Bring your karma
Join the waitlist today
HUMBLECAT.ORG

Blind and Visually Impaired Community

Full History - 2021 - 11 - 22 - ID#qzjuln
6
Vision deteriorating (with glasses), but optician seems unconcerned and doesn't say there's a problem? (self.Blind)
submitted by magpiegoo
Hello! I have, for a long time, had difficulty with my sight. It doesn't tend to happen in the middle distance, mostly short (reading), or long (signs and such). I have had glasses for long-distance this entire time, updated every two years.

Every time I go in for new glasses, I expect the glasses to fix the issue. They don't, I make a shocked face, and forget about it but grow increasingly frustrated. But recently when I was talking about it to my mother, she replied with something that made sense to me? That she had a similar issue and her optician had said that middle distance is where your gaze "rests", while other distances require effort to focus. I have hEDS and chronic fatigue (the latter of which has become very severe in the past year or so) so this kind of "clicked" as a possible explanation, because the nature of my issue is that I can concentrate, see what I need to see, and then instantly my vision starts to degrade.

Until recently, it was not hugely bad. Some signs I couldn't really see, and reading was too hard to keep refocusing. But it has got rapidly worse until I've had to increase the font size on my browser (and Reddit, which doesn't seem to respond to that, is set to 125% scale). Discord is now 20px instead of the default 16px which I'd always been fine with. Even these sizes are tiresome or even impossible to read most of the time but I have always hated big text and it's taking me time to adjust mentally to the changes.

In my optician test maybe a month ago, I reported this, the second time I've done so (the first time I was dismissed out of hand). She listened, but seemed unconcerned. However, doing the eye test was so difficult that she actually had to retest one eye. I'm guessing my results looked inconsistent due to the fact that I was constantly having to concentrate on fighting to bring the letter back into focus. If I didn't do that, honestly all the lenses looked like trash and it was hard to distinguish them.

But despite this, and despite me pointing out that this issue is why she had had to retest, I was sent away with a new glasses prescription and no other advice, referral, anything. So I don't really know what to do? I don't even know if I should be speaking to someone about this. "I can't see that" is rapidly becoming my most common phrase, when being shown things I could see fine last year, but an optician said nothing of note just a month ago so I feel like any attempt to ask to be evaluated would just be dismissed?

Honestly I'm still processing that this is happening to me, but does anyone have any advice on where I should go from here? Thank you so much!
carolineecouture 13 points 1y ago
Opticians are people who make glasses. You need to see an ophthalmologist right away. I'm surprised your optician didn't suggest a referral. Please do this as soon as possible. What you report is concerning. Good luck!
magpiegoo [OP] 4 points 1y ago
Thank you for this! I will call my GP ASAP to see what can be done to get this moving.
Andromeda_ademordnA 3 points 1y ago
I second this. I had a similar experience with my optician not taking my deteriorating vision seriously. It cost me greatly not knowing what my condition was. I eventually got diagnosed with Stargardt's Disease last year when I went to get Lasik.. Wish I would have know before I took vitamin A via prenatal vitamins for the better part of nine months when I was pregnant. Due to the nature of my disease this caused my vision to worsen at a quick pace. Please get referred to a specialist and advocate for yourself! :)
impablomations 2 points 1y ago
Opticians also perform eye tests, at least in the UK. Even an opthalmologist isn't guaranteed to be useful. Mine just did the regular tests an optician does and ignored my issues (Charles Bonnet syndrome), it was an independent Optician that finally gave me a proper prescription.
magpiegoo [OP] 2 points 1y ago
Yeah, I remembered at the last minute that my GP has the standard "if it's dental, phone a dentist, if it's to do with your eyes, phone an opticians" message before they put you through. I now have an appointment with the same opticians place who did my test this coming Thursday, they seemed to agree that there was something worth investigating at least, so that's something.
carolineecouture 1 points 1y ago
Whoever deals with diseases of the eyes should evaluate you. I'm not saying that's what's happening, but they sure aren't helping you now or taking your complaints seriously. Good luck.
vwlsmssng 2 points 1y ago
You might find support and advice for your local charity or service for blind or partially sighted people.

In the UK you can search here https://www.sightlinedirectory.org.uk/

E.g. search for "support" in your town or the nearest big town.
magpiegoo [OP] 3 points 1y ago
Thank you, I will have a look at that and see what I can find!
FaerilyRowanwind 1 points 1y ago
You need to see an ophthalmologist not an optician. It sounds like you are caving issues with accommodation and possibly with convergence. If I had to gander a guess I’d say that you are gaining some visual fatigue as you go along too.
impablomations 1 points 1y ago
Try a different optician and stay far away from Specsavers if you have anything other than 'normal' requirements.

I have trouble during eye tests due to Charles Bonnet syndrome and it took me a couple of years of going to various opticians before I found one that did a decent test and listed to my issues.
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc   •   HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.