type in general.
bradley22 [OP] 1 points 1y ago
Ah ok, just so you know; she's not always cheerful and makes videos about more than just her blindness but i understand, if we all liked the same thing we'd all be the same person and that wouldn't be fun.
[deleted] 1 points 1y ago
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bradley22 [OP] 1 points 1y ago
Really? Well that’s not good.
PrincessDie123 1 points 1y ago
Name sounds vaguely familiar but honestly I’ve got no idea who she is.
bradley22 [OP] 1 points 1y ago
Ok :)
[deleted] 1 points 1y ago
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