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Blind and Visually Impaired Community

Full History - 2021 - 12 - 18 - ID#rjaq5i
6
Can someone please tell me what is like to lose central vision (self.Blind)
submitted by Otherwise_Computer79
how did u first notice did glasses help u before hand what was ur very first sign that something more was wrong
xmachinaxxx 5 points 1y ago
I’ll keep my story short but I noticed something was wrong when I was constantly cleaning my glasses because I thought they were dirty and that’s why I couldn’t see even with them on. It was not the glasses.
x_Barnacle_671 0 points 1y ago
If you find yourself looking slightly away from something in order to see it, that's a sign
Hyacinth___Bucket 2 points 1y ago
Hey friend, I began to notice over a rather long period of time that I was gradually becoming much more reliant on my peripheral vision (I was positioning my head at strange angles to try to get a clearer view, increased loss of depth perception, no longer being able to recognise faces/features or being able to differentiate colours, etc.).

This is just my personal experience, speaking from the perspective of being visually impaired and living with uveitis, glaucoma, scleritis and cataracts.
Otherwise_Computer79 [OP] 2 points 1y ago
Do ubhave posterior scleritis and what type of uveitis...did u see static and floaters...how long did it take to get ur diagnoses
NoClops 1 points 1y ago
My ex-boyfriend had a condition that caused him to lose his central vision. I thought he gave a really good explanation which helped me grasp a bit more than I had from most technical ones. If you’ve had average/normal site in the past, imagine the image of when you’re driving down a road and you see all the stuff at the very farthest point of the road ahead of you. He said that’s how his typical vision looked. The things on the outside were in focus, but the central vision looked super far away and out of focus.
RunsOnBoltCoffee 1 points 1y ago
LHON, prior 20/20 vision:
First sign was unable to read my computer screen with one eye closed. Blurry text but other eye was compensating so didn’t notice right away. This was quickly followed by enlarging scotoma, loss of color and movement to second eye.
Otherwise_Computer79 [OP] 1 points 1y ago
Thanks for replying couldbu still see good far away and read good far away and also what was ur condition
RunsOnBoltCoffee 1 points 1y ago
During vision loss onset? Yes, for a short period of time. Nowadays I can’t see my hand a foot away from my face or read text/recognize faces. I have limited peripheral vision but it’s only enough to get around. I have Leber’s Hereditary Optic Nueropathy.
Otherwise_Computer79 [OP] 1 points 1y ago
I was just curious if it made you nearsighted or myopic and if negative lenses helped
RunsOnBoltCoffee 1 points 1y ago
As it’s optic nerve damage, lenses did not help.
[deleted] 1 points 1y ago
[deleted]
Mamamagpie 1 points 1y ago
This might demonstrate it: $1
x_Barnacle_671 1 points 1y ago
That's not at all what it's like for me. I have Stargardts. For me it's like someone right in front of me took a photo with flash, and the spot just never went away
x_Barnacle_671 1 points 1y ago
Using peripheral vision to do everything. You can see to walk, and grab things, etc. But you have no detail. I can't read or see numbers unless greatly magnified, but I can still cook, watch tv (sort of) I even go to the shooting range.
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